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    Hi readers. It wet, it’s Monday and you all need...

    Hi readers. It wet, it’s Monday and you all need a bit of cheering up. So why bother reading my #als #mnd blog?! However, it is my regular jibberish so I hope it helps with your coffee and or...
  2. Thread: NurOwn

    by Onein400
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    A very quick summary. Nurown is in a phase 3...

    A very quick summary.

    Nurown is in a phase 3 in the USA. It will not end until mid to late next year.

    No access is available outside of trial.

    Right to try was responded to by Brainstorm by...
  3. This is early days but this along with the biogen...

    This is early days but this along with the biogen SOD1 Trial are in my mind the key trials ongoing in the world today.

    Rock on!
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    Hi readers! I am back, onein300 with my living...

    Hi readers! I am back, onein300 with my living with #als #mnd usual fare post. A second will follow tomorrow on research for the aficionados of science and wonder. But for now, it’s just my usual...
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    Andy, The physical exercise evidence is totally...

    Andy,
    The physical exercise evidence is totally flimsy to say the least.

    Fit people definitely notice the disease earlier, as they know their bodies. Also fit people tender to not get killed by...
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    It’s my living with #mnd #als post. This week...

    It’s my living with #mnd #als post. This week pollution, watering cans, adventure, cheese and more!
    https://wp.me/p5hqWZ-2Xu
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    Andy, Sorry I misled you. I mean in your...

    Andy,

    Sorry I misled you.

    I mean in your role as a future Trustee, if elected. Nothing to do with placebo trials. Placebos are vital, end of story.

    Will you solemnly agree to be challenging...
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    Andy, I am, sadly, cynical about the biome....

    Andy,

    I am, sadly, cynical about the biome. It’s a fashion thing, leaky gut, without much solid science behind it. It’s really early days as well.
    I can see the early work just finding a mild...
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    Andy, Ok, but please tell me, will you...

    Andy,

    Ok, but please tell me, will you challenge the status quo? You need to say yes, else my vote goes elsewhere! Actually I have 5 votes!! So you have a good chance anyway!!!
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    Reduction of controls is fine as long as the...

    Reduction of controls is fine as long as the power analysis (ie significance) is strong enough.

    You need controls, despite the immediate feeling of its not fair.

    But the reality is not...
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    It’s time for my living with #mnd #als post....

    It’s time for my living with #mnd #als post. Today one of my serious research commentary posts with a “hum dinger” of a controversial title! Those affected by the disease I hope it’s a useful and...
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    It’s time for my living with #als #mnd post! With...

    It’s time for my living with #als #mnd post! With all the stress from the U.K. political scene, you need some sense to read! This week a few days away brings chaos!
    https://wp.me/p5hqWZ-2To
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    Hi everyone. It’s my living with #mnd #als blog...

    Hi everyone. It’s my living with #mnd #als blog post! Sorry about the absence.

    This week rules!! The regulation kind!

    https://wp.me/p5hqWZ-2OO
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    Morning readers! It’s my living with #mnd #als...

    Morning readers! It’s my living with #mnd #als post. This week relaxing, with a bit of history and today!
    https://wp.me/p5hqWZ-2MB
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    Morning readers. It’s my first opinion post of...

    Morning readers. It’s my first opinion post of 2019 on #mnd #als research. This is my review, kind of, of the recent MND Symposium. I take a different approach which hope you both enjoy and...
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    Hi readers. I am long overdue for a living with...

    Hi readers. I am long overdue for a living with #mnd #als post. Apologies. Here is a new one. This week, clubs...
    https://wp.me/s5hqWZ-clubs
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    Hi all. It’s my #mnd #als post! Finally after a...

    Hi all. It’s my #mnd #als post! Finally after a few weeks of absence. My usual fare. I hope to get back to a Friday lunchtime post.
    https://wp.me/p5hqWZ-2BZ

    My next post is a serious one, ie a...
  18. Thread: CuATSM ?

    by Onein400
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    Doug, Good stuff. I took part in one 3 years...

    Doug,

    Good stuff. I took part in one 3 years ago. It was fun. Make sure you get a copy of the scan of your brain. I asked them and they were happy to give it.

    I show it to people who think I am...
  19. Thread: CuATSM ?

    by Onein400
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    Just take every day as it comes. Edarvrone to me...

    Just take every day as it comes. Edarvrone to me is horrific. You have to be linked up to a drip every day for two weeks!! And then no real proven benefit! So a treatment that makes you less mobile...
  20. Thread: CuATSM ?

    by Onein400
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    I advise all on this forum to read the detailed...

    I advise all on this forum to read the detailed MNDA blog. It is very precise. Thank you MNDA for posting.
  21. Thread: CuATSM ?

    by Onein400
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    I would have to disagree on results. There has...

    I would have to disagree on results. There has been significant progress and the mnda have been instrumental in that progress. Remember MND is an extremely complex disease. But also, we are now at a...
  22. Thread: CuATSM ?

    by Onein400
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    Kayleigh, morning. We quite rightly get...

    Kayleigh, morning.

    We quite rightly get emotional, afterall we are in a rather bad place.

    However, you ask a good question in here, which I think the answers to will help us all.

    You ask...
  23. Thread: CuATSM ?

    by Onein400
    Replies
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    Whenever we get a phase 1 reporting there is...

    Whenever we get a phase 1 reporting there is always a call to make drug available now.

    But the harsh reality is it is not proven yet.

    We have to wait for phase 2.

    It can’t be just made...
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    Evening all! My first living with #mnd #als post...

    Evening all! My first living with #mnd #als post of 2019. I thought I’d save it until tonight as in the U.K. you only have Les Miserables to watch on TV tonight and it’s pretty depressing. So I offer...
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    Morning all! It’s my onein400 living with #mnd...

    Morning all! It’s my onein400 living with #mnd #als Christmas post! It has been roasting for 5 days and it’s now ready. This year, it’s a day in the life of Lord Bragg many years ago! It’s called a...
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