Search:

Type: Posts; User: pookies brook

Search: Search took 0.04 seconds.

  1. Replies
    3
    Views
    1,018

    London Eye

    Hi can anyone recommend a Hotel close to the London Eye & Tower Of London with rooms suitable for people with disabilities please, i have looked myself but they only say wheelchair access and don't...
  2. Replies
    18
    Views
    5,634

    Hi i used to get severe leg spasms or juddering...

    Hi i used to get severe leg spasms or juddering as i would call it mostly at night when in bed and relaxed they would start i was given botox injections every 3 months 2 in the thigh 2 in the calf ...
  3. Replies
    20
    Views
    5,188

    Hi Ellie I do also have C.O.P.D.,my ventilator...

    Hi Ellie

    I do also have C.O.P.D.,my ventilator nurse came and changed the IPAP to 22 from 25 made the breaths shorter but more often and extended the exhale part, this is better than before not...
  4. Replies
    20
    Views
    5,188

    Hi Barry It's a real nightmare at the moment ...

    Hi Barry

    It's a real nightmare at the moment but i am determined to use this ventilator no matter what, we will be at Septembers meeting see you then

    Paul
  5. Replies
    20
    Views
    5,188

    Hi Ellie Spoken to my ventilator nurse and she...

    Hi Ellie

    Spoken to my ventilator nurse and she is coming to see me tomorrow to have a look at the set up again,thanks to all for your input i will inform of the outcome

    Love P.B
  6. Replies
    20
    Views
    5,188

    HI ellie The IPAP pressure is 25.0cm i would...

    HI ellie

    The IPAP pressure is 25.0cm i would have no idea what that means

    Love P.B
  7. Replies
    20
    Views
    5,188

    Hi Terry I'm unable to alter the settings as...

    Hi Terry

    I'm unable to alter the settings as it's locked off by the ventilation nurse,yeh Ellie made a good point about being relaxed so will have a couple of whiskeys then give it a go

    Love P.B
  8. Replies
    20
    Views
    5,188

    Hi Ellie Ok so i use the full face mask,and i'm...

    Hi Ellie
    Ok so i use the full face mask,and i'm still in the process of trial using for a couple of hours a day because i was told that it's not for everybody by my MND team,my ventilation nurse...
  9. Replies
    20
    Views
    5,188

    Hi all, Not been on here for a while,So i have...

    Hi all,
    Not been on here for a while,So i have been given a nippy 3 but having problems with it giving me a lot of wind that much it becomes very painful and have to stop using it,l has anybody had...
  10. Replies
    6
    Views
    2,872

    Hi Pseudonym, i was also 2 years before diagnosis...

    Hi Pseudonym, i was also 2 years before diagnosis the thought of not knowing is bad enough,then when your told it's hard to take in.I attend my local branch of mnd society on a monthly meet there are...
  11. Thread: Botox

    by pookies brook
    Replies
    0
    Views
    1,962

    Botox

    Hi All,i have already posted my experience of having botox injections to help with the spasticity in my hamstrings and calf muscles,and found it to be a help although given only 50% dose at my first...
  12. Replies
    6
    Views
    2,388

    Hi Ellie,the type i had was dysport,the...

    Hi Ellie,the type i had was dysport,the neurologist explained there are different types,i have heared of someone having it to control bladder weakness if that's true this could be a great relief to...
  13. Replies
    6
    Views
    2,388

    Hi Terry,if anyone has not been offered it i...

    Hi Terry,if anyone has not been offered it i would suggest they ask but for me it's helped although not a cure i does give relief.

    Paul
  14. Replies
    6
    Views
    2,388

    Hi Terry,this is my first dose and only given 50%...

    Hi Terry,this is my first dose and only given 50% dose and told i will last for 3 months then have 75% again lasting 3 months and then 100% and every 3 months thereafter it has helped with cramps and...
  15. Replies
    6
    Views
    2,388

    Hello all

    Hello all,I last posted in September last year(introduced myself),i was diagnosed with PLS in May 13,since then my walking and balance has worsened and have been given Botox injections to my calf and...
  16. Replies
    12
    Views
    5,510

    Hi Haylu,thanks for the welcome, well it looks...

    Hi Haylu,thanks for the welcome, well it looks like i'm going to have new friends to share experiences with,and also be of help if i can,
    Luv PB
  17. Replies
    12
    Views
    5,510

    Hi Freda,many thanks for your welcome,PB

    Hi Freda,many thanks for your welcome,PB
  18. Replies
    12
    Views
    5,510

    Hi John,Pookies Brook is a wood with the brook...

    Hi John,Pookies Brook is a wood with the brook running through it you won't find it anywhere,don't know how it came to be called that in fact i will try and find out.
    Thanks for the info regarding...
  19. Replies
    12
    Views
    5,510

    Hi christine,sorry your husband is housebound it...

    Hi christine,sorry your husband is housebound it seems were all different with symptoms,mine problem at the moment is my balance and mobility oh and i do have the odd laughing bout which can last for...
  20. Replies
    12
    Views
    5,510

    Hi Lilylou,many thanks for your reply i will keep...

    Hi Lilylou,many thanks for your reply i will keep in touch and continue to share give and receive any info available,
    take care and lots of love to you and Robert
  21. Replies
    12
    Views
    5,510

    Hi Terry,thanks for the reply,i was only offered...

    Hi Terry,thanks for the reply,i was only offered tizanidine i think the problem with my diagnosis was that they also found a meningioma at the base of my skull which is pressing on the optic nerve to...
  22. Replies
    12
    Views
    5,510

    Diagnosed with PLS

    Hello all,i would like to introduce myself to the forum, i have just turned 60 and was diagnosed with PLS in May after 3 years of tests and i had them all,it has been very frustrating and my...
Results 1 to 22 of 22