Search:

Type: Posts; User: panniertank

Page 1 of 4 1 2 3 4

Search: Search took 0.07 seconds.

  1. Thread: In Denial

    by panniertank
    Replies
    18
    Views
    3,507

    Hello Lynne.Yes, I am ok. My MND symptoms seem to...

    Hello Lynne.Yes, I am ok. My MND symptoms seem to be progressing slowly. I hate being stuck in my house all day ( even before coronavirus ), especially as Spring was one of my favourite times for...
  2. Thread: In Denial

    by panniertank
    Replies
    18
    Views
    3,507

    Hello again Madge, ...

    Hello again Madge,
    I understand how you feel. Like I said before , it is almost like MND is affecting you and me psychologically the same way. We both have the...
  3. Thread: In Denial

    by panniertank
    Replies
    18
    Views
    3,507

    Hello Madge. Gosh, nearly everything you wrote...

    Hello Madge. Gosh, nearly everything you wrote applies to me as well. I can't do any of the things I loved doing:- country walking , steam railways and steam museums , real ale pubs, driving. I also...
  4. Replies
    26
    Views
    7,268

    Uggh. My building company have finished their...

    Uggh. My building company have finished their work today. But the plumbing company they use didn't come today to connect the new radiators in the wetroom and the radiator that had to be moved in my...
  5. Replies
    26
    Views
    7,268

    On the drawing my doors are 925mm wide. But my OT...

    On the drawing my doors are 925mm wide. But my OT wanted them wider than that ideally , based on the turning circle of the wheelchair ( I can't remember if that turning circle was 1200mm or 1500mm....
  6. Replies
    26
    Views
    7,268

    Sorry Andy that you are going through all that...

    Sorry Andy that you are going through all that and you are now in covid19 hell. Tell me about it?? If you mean about houses etc in the past 5 weeks there have been builders converting my garage to a...
  7. Replies
    26
    Views
    7,268

    Hello like I have said many times I struggle to...

    Hello like I have said many times I struggle to contend with my diagnosis of MND and I am often in denial. It has ruined my life and it is difficult living alone with it. I hate being housebound so I...
  8. Thread: Sad News.

    by panniertank
    Replies
    15
    Views
    2,645

    Hello Mark, I am so sorry...

    Hello Mark,
    I am so sorry for the loss of your mum. She often made kind replies to my posts. I am a mummy's boy as well so I appreciate how sad your loss must be for you. Take...
  9. Thread: Dina RIP

    by panniertank
    Replies
    17
    Views
    3,283

    I am saddened and sorry to hear of the loss of...

    I am saddened and sorry to hear of the loss of Dina. She often replied to my negative offloads and offered positive responses. She appeared to be very strong in dealing with MND . I offer my...
  10. Replies
    8
    Views
    3,325

    Hello Vicky, I am very sorry for your loss,...

    Hello Vicky, I am very sorry for your loss, especially as you were so close to your parents. I am very close to my parents;- they were my best friends throughout my life ;- they taught me and...
  11. Thread: Terry

    by panniertank
    Replies
    114
    Views
    18,936

    Hello Terry. I am sorry you are unwell and...

    Hello Terry. I am sorry you are unwell and suffering back pain. Having suffered my ankylosing spondylitis for about 20 years I know how debilitating and unpleasant back pain can be ( the last thing...
  12. Replies
    3
    Views
    1,067

    Thank you Dina , very kind. Christmas hugs and...

    Thank you Dina , very kind. Christmas hugs and best wishes to you.
  13. Replies
    128
    Views
    30,367

    Hi Lynne. That sounds like a big achievement...

    Hi Lynne. That sounds like a big achievement especially achieving it in your 40's. And on top of your other massive achievement of being a mum. Well done.
  14. Replies
    128
    Views
    30,367

    Hello Lynne. I studied an engineering degree and...

    Hello Lynne. I studied an engineering degree and back in those days it was at UMIST. After working a number of years I went back to uni to do a masters degree. I don't think or feel I am...
  15. Replies
    128
    Views
    30,367

    Hi Gillette, I see your...

    Hi Gillette,
    I see your location is Greater Manchester. I went to university in Manchester ( back in the 80's ) and use to drink with my mates in a local pub which was popular...
  16. Replies
    128
    Views
    30,367

    Thanks Barry. Today I climbed out of my front...

    Thanks Barry. Today I climbed out of my front doorstep to put rubbish in my rubbish bags. Another difficult task as I have to keep one hand on the handlebars that my OT arranged to be fitted to my...
  17. Replies
    14
    Views
    4,437

    Christmas has never been my favourite time of...

    Christmas has never been my favourite time of year as an adult ( I don't enjoy the winter weather and short days and long nights etc ). But yesterday I did one of the few things I like about...
  18. Replies
    128
    Views
    30,367

    My balance seems to be worsening again. I have to...

    My balance seems to be worsening again. I have to use my Zimmer frame to walk in the house but, strangely I only use it downstairs. I don't use one upstairs ;- maybe it's psychological because the...
  19. Replies
    1
    Views
    1,473

    MND linked to cholesterol

    I guess many of you have seen this. But, on teletext news index/ health there is an article that says MND is linked to cholesterol. "The university of Exeter team says it has found evidence that MND...
  20. Replies
    31
    Views
    6,419

    Hello Lynne, I am sorry...

    Hello Lynne,
    I am sorry your walking has worsened such that you are having to use your powered wheelchair in the house. But, as ever, you sound strong and like you say "...
  21. Replies
    128
    Views
    30,367

    Thank you Debbie, ...

    Thank you Debbie,
    You are right, it is good to try to focus on what you can still do and enjoy. I am glad you like music and reading. I used to as well, especially...
  22. Replies
    128
    Views
    30,367

    Thank you Gillette and Lynne. I am so sorry you...

    Thank you Gillette and Lynne. I am so sorry you can't drive anymore when you enjoyed it so much.
  23. Replies
    128
    Views
    30,367

    Thank you all. I may have said it before but my...

    Thank you all. I may have said it before but my main way of dealing with anxiety has been trying to be active. But my ability to be active is being ruined by this condition. Just being stuck in the...
  24. Replies
    128
    Views
    30,367

    Thank you Gillette and Sheila.

    Thank you Gillette and Sheila.
  25. Replies
    128
    Views
    30,367

    Oh no. I've had 5 nights since my medication...

    Oh no. I've had 5 nights since my medication changes ,without restless leg syndrome and panic attacks whilst in bed ( but still bad insomnia ). But just now I've had a panic attack again. It is so...
Results 1 to 25 of 90
Page 1 of 4 1 2 3 4