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  1. Thread: Walkers

    by miranda
    Replies
    7
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    177

    I keep the brakes “half on” when I use my walker....

    I keep the brakes “half on” when I use my walker. It’s too uncontrollable otherwise.
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    605

    If you come further south to Northampton, the...

    If you come further south to Northampton, the East Midlands airport is about an hour up the M1. We are under the John Radcliffe MND care centre in Oxford (Prof Talbot and Prof Turner). Also MNDA...
  3. Thread: Pain/Agony

    by miranda
    Replies
    48
    Views
    2,726

    Would it help if you wrote or typed a list of...

    Would it help if you wrote or typed a list of phrases your gran could point to? For example I’m cold. I need a drink. Please move my foot etc etc
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    1,110

    How wonderful that you have such a big milestone...

    How wonderful that you have such a big milestone on the horizon. When my son got married I knew my EL would,probably be OTT but I worried about what to do with all those soggy tissues. My solution...
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    6
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    1,206

    I was diagnosed with PBP in 2007 but as can be...

    I was diagnosed with PBP in 2007 but as can be seen from the responses already, there is absolutely no way anyone can predict how this disease will,progress. It's so sad to read when someone has...
  6. Thread: Good news

    by miranda
    Replies
    111
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    7,121

    There's no easy answers to these trials and...

    There's no easy answers to these trials and tribulations that go with life with MND. It all seems so difficult to go from being a strong, (bloody minded sometimes ) independent person to someone who...
  7. Thread: Micks funeral

    by miranda
    Replies
    14
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    1,706

    How lovely to have that recognition and thank you...

    How lovely to have that recognition and thank you for sharing it with us. Hope you and the family are well supported in the weeks and months ahead.
  8. Thread: Hello folks

    by miranda
    Replies
    13
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    1,583

    Hi Iain and welcome to Northamptonshire. The...

    Hi Iain and welcome to Northamptonshire. The local branch of MNDA méet for lunch on the first Wednesday of each month. This is held from 11.45-2.00 in the garden centre next to waitrose in Wootton....
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    1,793

    That's great news. Congratulations!

    That's great news. Congratulations!
  10. Replies
    29
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    4,027

    I don't do the "laughing" emotional lability as...

    I don't do the "laughing" emotional lability as much as the "crying". Even some TV adverts set me off, as do people winning on quiz shows!! How to explain that? If I see or hear something even...
  11. Thread: Heartbroken

    by miranda
    Replies
    27
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    3,467

    So shocked to read about your loss of Mick. It's...

    So shocked to read about your loss of Mick. It's difficult to know what to say to adequately comfort you.
  12. Replies
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    1,382

    Good morning Doug. If you are in a wheelchair,...

    Good morning Doug. If you are in a wheelchair, don't forget you might need a ramp to get on and off the train. You might need to book that in advance.
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    1,635

    Not sure if this might help...

    Not sure if this might help https://www.accessable.co.uk/ or this https://www.euansguide.com
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    4,711

    This is similar to the one I had. It fits under...

    This is similar to the one I had. It fits under the mattress

    https://www.completecareshop.co.uk/beds-and-bedding/bed-grab-rails/economy-bed-grab-rail

    Hope you get something sorted, a good...
  15. Replies
    28
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    4,711

    This one is a little easier to turn on, by...

    This one is a little easier to turn on, by grabbing the headboard spaced out wooden pieces and pushing with my feet and body as best I can. But it's getting more difficult.

    Wendylett sheets are...
  16. Thread: RIP Fru's Ed

    by miranda
    Replies
    14
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    3,021

    So sorry to see this. Thinking of you and your...

    So sorry to see this. Thinking of you and your family.
  17. Replies
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    6,074

    Oh you are awful but we like it !!! (I believe...

    Oh you are awful but we like it !!! (I believe this was a. Catchphrase years ago but don't know who said it)
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    2,651

    I'm not sure if I've got Deb and Debbie mixed up...

    I'm not sure if I've got Deb and Debbie mixed up but just FYI it's important to test drive a WAV sitting in the powerchair, particularly if you are tall. Sorry if I've misunderstood and if this is...
  19. Replies
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    1,127

    2019 London marathon

    Thank you to those 157 people running to raise awareness and funds for the MND association. They are hoping to raise £350,000.
  20. Replies
    12
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    2,151

    Jude - even though your mum no longer goes to the...

    Jude - even though your mum no longer goes to the oxford clinic, you can still liaise with them by phone or email.
    Following Ellie's suggestion and my previous comment, I'm sure Rachael Marsden, the...
  21. Replies
    4
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    916

    I use a heated wheatbag. It's heated in a...

    I use a heated wheatbag.
    It's heated in a microwave and needs caution as they can get very hot. I've also had acupuncture which has been very effective.
  22. Replies
    6
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    809

    Have you taken on a new job Terry? Xx

    Have you taken on a new job Terry? Xx
  23. Is your mum under the care of the Oxford MND...

    Is your mum under the care of the Oxford MND centre at John Radcliffe Hospital? Rachael Marsden the specialist nurse clinic co-ordinator might be able to advise you.
  24. Thread: Fed up

    by miranda
    Replies
    74
    Views
    9,607

    Wonderful that modern technology worked for you...

    Wonderful that modern technology worked for you and also that you have the videos.
  25. Replies
    779
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    344,998

    Thanks Terry X

    Thanks Terry X
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