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  1. Replies
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    Hi Kayleigh, Indi is now 10 months old and she's...

    Hi Kayleigh,
    Indi is now 10 months old and she's like a breath of fresh air... She goes dog training on Monday nights and she is coming on leaps and bounds.. Last weekend we went up to...
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    Hi All, Thanks for all the lovely comments, I...

    Hi All,
    Thanks for all the lovely comments, I will stay in touch.
    talk soon xx
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    STILL WAITING I haven't been on the forum for a...

    STILL WAITING
    I haven't been on the forum for a while... this is really just an update, I had to undergo another MRI. and this has confirmed I have progessing frontotemporal lobe dementia. even...
  4. Thread: Merry Christmas

    by chebs
    Replies
    24
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    5,035

    Hi Kayleigh, My avatar is Cley Mill in Cley next...

    Hi Kayleigh,
    My avatar is Cley Mill in Cley next the Sea. It is a special place to us, as this is where Alan my husband proposed to me on the fanstage...bloody high.
    We actually live in Oulton and...
  5. Thread: Merry Christmas

    by chebs
    Replies
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    5,035

    Hi Lynne, Last year we spent a lot of time back...

    Hi Lynne,
    Last year we spent a lot of time back and forth to hospitals for research purposes.. So this year coming I want to spend more time enjoying my life:D
    All the best for 2019
    Chebsx
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    Hi Emma, I have just had another MRI at our...

    Hi Emma,
    I have just had another MRI at our local hospital, it can be slighlty claustrophobic as its a tunnel you go into. But as I'm not a lover of confined spaces, I take my favorite CD with me....
  7. Thread: Merry Christmas

    by chebs
    Replies
    24
    Views
    5,035

    Hi All on Forum, Been a while, but just wanted...

    Hi All on Forum,
    Been a while, but just wanted to wish all a Happy Christmas and all the best for 2019.
    Take care of each other;)
    Love Chebs xx
  8. Just completed the survery. Hope it all helps...

    Just completed the survery.
    Hope it all helps
    Chebs:)
  9. Thread: Need the Loo!!

    by chebs
    Replies
    2
    Views
    1,841

    Need the Loo!!

    Hi All
    A friend sent me this link, which I thought would be useful to some of our MND families.

    https://www.bladderandbowel.org/help-information/just-cant-wait-card

    Anything that can make...
  10. Thread: new here today

    by chebs
    Replies
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    4,700

    Hi Jeremy, wer're doing ok, been out and about...

    Hi Jeremy,
    wer're doing ok, been out and about in motorhome..just got back from Chester told granddaughter to Chester Zoo..Brilliant day out but very tiring had to keep stopping. Now off to Sussex...
  11. Thread: James's Intro

    by chebs
    Replies
    17
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    2,469

    Hi James, I did a bit of stalking.... But glad I...

    Hi James,
    I did a bit of stalking.... But glad I joined the gang!!
    It took about 4 years of lots of test etc before I had my diagnosis, Frontal temporal Dementia (early onset) with MND.
    Well, I...
  12. Thread: new here today

    by chebs
    Replies
    23
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    4,700

    Hi Jeremy, Yes as your mum says it's Frontal...

    Hi Jeremy,
    Yes as your mum says it's Frontal Temprol Lobe Dementia... I have started the voice banking, you do 10 sentences send them off, then if ok you have 1600 sentences to do.. Ive got to...
  13. Thread: new here today

    by chebs
    Replies
    23
    Views
    4,700

    Hi Jeremy, Well, its a roller coaster of...

    Hi Jeremy,
    Well, its a roller coaster of emotions, I am fairly new to the forum and I have had my fair share of rants, but that's ok.
    I myself believe in sprirt and surely this can't be it... but...
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    Poll: Hi Dott and friends, Back in 2012 was admitted...

    Hi Dott and friends,
    Back in 2012 was admitted to local hospital by ambulance with ? stroke.. I had weakness in right arm and slurred speech, on admitance and being transfered to CT scan table my...
  15. Thread: Pupkin55

    by chebs
    Replies
    39
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    12,163

    Hi Terry, how did it go at the dentist, all...

    Hi Terry,
    how did it go at the dentist, all sorted now??
    I think it won't be long till I have to go!!! causing me some pain, (back Molar) plus not much room for movement!!
    Oh well, I'm tired...
  16. Thread: Pupkin55

    by chebs
    Replies
    39
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    12,163

    Hi Pupkin, sorry for the delay in answering...

    Hi Pupkin,
    sorry for the delay in answering you..
    Anyone can ask for a second opinion, also, a MRI may assist them in finding reasons for your problems... Don't give up, have a break then go back...
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    Hi Andy, I recently had my renewal for my...

    Hi Andy,
    I recently had my renewal for my driving licence, I had already told them about my Dementia so I have to renew it yearly...
    I went to my doctor and even though I still haven't got the...
  18. Thread: I'm a new carer

    by chebs
    Replies
    13
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    3,697

    Hi John, I was told FTD Dementia..2-8 yrs told...

    Hi John,
    I was told FTD Dementia..2-8 yrs told to do my bucket list. Then I was told I have many symptoms of MND PLS... but need to see how it progresses!! Im lucky my doctor has got everthing in...
  19. Thread: Pupkin55

    by chebs
    Replies
    39
    Views
    12,163

    Hi Tim and Mary, Sorry to hear about Mary's...

    Hi Tim and Mary,
    Sorry to hear about Mary's fall.. I too have problems with my balance so I have to walk with a stick.. lately seem to get out of breath just walking, now have to have regular...
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    Hi Royo, I had a rant the other day!!! but it...

    Hi Royo,
    I had a rant the other day!!! but it helps to relieve some of the pressures this illness inflicks on you... I have found the forum most informative and nice to know your not alone.
    As you,...
  21. Thread: Pupkin55

    by chebs
    Replies
    39
    Views
    12,163

    Hi Tim and Mary, I think I'm suffering with my...

    Hi Tim and Mary,
    I think I'm suffering with my emotions at the moment, look in the mirror and don't know that person staring back, I seem older and fatter, husband Alan says I'm still beautiful and...
  22. Thread: Pupkin55

    by chebs
    Replies
    39
    Views
    12,163

    Hi Terry, I think I might try your idea... as I...

    Hi Terry,
    I think I might try your idea... as I do seem to suffer with short term memory...
    Sorry to hear about your teething problems, I hate dentists!! so I will be thinking of you on the 21st:(...
  23. Thread: Pupkin55

    by chebs
    Replies
    39
    Views
    12,163

    Hi Tim, so sorry to hear it's your wife that is...

    Hi Tim,
    so sorry to hear it's your wife that is suffering. As you say my husband is trying to deal with me and also his emotions. This is not easy but at least we have each other and we can support...
  24. Thread: Pupkin55

    by chebs
    Replies
    39
    Views
    12,163

    Hi Terry, Oh toothache, not nice.. hopefully...

    Hi Terry,
    Oh toothache, not nice.. hopefully your sorted now and carry on enjoying your dinners.
    Its nice to have this forum to rant and to know we can support each other. I know this is a long...
  25. Thread: Pupkin55

    by chebs
    Replies
    39
    Views
    12,163

    Hi anyone, I'm feeling so alone, husband great...

    Hi anyone,
    I'm feeling so alone, husband great and family, but went to my meeting expecting results of all the tests, instead was broken, crying and very upset...feel like a fraud...
    Having firstly...
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