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  1. Replies
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    961

    Hi Neil There is nothing that you have said...

    Hi Neil

    There is nothing that you have said which would suggest that these are symptoms of MND.

    Fasiculations are not an initial symptom of MND unless accompanied by clinical weakness. This...
  2. Replies
    7
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    961

    Hi Neil I am sorry that you have symptoms that...

    Hi Neil

    I am sorry that you have symptoms that you are concerned about. Did the neurologist give any indication of what they thought might be causing your symptoms?

    You mention a feeling of...
  3. Hi Sparkles I know it's really hard but you...

    Hi Sparkles

    I know it's really hard but you need to wait for the tests. The symptoms you describe, whilst they could be symptoms of MND, they also could be other things. It would be unusual to...
  4. Hi Sparkles I'm sorry to hear that you are...

    Hi Sparkles

    I'm sorry to hear that you are concerned that you might have motor neurone disease (MND) and are undergoing tests. May I ask what the neurologist has said with regards to your...
  5. Thread: Ropinirole

    by MNDConnect
    Replies
    2
    Views
    571

    Hi Timm Please see below the response from our...

    Hi Timm

    Please see below the response from our Research Team

    Best Wishes

    Rachel


    ROPI is a ‘non-ergot dopamine receptor agonist’ usually used to treat Parkinson’s disease and Restless...
  6. Thread: Ropinirole

    by MNDConnect
    Replies
    2
    Views
    571

    Hi Timm I have contacted our Research Team for...

    Hi Timm

    I have contacted our Research Team for some information on Ropinirole and the paper that you have linked. I will post their response as soon as I hear back from them

    Best Wishes
    ...
  7. Replies
    24
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    2,908

    Hi Sarah It's common to experience diarrhea...

    Hi Sarah

    It's common to experience diarrhea with PEG feeding. The digestive system wasn't really designed to have liquid pumped directly in to the stomach and so this can often cause irritation. ...
  8. Replies
    13
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    2,473

    Hi Nigel I am sorry that this is concerning...

    Hi Nigel

    I am sorry that this is concerning you. The symptoms that you describe do not sound typical of motor neurone disease (MND). They could be caused by many other things. I think whenever...
  9. Replies
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    847

    Hi Chad5 I am sorry to hear that you have...

    Hi Chad5

    I am sorry to hear that you have symptoms which are concerning you. How did you get on at your neurology appointment?

    The symptoms that you describe are not typical symptoms of motor...
  10. Replies
    4
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    1,230

    Dear Ali, I can understand your concern, some...

    Dear Ali,

    I can understand your concern, some of the symptoms you describe do mimic those of Motor Neurone Disease (MND), however these symptoms are usually accompanied by weakness or atrophy,...
  11. Replies
    7
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    1,614

    Hi Timm, Please see the below response from...

    Hi Timm,

    Please see the below response from our Research team:

    Glutamate is the major excitatory neurotransmitter in humans. There have been studies to suggest that nicotine increases...
  12. Replies
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    1,614

    I am very sorry, unfortunately we haven’t had a...

    I am very sorry, unfortunately we haven’t had a response from our Research team. I am chasing this up with them.

    The Research team is a very small team and due to the high number of enquiries they...
  13. Replies
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    1,449

    Hi Shaun The support available does tend to...

    Hi Shaun

    The support available does tend to differ depending on where someone lives. Not all areas have specialist nurses.

    We have MND Care Centres which are centres of excellence specialising...
  14. Replies
    13
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    2,473

    Hi Nigel I am very sorry to hear that your mum...

    Hi Nigel

    I am very sorry to hear that your mum had ALS. It is very common for someone to worry that they may have symptoms of motor neurone disease (MND) when they have had a loved one with MND....
  15. Replies
    5
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    2,515

    Dear Aimee, Thank you for the update on your...

    Dear Aimee,

    Thank you for the update on your mum.

    Her symptoms are definitely confusing, after 9 months of slurred speech if her condition was due to MND you would expect significant...
  16. Replies
    7
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    1,614

    Hi Timm, Thank you for your forum post. We...

    Hi Timm,

    Thank you for your forum post. We have passed on your query to our Research team, once we get a response from them we will let you know as soon as possible.

    I do hope this is okay....
  17. Replies
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    1,294

    Hi Timm, Thank you for your forum post. Hair...

    Hi Timm,
    Thank you for your forum post.
    Hair loss is not something that we would normally associate with MND. But it could possibly be as a result of friction from clothing, or even bedding. ...
  18. Thread: Pain/Agony

    by MNDConnect
    Replies
    62
    Views
    12,066

    Hi Hayls I am sorry to hear that you were...

    Hi Hayls

    I am sorry to hear that you were admitted to the Macmillan Unit. It's good to hear that things have improved. Fingers crossed for both you and Terry getting home soon.

    Best Wishes
    ...
  19. Replies
    12
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    2,779

    Hi Juliette Thank you for letting us know. I...

    Hi Juliette

    Thank you for letting us know. I am pleased to hear that the Consultant has decided to prescribe another antibiotic.

    If you have any further concerns then please don't hesitate to...
  20. Replies
    12
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    2,779

    Hi Juliette Is it possible that you could give...

    Hi Juliette

    Is it possible that you could give us a call to discuss this? Withdrawal of treatment is a complex situation and it would be easier to discuss it over the phone if possible. The...
  21. Thread: Pain/Agony

    by MNDConnect
    Replies
    62
    Views
    12,066

    Hi Hayls I'm sorry for the delay in responding...

    Hi Hayls

    I'm sorry for the delay in responding to your post. It looks as though Ellie covered everything (thanks Ellie ;)).

    There is anecdotal evidence to show that stress might impact on the...
  22. Replies
    5
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    1,707

    Dear Helen82, It is very easy and perfectly...

    Dear Helen82,
    It is very easy and perfectly understandable for you to think any pain or twitching you feel could be related to MND especially when you are with your mum on a regular basis and are...
  23. Replies
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    4,644

    Sorry, I'm bombarding you with questions. I'm...

    Sorry, I'm bombarding you with questions. I'm happy to give you a call to discuss this if you'd like to. Please just private message me your telephone number. Or please feel free to give us a call...
  24. Replies
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    4,644

    Hi Lesley Is the dietary drink shot a...

    Hi Lesley

    Is the dietary drink shot a supplementary drink that she drinks slowly or is it a quick shot of something? It sounds as though this may have been the trigger. Has she had a recent...
  25. Replies
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    4,644

    Hi Lesley This must be very frightening for...

    Hi Lesley

    This must be very frightening for both you and your mam. Does anything in particular seem to trigger the attacks?

    Does she become breathless because of the attacks or is she...
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