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  1. Replies
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    5,074

    Hi Terry I totally agree, you don't need all...

    Hi Terry
    I totally agree, you don't need all that when first diagnosed. It is frightening enough and nobody knows how MND is going to effect them , it's as you say ask questions as they come into...
  2. Thread: bereavment

    by raymond
    Replies
    30
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    9,774

    So very sorry to hear such sad news. Please...

    So very sorry to hear such sad news. Please accept my condolences .

    R.I.P Sue

    Love Chris x
  3. Thread: Sad news

    by raymond
    Replies
    19
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    3,415

    Hi Kernowmum So very sorry for your loss. Like...

    Hi Kernowmum

    So very sorry for your loss. Like you said he's free from pain now

    Take care and look after your self

    Love Chris x
  4. Replies
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    5,544

    Hi Dave Merry Christmas to you too . I...

    Hi Dave
    Merry Christmas to you too . I personally haven't spoken to you on the forum , but have come across you on old posts .

    I would like to wish everyone on the forum a very merry Christmas...
  5. Replies
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    9,102

    Hi Doug Thanks for that explanation . I...

    Hi Doug
    Thanks for that explanation . I understand that they have very similar characteristics but you have explained it well .

    I hope that one day someone might come up with a treatment that...
  6. Replies
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    3,532

    Hi Ellie Congratulations on your move to a...

    Hi Ellie
    Congratulations on your move to a bungalow, it sounds wonderful . You will all have plenty of room in there.

    A very merry Christmas and all the best for 2019

    Love Chris x
  7. Replies
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    9,102

    Hi Andy Thanks for your reply yes I do...

    Hi Andy
    Thanks for your reply yes I do understand the link and the possibility of a drug for Parkinson's working for MND . I don't know a lot about Parkinson's because my dad was diagnosed before we...
  8. Replies
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    9,102

    Hi I understand that there is a trial for a drug...

    Hi
    I understand that there is a trial for a drug to treat Parkinson's which could help with MND , but the two illnesses are not related . I asked my neurologist when I was first diagnosed because...
  9. Replies
    62
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    11,922

    Hi Lynne Our local authority supplied mine not...

    Hi Lynne
    Our local authority supplied mine not the MNDA , but I think it does depend on where you live . Another case of the post code lottery maybe
    Love Chris
  10. Replies
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    11,922

    Hi Lynne I got a rise and recliner from the OT...

    Hi Lynne

    I got a rise and recliner from the OT when I was first diagnosed because I had a back problem and couldn't sit on a normal height chair. We have altered it a few times as it is in...
  11. Replies
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    7,526

    So terribly sorry for the loss of your dear...

    So terribly sorry for the loss of your dear husband Peter.

    Please accept my heartfelt condolences . Try to be strong as he was. All the best
    Love Chris x
  12. All done

    All done
  13. Replies
    33
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    22,291

    Hi Terry I got mine from amazon for 12.79 ....

    Hi Terry
    I got mine from amazon for 12.79 . They are such a help to me, as the nights have become darker and I have got worse with walking

    Love Chris
  14. Thread: PEG and RIG

    by raymond
    Replies
    152
    Views
    25,059

    Welcome home Pink I am sure you will soon get...

    Welcome home Pink

    I am sure you will soon get used to things in a little while , you haven't been home in ages it will feel strange . Onwards and upwards now you are back home .

    Take care and...
  15. Thread: RIP Ezri

    by raymond
    Replies
    14
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    4,621

    Hi Pen Please accept my sincere condolences. I...

    Hi Pen
    Please accept my sincere condolences. I am so glad that the last few months have been happier for both of you , and so glad that she was peaceful at the end .

    You will now be able to sail...
  16. Replies
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    2,477

    Hi Nige Sorry you find yourself on here but a...

    Hi Nige
    Sorry you find yourself on here but a very warm welcome. It is natural to think like that, I must admit I was terrible the first few months but the more I read on the forum and social media...
  17. Replies
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    3,561

    Hello Hilary Please accept my heartfelt...

    Hello Hilary
    Please accept my heartfelt condolences , my heart really goes out to you. That was really quick for your husband , don't worry about upsetting anyone it makes us realise how "lucky" we...
  18. Replies
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    4,048

    Hi Kayleigh Welcome to the forum and sure you...

    Hi Kayleigh
    Welcome to the forum and sure you will find it helpful as well as practical it helps with moral support too . It is so true about dreams I like to go to sleep and dream that I am...
  19. Thread: PEG and RIG

    by raymond
    Replies
    152
    Views
    25,059

    Hi Pink It's good to hear that you are feeling...

    Hi Pink
    It's good to hear that you are feeling a lot better. You sound as though you have had marvellous treatment at the hospice .
    I too have noticed a deterioration in my speech lets hope it...
  20. Replies
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    3,689

    Thanks Terry and Ellie I will try the massage a...

    Thanks Terry and Ellie I will try the massage a little longer . Like you say Ellie you can't win with the medication , it does make one thing better but another worse .
    It's not when I've done...
  21. Replies
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    3,689

    Thanks Ellie I have only been trying the oil for...

    Thanks Ellie I have only been trying the oil for a few days so I will keep doing it . I have also tried Voltarol gel which works for the joint pain after . I was trying not to take the tablets as I...
  22. Replies
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    3,689

    Hi All I have been having quite violent spasms...

    Hi All
    I have been having quite violent spasms in my fingers. My first and middle finger bend and lock forward though not at the same time . It only lasts a few seconds but the pain is so intense it...
  23. Thread: PEG and RIG

    by raymond
    Replies
    152
    Views
    25,059

    Hi Pinkelle I am so sorry that you have been...

    Hi Pinkelle
    I am so sorry that you have been poorly . I have been thinking about you , and wondering how you were , I thought it strange that we hadn't heard from you !

    You do right to refuse to...
  24. Replies
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    3,549

    Hi Andy Just had a look in magazine and it is...

    Hi Andy
    Just had a look in magazine and it is indeed a separate process , and it is a tissue donation with a brain bank . I think it is what Barry meant but instead of saying tissue he said organ...
  25. Thread: Housing

    by raymond
    Replies
    58
    Views
    13,549

    Hi Lynne I know you must have been disappointed...

    Hi Lynne
    I know you must have been disappointed that it wasn't a bungalow, but if you were to refuse it you could be waiting a while for one to turn up . I am sure it will turn out to be ok . It is...
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