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  1. Replies
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    875

    Hi Nettie, Bitting your lips and tongue is one...

    Hi Nettie,

    Bitting your lips and tongue is one of the pleasures of Mnd, especially when sneezing. I do manage to close my teeth before a sneeze sometimes which can work.

    If you getting tired...
  2. Replies
    16
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    875

    Hi Janette, I have had a PEG for about five...

    Hi Janette,

    I have had a PEG for about five years and have have found it useful for hydration when rough. Keep eating but maybe have easier to eat meals and smaller ones more often.

    Don't...
  3. Replies
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    875

    Hi Nettie and welcome to the forum, Can you...

    Hi Nettie and welcome to the forum,

    Can you tell us a little bit about your involvement with Mnd. No need if you don't want to but it's always nice to know a little bit about your situation.
    ...
  4. Thread: inbox

    by Terry
    Replies
    10
    Views
    2,048

    Hi Wailywoo, This thread might help you along....

    Hi Wailywoo,

    This thread might help you along.

    Love Terry
  5. Thread: Private messages

    by Terry
    Replies
    7
    Views
    284

    Hi Wailywoo, Do you know how to delete...

    Hi Wailywoo,

    Do you know how to delete messages?

    I normally delete messages and then send a PM to the person saying sorry and I have more room

    Love Terry
  6. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    Never mind Cc"s cats doing that, we want to be...

    Never mind Cc"s cats doing that, we want to be able too,

    Ccs balloons and cup cakes did lift our day in the hospital because of major bridge closure due to the weather it arrived a day late and...
  7. Replies
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    Thanks Vicky; If anyone who has Mnd and is not...

    Thanks Vicky;

    If anyone who has Mnd and is not a member of the forum than you can join or contact the Mnda and get them to contact me or Vicky.

    Love Terry
  8. Thread: So tired

    by Terry
    Replies
    13
    Views
    909

    I think that I will try to get to the breathing...

    I think that I will try to get to the breathing clinic and have a over night sats monitor before hand.

    Don't fancy hospital especially this time of year

    Love Terry
  9. Thread: So tired

    by Terry
    Replies
    13
    Views
    909

    Hi Chimp,, My breathing seems to be ok but...

    Hi Chimp,,

    My breathing seems to be ok but could not work out Any other reason for being so tired. Nothing was done in hospital they just kept me alive.

    Hair cut and got rid of father...
  10. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    I refer to Cc"s hubby as Benny, He is a very...

    I refer to Cc"s hubby as Benny,

    He is a very very similar age to me.

    Cc sent me a birthday cake
    1114

    I sent this back with a cut out of Benny
    1115
  11. Replies
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    Sorry to hear about your fall, Lynne, It's so...

    Sorry to hear about your fall, Lynne,

    It's so easy to have your brain say, that's easy and you do it.

    Don't forget, a weighted walker is generally much more stable and if you have trouble...
  12. Thread: So tired

    by Terry
    Replies
    13
    Views
    909

    Hi Sarah, I have had a better day today,...

    Hi Sarah,

    I have had a better day today, actually went out and stayed awake for eight hours.

    Have lower back pain now and a bit of coughing.

    Great being in hospital over all of Christmas. ...
  13. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    Top Cat, does make us oldies laugh. Love Terry

    Top Cat, does make us oldies laugh.

    Love Terry
  14. Replies
    9
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    694

    Hi there, It's a real shame that people start...

    Hi there,

    It's a real shame that people start to care when it's too late. You bite their head off, they could have made a difference to your and your grans life but I guess she didn't make it...
  15. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    Been awake since eight and now at Costa. I...

    Been awake since eight and now at Costa.

    I have been asleep for two months so could get tired later
  16. Thread: So tired

    by Terry
    Replies
    13
    Views
    909

    So tired

    I posted at the beginning of November saying that I just felt exhausted and a few days after that I felt very hot even in a cold room. I never had a temperature but was totally wiped out.

    I...
  17. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    One of your best one's, Graham, I lasted just...

    One of your best one's, Graham,

    I lasted just under two and a half minutes and got worried what pictures were coming up next.

    Love Terry
  18. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    Carer's seem to be good and nice. Believe I have...

    Carer's seem to be good and nice. Believe I have the same two six days a week. They are not English but I have quite often found that they pick up on things like my sort of sign language better and...
  19. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    I'm home, Very stressful, especially for the...

    I'm home,

    Very stressful, especially for the wife.

    Lost over three kilo, and a lot of movement. In pain.

    Many of the staff came in and kissed me, including the male cook.

    Lot's of...
  20. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    Thanks for the messages, Don't drink whisky...

    Thanks for the messages,

    Don't drink whisky but have got a few beers in.

    Should be out Monday and if will be nice to see what I can still do.

    Love Terry
  21. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    Hi there,, Think that most of my neck and...

    Hi there,,

    Think that most of my neck and upper back shoulder pain is from inactivity causing the MND to progress. Poor sitting positions don't help.

    No news on getting out of here.

    Can't...
  22. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    Hi grandad and welcome to the forum. You can...

    Hi grandad and welcome to the forum.

    You can annoy me here as well as having to put up with you on our days out.

    Now in captive in hospital.

    Bring expensepencive presents and don't stay...
  23. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    Just keep falling asleep when trying to do...

    Just keep falling asleep when trying to do anything
  24. Thread: Terry

    by Terry
    Replies
    100
    Views
    9,840

    I have to log when I connect with my wife's phone.

    I have to log when I connect with my wife's phone.
  25. Replies
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    Hi vicky, Sorry to hear about your father's...

    Hi vicky,

    Sorry to hear about your father's passing but so pleased that you have offered the chair here

    I have been fortunate enough to get one but others might not be so very lucky.

    It...
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