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Type: Posts; User: Dilly

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  1. Replies
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    That's a really good idea Ellie, thank you xx

    That's a really good idea Ellie, thank you xx
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    I was offered a free hospital bed, but we decided...

    I was offered a free hospital bed, but we decided to buy a double so we wouldn’t be sleeping apart. Maybe I should have done more research as I didn’t realise there are different types of air...
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    Uncomfortable air mattress

    Hello everyone,

    I recently bought an adjustable bed with an alternating air mattress. I'm finding it very uncomfortable when it's switched on as it digs into my back when it moves. It really is...
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    High platelet count

    Hello all,
    It's been one year since my diagnosis, although my initial symptoms have progressed, I still feel well and am able to get out and about.
    My GP has referred me to a haematologist as my...
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    Botox for spasticity

    My physiotherapist has suggested trying Botox injections to help relieve the tightness and spasticity in my calf muscle. Has anyone had any experience of this treatment?
    Dilly x
  6. Thread: Feeling down

    by Dilly
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    Feeling down

    Hello everyone,
    This is only my second post, but I read the posts on the forum almost everyday. I was diagnosed in March and feel that I am progressing quite slowly at the moment. My confidence was...
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    First post on a forum ever

    Hi everyone,
    This is my first ever post on a forum so hope I am doing it right. I am 54 years old, married with grown up children.
    I was diagnosed with MND in March this year.
    Still reeling from...
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