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  1. Thread: The daily dribble

    by pete
    Replies
    370
    Views
    96,909

    Just to apologise for not keeping in touch with...

    Just to apologise for not keeping in touch with those who know me, I’m so sorry but I let myself down badly ,I hadn’t seen that my wife was finding it difficult to care for me as I became more and...
  2. Thread: The daily dribble

    by pete
    Replies
    370
    Views
    96,909

    Sounds like my kind of day terry ,apart from...

    Sounds like my kind of day terry ,apart from sneezing hope your keeping well matey and sorry for not keeping in touch but will try to do better now I’m settled in care home.

    Pete
  3. Replies
    4
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    1,357

    Wishing you all a Very happy Christmas

    To all who know me and those that don’t ,sending you all the best for Christmas and new year hope we get some results next year .

    Regards Pete
  4. Thread: Ellie

    by pete
    Replies
    28
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    9,632

    Just knew you wouldn’t desert us Xx

    Just knew you wouldn’t desert us

    Xx
  5. Hi Pete, from one Pete to another as I was...

    Hi Pete, from one Pete to another as I was diagnosed with Bulbar type I’ve outlived the prognosis given by my professor ,so don’t take everything as written In stone ,we are individuals and as such...
  6. Thread: Ellie

    by pete
    Replies
    28
    Views
    9,632

    I’m gutted to read that Ellie had found a post...

    I’m gutted to read that Ellie had found a post offensive and was leaving, this is a huge loss and very sad day for me to lose one of the most informed and helpful person I had the good fortune to...
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    [QUOTE=Ellie;76240]Hi Pete, Sorry your air...

    [QUOTE=Ellie;76240]Hi Pete,

    Sorry your air mattress is uncomfortable - do you know if the air in it is static or alternating? And if it does alternate, can the frequency of the alternating cycle...
  8. Replies
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    57,541

    Hi Barry , I’m really sorry the drug didn’t work...

    Hi Barry ,
    I’m really sorry the drug didn’t work in your case, it would be a first if it had matey, just hope the side effects wear off and you return to your previous state of health , i really...
  9. Thread: That conversation

    by pete
    Replies
    24
    Views
    8,578

    Just to let you know,hope the move tothe nursing...

    Just to let you know,hope the move tothe nursing home gives you comfort and peace of mind , sending our best wishes Jan xx

    Pete
  10. Thread: Catheters

    by pete
    Replies
    13
    Views
    4,678

    Hi Terry, Thank you mate ,I still look in and...

    Hi Terry,

    Thank you mate ,I still look in and read your posts, don't know about silver tipped catheter they never asked just popped one in, have to admit it helps when you go out for the day. No...
  11. Thread: Catheters

    by pete
    Replies
    13
    Views
    4,678

    How's Ellie Thanks ,no your right I had no...

    How's Ellie

    Thanks ,no your right I had no idea what sepsis was but amazed how quick it takes you down and how rubbish you feel,equally how quick you recover if you get prompt and correct medical...
  12. Thread: Catheters

    by pete
    Replies
    13
    Views
    4,678

    Hi Barry, Yes mate, a lot better than I had...

    Hi Barry,

    Yes mate, a lot better than I had been the previous three. Months I mistook a high temp which in our house the bride feels thecold so anything under 80 dregs the heating goes on , so...
  13. Thread: Catheters

    by pete
    Replies
    13
    Views
    4,678

    Hi Jan, Just read your post after several...

    Hi Jan,

    Just read your post after several hospital stays thanks to sepsis, uti ,constipation it was suggested I try one ,now I had a catheter before for two weeks so knew the limitations ,but...
  14. Thread: Ceasing to drive?

    by pete
    Replies
    8
    Views
    4,843

    Hi Doug, If your like me ,I loved driving ...

    Hi Doug,

    If your like me ,I loved driving but you tènd to know when it's time for me it was when I could no longer move my feet quick enough to do a emergency stop,painful yes extremely hard to...
  15. Replies
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    5,530

    Hi .Miranda , I honestly don't know, the site...

    Hi .Miranda ,

    I honestly don't know, the site keeps saying they are working on a update and my PC is reporting that speak it needs updating ,so when I know you will hope your keeping as well as...
  16. Replies
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    5,530

    Hi Jill, So sorry to hear you have had to join...

    Hi Jill,
    So sorry to hear you have had to join the club,it is a wealth of information by possibly the most knowlegiible bunch of kind folk who know first hand what living with mnd is all about.
    ...
  17. Replies
    2
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    1,382

    Ok will send PM X

    Ok will send PM

    X
  18. Replies
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    1,382

    Has anyone heard from Lorrett

    I'm trying to reply to Loret but her mailbox is full has anyone been in touch I'm thinking it may be bad news

    Pete
  19. Thread: Soft diet

    by pete
    Replies
    12
    Views
    5,573

    Hi Ellie, It makes great sense to me,though...

    Hi Ellie,

    It makes great sense to me,though the leaning back in the post your replying too,I would question if that's safe practice with swallowing issues, the sitting forward with chintucked back...
  20. Thread: Motorbike Mania

    by pete
    Replies
    779
    Views
    355,800

    What would we do without El Tel , .Lewis did...

    What would we do without El Tel , .Lewis did well yesterday thanks for the reminders matey x
  21. Thread: Motorbike Mania

    by pete
    Replies
    779
    Views
    355,800

    Thank you Terry

    Thank you Terry
  22. Replies
    13
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    5,696

    Yep sounds like we have had the same people with...

    Yep sounds like we have had the same people with saws ,if I had use of my hands ,I could have done the job properly, but no chance now, still reassessment day is the 8 th of next month finger almost...
  23. Replies
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    5,696

    Hi Barry, My chair also came with attendant...

    Hi Barry,

    My chair also came with attendant controls fitted on a huge great bracket fixed to the push handles,( had to be a afterthought ) but our wheelchair services sorted it with a hacksaw yes...
  24. Replies
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    5,696

    Hi Wendy, I couldn't agree more our south...

    Hi Wendy,

    I couldn't agree more our south Staffs wheelchair services are dire !, I kid you not they think two weeks is acceptable for getting the chair fixed and just changed the repairs from...
  25. Replies
    7
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    4,186

    Hi Terry, and Lookingforhelp, It's very much a...

    Hi Terry, and Lookingforhelp,

    It's very much a question of how good the service provider gets the spec right the chair comes very basic so you need to decide on many things such as seat cushion...
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