Search:

Type: Posts; User: Tim-griffiths

Page 1 of 2 1 2

Search: Search took 0.04 seconds.

  1. Replies
    19
    Views
    6,741

    Hi Kayleigh. Another sleepless night lol. I...

    Hi Kayleigh.
    Another sleepless night lol.
    I know exactly what you mean about feeling isolated, Mary was diagnosed with bulbar palsy onset ALS, unable to speak ( for about the past 10 months ),...
  2. Replies
    19
    Views
    6,741

    Hi Kayleigh. Another sleepless night lol. I...

    Hi Kayleigh.
    Another sleepless night lol.
    I know exactly what you mean about feeling isolated, Mary was diagnosed with bulbar palsy onset ALS, unable to speak ( for about the past 10 months ),...
  3. Replies
    19
    Views
    6,741

    Hi Chrissie. I'm very grateful for any input and...

    Hi Chrissie.
    I'm very grateful for any input and that's a valid point. I'm just trying to work out the best option and a lot of the time I feel like I'm swimming in very muddy waters. How do women,...
  4. Replies
    19
    Views
    6,741

    Hi Kayleigh. Mary is doing fine, and always...

    Hi Kayleigh.
    Mary is doing fine, and always seems to be smiling, except when she gets tired and then it's lots of tears and tantrums even though she is on citalipram for her emotional liability. ...
  5. Replies
    19
    Views
    6,741

    Thank you Lynn and Kayleigh. Thank you for your...

    Thank you Lynn and Kayleigh.
    Thank you for your kind words, not sure I'm wonderfully kind, I'm just doing what any husband or wife would be doing in similar situations, and I'm sure your husband...
  6. Replies
    19
    Views
    6,741

    Dilemma and unsure of the way to go.

    Hi all.
    I have been caring for my wife Mary since last February , and I get some universal credit as I'm on half pay which comes to and end on the 23 of February. I have been offered I'll health...
  7. Replies
    15
    Views
    5,566

    Our deepest sympathy and condolences for your...

    Our deepest sympathy and condolences for your loss Namay, our thoughts are with you and your family at this time. Tim and Mary
  8. Replies
    57
    Views
    12,391

    Great result for England and certainly the score...

    Great result for England and certainly the score line was a lot bigger than I had envisaged and to get the bonus points too, brilliant. Looking forward to the France now and if we play like we did...
  9. Thread: Riluzole

    by Tim-griffiths
    Replies
    25
    Views
    6,960

    Thanks Terry, as the wife can't swallow I guess...

    Thanks Terry, as the wife can't swallow I guess they had no choice other than to go for the more expensive option,.
    Tim and Mary
  10. Thread: Riluzole

    by Tim-griffiths
    Replies
    25
    Views
    6,960

    Hi Sue, the wife is unable to swallow so has the ...

    Hi Sue, the wife is unable to swallow so has the oral solution, has teglutik on the box, not sure if you can get this in any other form though. Hope this helps on your search for an alternative ...
  11. Replies
    45
    Views
    19,897

    Hi boiler. I'm a carer to my wife and a lot of...

    Hi boiler.
    I'm a carer to my wife and a lot of what she comes out with puts me in a similar situation as yourself, I look at it this way, that it's the frustration and trying to push you away in the...
  12. Replies
    17
    Views
    4,424

    I believe it's the choice of the patient, my...

    I believe it's the choice of the patient, my wife agreed for her doctor to put the DNR into place and this was done about 5 months after diagnosis when we were requested to fill in a will of life ?...
  13. Replies
    50
    Views
    15,242

    Hi Tecwyn. Welcome to the forum, here you will...

    Hi Tecwyn.

    Welcome to the forum, here you will find help and support and hopefully answers to your questions. MND diagnosis is difficult to get your head around for everyone involved, the...
  14. Hi Charles, when my wife got pip, she also got...

    Hi Charles,
    when my wife got pip, she also got ESA, after a lot of questions on the phone with the DWP, as has been said, it depends on contributions and if under retirement age If I remember...
  15. Hi njm, ESA is employment and support allowance,...

    Hi njm,
    ESA is employment and support allowance, which I forgot to add on my previous post, and as Lynne stated no being called in for interviews and assessments, and no having to forward doctors...
  16. Hi team. My wife was diagnosed last October, we...

    Hi team.
    My wife was diagnosed last October, we were told about the DS1500 form by the MNDA advice line, inform the doctors, he signed it and we got pip at the enhanced rate within two weeks of the...
  17. Thread: Housing

    by Tim-griffiths
    Replies
    58
    Views
    20,910

    Hi Lynn, hope you are successful in your bid,...

    Hi Lynn, hope you are successful in your bid, please let me know because my wife is also struggling in the same way as yourself, so it won't be long before we are in a similar situation. I'm hoping...
  18. Thread: Housing

    by Tim-griffiths
    Replies
    58
    Views
    20,910

    Hi Lynn, hope you are successful in your bid,...

    Hi Lynn, hope you are successful in your bid, please let me know because my wife is also struggling in the same way as yourself, so it won't be long before we are in a similar situation. I'm hoping...
  19. Thread: Pupkin55

    by Tim-griffiths
    Replies
    39
    Views
    15,439

    Hi Chebs and Alan. It's best to have the peg...

    Hi Chebs and Alan.
    It's best to have the peg fitted while the body can still take the operation, I have to clean it, twist it and flush it every day even though she not being fed through it as yet,...
  20. Thread: Pupkin55

    by Tim-griffiths
    Replies
    39
    Views
    15,439

    Hi Chebs, Having each other, especially now is...

    Hi Chebs,
    Having each other, especially now is so important, are you suffering from emotional liability too ?, Only ask because the wife suffered badly, crying at the least little thing and was...
  21. Thread: Pupkin55

    by Tim-griffiths
    Replies
    39
    Views
    15,439

    Hi Chebs, You have your rants, believe me I've...

    Hi Chebs,
    You have your rants, believe me I've had a few since the wife was diagnosed with mind In october of last year , as I'm sure everybody on here at one time or another has, to be told you...
  22. Thread: Pupkin55

    by Tim-griffiths
    Replies
    39
    Views
    15,439

    Hi pumpkin I hope and pray that you have this...

    Hi pumpkin
    I hope and pray that you have this horrible disease and you need to go through all the test, get the results first then you will know what you are dealing with and can act accordingly, I...
  23. Replies
    369
    Views
    110,076

    My wife seems to be coping very well, her...

    My wife seems to be coping very well, her emotional liability is now under control thanks to the citolpalm drops so she isn't crying these days, well not normally, but when we visit the daughter and...
  24. Replies
    20
    Views
    7,559

    Hi murrjo and Steve The CNS did suggest someone...

    Hi murrjo and Steve
    The CNS did suggest someone coming information a while whilst I'm working but she refuses. Spoke to my boss today and he said I could just disappear if I get a phone call and...
  25. Replies
    20
    Views
    7,559

    Hi streetwise, I feel burnt out already , both...

    Hi streetwise,
    I feel burnt out already , both physically but even more so mentally, im constantly worrying about her, especially when im at work,I'm a postman and most of the people on my delivery...
Results 1 to 25 of 34
Page 1 of 2 1 2