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Type: Posts; User: Olivia H

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  1. Thread: Dreams

    by Olivia H
    Replies
    7
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    462

    In my dreams, I can walk or even run, but am...

    In my dreams, I can walk or even run, but am always aware that this is something special, and I am getting better in the dream. When I wake, I always feel I can move around a bit better that...
  2. Replies
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    1,070

    Hiya I hope you are already getting PIP?

    Hiya
    I hope you are already getting PIP?
  3. Thread: Sad News.

    by Olivia H
    Replies
    15
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    2,107

    So very sorry for the loss of your very brave...

    So very sorry for the loss of your very brave Mum. Xxx
  4. Replies
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    3,344

    Hello Hettie It is very difficult, (I found it...

    Hello Hettie
    It is very difficult, (I found it hard telling my youngest teen), but he will notice your health and abilities, perhaps just be honest it is an illness, and there is no cure at the...
  5. Thread: Terry

    by Olivia H
    Replies
    101
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    12,615

    Get well soon Terry.

    Get well soon Terry.
  6. Thread: Russ60

    by Olivia H
    Replies
    12
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    3,193

    Hi Russ You will find lots of support here. Just...

    Hi Russ
    You will find lots of support here. Just to mention, I've had mnd almost 8 years, and get lots of tingling, numbness, buzzing and vibration sensations, like having a mobile phone next to...
  7. Replies
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    4,186

    Hello Sarah. Hope you, and Sue, can stay...

    Hello Sarah. Hope you, and Sue, can stay positive, that really is a hugely important thing if you can do it. My pet dogs also help in that regard. My walking and balance are terrible, but, getting...
  8. Thread: Heartbroken

    by Olivia H
    Replies
    27
    Views
    4,993

    My heartfelt sympathy xx Olivia.

    My heartfelt sympathy xx
    Olivia.
  9. Replies
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    28,412

    Hello Paniertank. You do sound like you've had a...

    Hello Paniertank.
    You do sound like you've had a tough time and some of your experiences sound very similar to mine, I had lost my mum to cancer and my dad developed dementia, and as an only child a...
  10. Thread: Ibudilast

    by Olivia H
    Replies
    24
    Views
    6,781

    Hi Andy and Dina Yes they are very good points,...

    Hi Andy and Dina
    Yes they are very good points, how can we know what impact something is, or is not having, because we are all so different. I sometimes wonder if there are lots of subtle variants...
  11. Thread: Ibudilast

    by Olivia H
    Replies
    24
    Views
    6,781

    Thanks Jerry. The nausea must be awful, but do...

    Thanks Jerry. The nausea must be awful, but do you feel the medication itself has slowed your condition or improved things for you?
    Regards
    Olivia
  12. Thread: Ibudilast

    by Olivia H
    Replies
    24
    Views
    6,781

    Thank you :)

    Thank you :)
  13. Thread: Ibudilast

    by Olivia H
    Replies
    24
    Views
    6,781

    Ibudilast

    This has only just come to my attention but others may know more about Ibudilast, a drug approved in Japan? Now at a stage 3 trial in USA I believe, and I've only discovered this by chance today!
  14. Thread: First visit

    by Olivia H
    Replies
    25
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    4,483

    Hi Polly There is a huge amount of support and...

    Hi Polly
    There is a huge amount of support and care for people on this forum. I wish you and your husband well. I completely empathise with those who feel the process just takes over their life. I...
  15. Replies
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    3,252

    Hello Moll Sorry to hear of your father's...

    Hello Moll
    Sorry to hear of your father's diagnosis and it can be overwhelming, but there is lots of advice and support here. Mnd can seem to move very rapidly, but can also then slow down. Like...
  16. Replies
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    6,408

    It would be great if there was a definitive...

    It would be great if there was a definitive diagnosis/test for such a serious condition, rather than the prolongued process that so many of us have to go through. I personally have lots of symptoms...
  17. Thread: bereavment

    by Olivia H
    Replies
    30
    Views
    13,451

    So sorry to hear this. You are in my thoughts x

    So sorry to hear this. You are in my thoughts x
  18. Replies
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    6,698

    Sorry to hear you have been feeling so poorly...

    Sorry to hear you have been feeling so poorly Pink. It is the time of coughs and colds, which is so much harder when we also have mnd. Hope you get the help you need x
  19. Replies
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    10,245

    Sorry you are feeling down Pinkelle. I don't get...

    Sorry you are feeling down Pinkelle. I don't get down now, but I do find being on your own more is frustrating and that is the time it is the hardest. When I was first diagnosed 6 years ago I felt...
  20. Thread: Supplements

    by Olivia H
    Replies
    21
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    6,019

    Forgot to add Optimised Quercetin, which I take...

    Forgot to add Optimised Quercetin, which I take daily for about the last year!
  21. Thread: Supplements

    by Olivia H
    Replies
    21
    Views
    6,019

    There are a lot of similarities to our lists....

    There are a lot of similarities to our lists. Mine is long. The first short list I take every day. About 6 months after I was diagnosed I stumbled on a mention of the Brain Wellness Book, got a copy...
  22. Thread: New member.

    by Olivia H
    Replies
    18
    Views
    3,826

    Hi Mark. I do take a lot of supplements, mainly...

    Hi Mark.
    I do take a lot of supplements, mainly over last 4-5 years and I don't seem to change or worsen and honestly don't believe I will. I think all the antioxidants help, but I think it is just...
  23. Thread: Weight gain

    by Olivia H
    Replies
    27
    Views
    7,381

    I understand John what you say about taking your...

    I understand John what you say about taking your personality. You have to find a new and defiant one. I have. It is interesting that many diagnosed with this were generally very fit before, it is...
  24. Thread: New member.

    by Olivia H
    Replies
    18
    Views
    3,826

    Generally Richard my feet. But if I tried to...

    Generally Richard my feet. But if I tried to stand or walk unaided, then the power is not there from my spine down to my feet. Terrible balance!I don't get much pain in my upper legs at all. Bit of...
  25. Thread: New member.

    by Olivia H
    Replies
    18
    Views
    3,826

    Hi Richard. My lower legs are a bit thinner,...

    Hi Richard. My lower legs are a bit thinner, though always were very 'slim' anyway, but they are not wasting. Foot doesn't work much, affects balance and strength/standing, so I always have to lean...
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