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Type: Posts; User: Lynne K

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  1. Thread: Good morning

    by Lynne K
    Replies
    21
    Views
    537

    I've collected my virtual hug. Thank you Deb,...

    I've collected my virtual hug. Thank you Deb, Lynne :)
  2. Thread: Good morning

    by Lynne K
    Replies
    21
    Views
    537

    Big hugs from me Dina, plus one real one that I...

    Big hugs from me Dina, plus one real one that I owe from when we met at Redbank the other week. Lynne x
  3. Thread: Good morning

    by Lynne K
    Replies
    21
    Views
    537

    Hi Dina and Dug. A very weary Lynne here but...

    Hi Dina and Dug. A very weary Lynne here but lovely to hear half full glass and smiles. Pinks passing was sad and that feeling lingered last night so I put one of the Netflix series on that I've been...
  4. Thread: Pinkelle 💕

    by Lynne K
    Replies
    12
    Views
    424

    If Pinkelle is Eleanor then I'm extremely sorry...

    If Pinkelle is Eleanor then I'm extremely sorry for her passing because of this bl***y cruel disease. Thank you for posting. I wish her peace and hope that her family are ok. Lynne
  5. Thread: Rch4

    by Lynne K
    Replies
    265
    Views
    70,661

    Hi Leo. Thanks for uploading your mums scores....

    Hi Leo. Thanks for uploading your mums scores. The chart looks like ot has slowed down jer decline considerably if the estimate without the drug is accurate. I hope that the study proves it will be...
  6. Replies
    18
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    785

    Sounds good about working from home and that you...

    Sounds good about working from home and that you can still drive. Lynne
  7. Replies
    18
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    785

    Yea, Gloslad. I was similarly slowly losing my...

    Yea, Gloslad. I was similarly slowly losing my ballance for 4 years. I too, like lots of other people on this forum, had an active life, walking hills and mountain scrambling (for those with no hill...
  8. Replies
    18
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    785

    Hi Gloslad, we all cannot say that you have MND...

    Hi Gloslad, we all cannot say that you have MND or not. But the tests you've had sound to a non expert that you don't have MND. I don't know whether or not signs are in our brains and spinal fluid...
  9. Thread: hi

    by Lynne K
    Replies
    19
    Views
    962

    Great thought for the day Doug. Bring it on....

    Great thought for the day Doug. Bring it on. Lynne :)
  10. Replies
    11
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    665

    Hi Vix, so sorry that you have had to join us...

    Hi Vix, so sorry that you have had to join us with your husbands recent diagnosis. You have already had lots of good advice so I won't overload you with more. But I will say how important it is for...
  11. Replies
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    539

    Hi Pen.' I'm also sorry that your friends family...

    Hi Pen.' I'm also sorry that your friends family are not in touch. They obviously don't know how much of yourself went into caring for your friend. It's nice to hear from you after several months. I...
  12. Thread: Cbd

    by Lynne K
    Replies
    7
    Views
    663

    Aha, Johnboy, Tramadol was the best for me You...

    Aha, Johnboy, Tramadol was the best for me
    You reminded me of the name that I couldn't remember earlier. I have a box so will check it's expiry date and if it's in date I'll take some tonight and...
  13. Thread: Cbd

    by Lynne K
    Replies
    7
    Views
    663

    Hi KD1, I have no experience of CBD but I did get...

    Hi KD1, I have no experience of CBD but I did get other drugs in the past before MND to ease my pain and help me to sleep. A low dose of amitriptilyne about 10mg (not sure if I've spelled it...
  14. Replies
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    795

    Sorry for slow response Vicky. I've been taking...

    Sorry for slow response Vicky. I've been taking Rilozone since November 2017. Lynne
  15. Replies
    12
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    1,190

    You've already got good advice MMW but just a...

    You've already got good advice MMW but just a little message to say that I agree with leaving a little polite note so it's a learning opportunity for the badly parked driver. Lynne
  16. Replies
    159
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    11,550

    Oh dear. Hope that things ease so that you can...

    Oh dear. Hope that things ease so that you can sleep better. Lynne
  17. Thread: Ibudilast

    by Lynne K
    Replies
    19
    Views
    2,233

    Ibudilast is now being put on a 2b-3 trial...

    Ibudilast is now being put on a 2b-3 trial according to ALS News. They are recruiting now for people that haven't had their MND diagnosis for more than 18 months. Any of you that are in the US please...
  18. Thread: Last message

    by Lynne K
    Replies
    2
    Views
    508

    Hi Sky. Smashing news and thanks. Lynne

    Hi Sky. Smashing news and thanks. Lynne
  19. Thread: house

    by Lynne K
    Replies
    5
    Views
    573

    Hi Ben. Does your landlord know that you have...

    Hi Ben. Does your landlord know that you have MND? Good luck speaking them about a hoist. If they aren't happy with this then contact your local housing office for an urgent adapted bungalow or flat....
  20. Replies
    5
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    583

    Hi Jo, welcome to our forums. I'm sorry that I...

    Hi Jo, welcome to our forums. I'm sorry that I don't have any knowledge of your request but I just wanted to wish you good luck for getting your husbands OT to sort out what's needed quickly. Lynne
  21. Replies
    8
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    795

    I just saw your post about Riluzone Vicky. If...

    I just saw your post about Riluzone Vicky. If your dad gets headaches in the morning then speak with one of the MND nurses or his Dr Chaouch about it because it might relate to his breathing. Weak...
  22. Replies
    8
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    795

    I just deleted a duplicate post. I don't know...

    I just deleted a duplicate post. I don't know why, but editing was the only way that I could get rid of it.
  23. Replies
    9
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    1,078

    Vicky, My neurologist Amina Chaouch was very...

    Vicky, My neurologist Amina Chaouch was very reluctant to state the type of MND I had until I pressed her. Then she said ALS. This was after a brain MRI and 3 lots of muscle and nerve conduction...
  24. Replies
    10
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    1,203

    Sounds like your dad needs carers so the burden...

    Sounds like your dad needs carers so the burden isn't all on you Vicky. I hope that your dad will take something. People on here have anti-depressants and said that they helped. Maybe talking to an...
  25. Replies
    10
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    1,203

    Hi Vicky. I'm sorry about you losing your mum to...

    Hi Vicky. I'm sorry about you losing your mum to cancer and now your dad has MND. Perhaps ring MND Connect for some suggestions about going out. I feel for you both. I'm not at your dad's stage yet...
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