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    Its my family rather than the carers, I'd love to...

    Its my family rather than the carers, I'd love to have the carers in more so I can stop feeling apologetic about asking for basic needs, food,drink,hot cold, healthy food i ts been awful to lose all...
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    Get well soon sheil a xx

    Get well soon sheil a xx
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    I don't get looked after, properly just...

    I don't get looked after, properly just resentment and anger, its been horrible.
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    Im feeling loads better, went to brownsea island...

    Im feeling loads better, went to brownsea island today,saw a red squirrel!
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    Thankyou lovely x we're busy putting labels in...

    Thankyou lovely x we're busy putting labels in uniform (well, im giving instructions 😂)and arranging the little big ones to walk together. Fingers crossed for tomorrow!
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    You can look up key turners, they work well. I...

    You can look up key turners, they work well. I found clothes/pants etc that were a bit big for me gave me a bit longer before carers,as did thumb splints, helps floppy thumbs!
    I found playing zelda...
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    Very much appreciated, thankyou ellie and for...

    Very much appreciated, thankyou ellie and for your tips about talking to the carers
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    [QUOTE=Ellie;92185]Crikey Lisa, wasn't the carer...

    [QUOTE=Ellie;92185]Crikey Lisa, wasn't the carer even changing her gloves?? Gross!! (I wanted to say more than "crikey" but swearing isn't allowed :p) I've visions of her coughing into a gloved...
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    Thankyou Debbie, that's a lovely thing to say xx...

    Thankyou Debbie, that's a lovely thing to say xx I had a good result from yesterday's emails, handwashing, glovesl changes and masks this morning! I guess they'd potentially be liable if they...
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    I'm I'm lymington way,other half lives in...

    I'm I'm lymington way,other half lives in southbourne. Do you go to soton MND centre or is there a dorset alternative? Anyway, feel free to pm me:)
    Everyone does say the peg/rig helps ease worry,...
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    Thankyou x youre from my part of the world i...

    Thankyou x youre from my part of the world i think, Bournemouth way?
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    That's super useful Kayleigh, thankyou x

    That's super useful Kayleigh, thankyou x
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    The antibiotics are an insurance policy against...

    The antibiotics are an insurance policy against it being bacterial i would assume Ellie , for viral it's fluids and rest isnt it.
    The carer has copd, and while I expect its a coincidence i...
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    Went through 111 and the out of hours service,...

    Went through 111 and the out of hours service, was given antibiotics. It's a chest infection. Feels like the viral sort i used to get. Concerned by the carers' lack of hand washing and the new...
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    I'm interested Terry, I seem to be getting worse...

    I'm interested Terry, I seem to be getting worse and because I've not been in my own home the powerchair application won't kick off yet
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    Thankyou ellie x it feels like upper respiratory,...

    Thankyou ellie x it feels like upper respiratory, that was very usual for me before mnd but ive been clear
    Since leaving teaching. I'll get checked out tomorrow.
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    Think im getting a cold

    Do I need to see a doctor to check if its aspiration related?
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    Thankyou x the consultation was pretty horrible...

    Thankyou x the consultation was pretty horrible actually, a summary of my current and near future frailties including respiratory-although I knew Id been cleared , because I'd had to redo my night...
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    Haha, going to the loo has brought me and my ex...

    Haha, going to the loo has brought me and my ex closer i think..it's the massive pants wot dunnit 😂
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    That's good to remember , the sedation.. good...

    That's good to remember , the sedation.. good luck sheila xx I'm worried about the cut and tube i think, ive still got to get to grips with that. But then i thought people helping me to the loo...
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    I had some as a pre peg screening last week . In...

    I had some as a pre peg screening last week . In one i breathed in deeply and out completely into a tube in my mouth like an inhaler. They took blood from an artery (wrist or earlobe) cos it shows...
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    Scoop dishes are awesome for one handed eating,...

    Scoop dishes are awesome for one
    handed eating, and i use cheap camping cutlery as its light and easy to hold(my elbows
    Work but my shoulders don't)
    I found i could cook with a soupmaker when...
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    Thankyou ellie, i really really appreciate that...

    Thankyou ellie, i really really appreciate that advice. And yes, i definitely need ti have it, but i dont want to neeď it! But we've planned in a trip somewhere nice afterward, and my nutritionist is...
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    Thankyou lovely, i appreciate it xx

    Thankyou lovely, i appreciate it xx
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    Two weeks to go Kayleigh! We've had to stay at my...

    Two weeks to go Kayleigh! We've had to stay at my parent's for almost six months which has been challenging, but the flat is shaping up lovely 😁
    The daughter is starting secondary school soon !
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