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  1. Replies
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    Hi Sue. Sorry to hear that Steve has been in...

    Hi Sue. Sorry to hear that Steve has been in hospital. We hope he will be better soon. Our best wishes to you both. Philip and Carol
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    We have used World First and found them very...

    We have used World First and found them very competitive.
  3. Thread: Happy new year

    by philipb
    Replies
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    5,513

    Such a nice poem Kayleigh. It describes the forum...

    Such a nice poem Kayleigh. It describes the forum community so well. Our very best wishes to everyone. Philip and Carol
  4. Thread: Sad news

    by philipb
    Replies
    19
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    3,445

    Our thoughts are with you at this very sad time.

    Our thoughts are with you at this very sad time.
  5. Hi Royo I have been using the Head Up Collar...

    Hi Royo
    I have been using the Head Up Collar collar (previously called the Sheffield snood). for three years and I wear it most of the day. I would really struggle without it and I find it much...
  6. Thread: RIP Dude

    by philipb
    Replies
    22
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    6,484

    Thanks for letting us know about Dude. I...

    Thanks for letting us know about Dude. I remember when I first joined the forum that Dude was such a regular contributor, always positive and with good humour in spite of the problems he faced. He...
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    Hi Luke. I have used a company called...

    Hi Luke. I have used a company called Insurancewith on a number of occasions since my diagnosis and found them very good.
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    2,154

    Hi Botogfa. I use a company called Insurancewith...

    Hi Botogfa. I use a company called Insurancewith and have found them very good. I have ALS and a couple of other conditions. Many of the usual insurance companies will not offer any cover for me but...
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    Rollz rollator/wheelchair

    We have been recommended a Rollz as a dual purpose rollator and wheelchair and wondered if anyone has one and could comment on how useful it is. I can see that they cost 500 or thereabouts so quite...
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    Hi Andy. I started in a similar way to you. My...

    Hi Andy. I started in a similar way to you. My "pinch grip" became weak and I visited the GP. She was unable to identify the cause. After some time my arms started to become weak and I lost body...
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    Hi Barry. Carol and I are registered. Hope to see...

    Hi Barry. Carol and I are registered. Hope to see you there. Philip
  12. Thread: Tom

    by philipb
    Replies
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    4,140

    Dear Lorret. Our condolences on Toms' passing....

    Dear Lorret. Our condolences on Toms' passing. Love from Philip and Carol
  13. Thread: GrannieAnnie

    by philipb
    Replies
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    8,476

    Pete. Please add me to your card of condolence....

    Pete. Please add me to your card of condolence. Thanks, Philip
  14. Hi Steve. There is a Derbyshire group and a...

    Hi Steve. There is a Derbyshire group and a South Yorkshire group. You will find both online. We go to the meetings in Sheffield (next meeting tomorrow) but they will both be more than pleased to...
  15. Hello Steve. Firstly I must say how sorry I am to...

    Hello Steve. Firstly I must say how sorry I am to read about your Mum. When I was reading your story of the way you were handled at the time of diagnosis it took me back two years to when I was...
  16. Thread: Gordon Aikman

    by philipb
    Replies
    6
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    2,470

    We were just reading about Gordon. He was clearly...

    We were just reading about Gordon. He was clearly an amazing person and we send our condolences to his friends and family. We would also like to thank him for everything he did to raise money and...
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    Hi Ashley. You and Lisa have certainly had a...

    Hi Ashley. You and Lisa have certainly had a difficult time over recent years. To read about Amelia is so sad. I was diagnosed coming up two years ago and have found the forum a great source of...
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    We are planning a one week cruise in March to...

    We are planning a one week cruise in March to Spain and France. I have ALS diagnosed March 2015,need help dressing but otherwise mobile, no breathing or swallowing issues. Staysure quoted 348 for...
  19. Thread: littlemac

    by philipb
    Replies
    18
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    5,038

    Hi Littlemac.. Sorrry to hear that you have been...

    Hi Littlemac.. Sorrry to hear that you have been diagnosed. We usually go to the meetings in Sheffield (not there next Tuesday due to moving house) and can assure you that the people there are all...
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    remembering Steve Burns

    One of our neighbours just brought a mailing from the MNDA which features Steve, who was an active member of the forum until he passed away last July. The story is written by his wife Sarah as a...
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    I have been using the Sheffield snood for about a...

    I have been using the Sheffield snood for about a year and I am convinced that it is the best solution available for neck weakness whilst allowing movement for eating, drinking etc. I am not sure of...
  22. Thread: How is Graham

    by philipb
    Replies
    9
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    2,880

    I agree with others. Didn't always agree with...

    I agree with others. Didn't always agree with what was said, but they are still part of the mnd community. Hope they are doing ok. Philip
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    Hi Dilly. Welcome to the forum. Sorry to hear...

    Hi Dilly. Welcome to the forum. Sorry to hear about your diagnosis, but you will find many friends on here. Philip
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    Hi Terry. You could try this link. Hope it helps....

    Hi Terry. You could try this link. Hope it helps. I am on version 10, but it looks pretty much the same. Philip ...
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    Hi Tolly. I use the Windows speech recognition...

    Hi Tolly. I use the Windows speech recognition software on my laptop and find it easy to use. It has a built in tutorial and the accuracy increases as it gets to know you. I have a headset...
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