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Type: Posts; User: Jude Hall

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    Thanks again Ellie, you truly are the font of...

    Thanks again Ellie,
    you truly are the font of all knowledge and your answers are always writen so sensitivly. I still fear how supportive our local hospice is going to be towards the end,...
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    Still waiting for ypur photos.😁 You are very...

    Still waiting for ypur photos.😁

    You are very lucky to get the equipment you need so easily.
    My mums OT is not so helpful. We have to buy most things mum needs or else if she waits we fear things...
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    Passing on thanks. Refusing nutrition but accepting breathing machine Is there any p

    Hi Ellie,
    Sorry I haven't answered your question sooner, yes mum takes Lansoprazol at the moment but recently itc eams to not be as effective as in the past. Thanks for the tips on avoiding...
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    Changing Hospice

    Hi,
    Just wondering if you can give any advice on how to go about changing hospices. There hospice my mother goes to is in the families opinion being neglectful and we would like her care to be moved...
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    Indegestion with Peg feeds or not.

    Hi All ,
    This might be a silly question but does anyone know I it's possible to still have indigestion and heart burn or nausea when being peg fed.
    Mum had had the dietition show her a peg feeding...
  6. Hi Ellie When mum spoke to the hospice the...

    Hi Ellie
    When mum spoke to the hospice the receptionist said who is your nurse , mum said rightly that she didn't have a nurse. They put her through to the therapy team. The OT answered and mum said...
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    Hi Ellie, Do you know what the screening process...

    Hi Ellie, Do you know what the screening process involves? Mum no longer goes to an mnd clinc as her care has been moved to the hospice team as the clinic was too far for Mum to travel. Of think...
  8. Thanks Terry

    Hi Terry, thanks for your message. I know that the hospice are surposed to deal with any end of life care not only cancer but the OT was very abrupt as she always is and plainly said to mum when mum...
  9. Hi Ellie I've decided after the bank holiday I'm...

    Hi Ellie
    I've decided after the bank holiday I'm going to call our gp surgery and ask the practice manager if mum can be referred to the community nurse or at least find out exactly what sort of...
  10. Thanks for you post John, seems were on our own...

    Thanks for you post John, seems were on our own with it as you seem to be too.
    Take care x
  11. Thanks for you reply, yes I've spoken to Scot...

    Thanks for you reply, yes I've spoken to Scot befor and he is aware of our plight with hospice. I might call him to ask him about swapping mum's care to a hospice in Northampton as they seem to be...
  12. Hi Ellie, Mum no longer goes to an MND clinic....

    Hi Ellie,
    Mum no longer goes to an MND clinic. There in lies her problem I think. She did go to Nottingham at first who were great but then it was decided the 2.5hr journey was too much and they...
  13. Light touch bed controls? what to expect from your OT service? And changing hospices?

    Hi, My mum has just got her profiling bed and she can't push the buttons on the controler. She can just about hold the device but has no power in her fingers or thumb to press the buttons.
    Has...
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    Twinkle, my mum has spinal condition that...

    Twinkle, my mum has spinal condition that ordinarily requires surgery, it causes her a lot of pain but the spinal surgeon refused to operate. His reason mainly was that for optimum recovery after...
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    Which power chair do you get ?

    Just wondering if you are always supplied with one of the Neuro Power Chairs suggested by MNDA on their video, or is it a postcode lottery?

    Mum's been assessed for a wheel chair and we're just...
  16. Hi Terry thanks for the info. I found my private...

    Hi Terry thanks for the info. I found my private messages now.
    I understand the not putting in before taking out but that's just how my mum thinks because she's worked for various charities all her...
  17. Hi Miranda, No sorry I didn't see your private...

    Hi Miranda, No sorry I didn't see your private message. Where would I have picked up a private message? Email or on this forum itself?
    My mum hasn't yet wanted to go to the meetings at Northampton....
  18. Thanks

    Thanks every one for the kind words and good advice as always.
    I think I'm beginning to win her round letting her know about gift siding and the idea of supermarket collection were the winning...
  19. Thanks for your kind words Barry. I told her...

    Thanks for your kind words Barry. I told her about the gift aid that goes on and I think I'm beginning to win her round ;).
  20. Hi

    That's a very good idea Terry, hadn't thought of that. I could rally the whole family to cover several tills.

    Thanks Terry.
  21. Accepting grants are for anyone with MND with no strings attached..

    Hi, my mum has been diagnosed with MND since January this year and is still coming to terms with it.
    I have offered to help her apply for a grant from the MNDA but she says she has fundraised all...
  22. Thanks for the advice Miranda. Just out of...

    Thanks for the advice Miranda.
    Just out of interest where in Northamptonshire are you.
    We're in kettering by the way.��
  23. Thanks John. Hope you get on ok with your 2 new...

    Thanks John. Hope you get on ok with your 2 new gadgets and the patch starts to work better for you soon. Mum may have to start having my mushier and wetter food but when you don't want to eat much...
  24. Thanks for your invaluable advice Terry. So glad...

    Thanks for your invaluable advice Terry. So glad of this forum and all you woundful people reading posts and passing on advice from those who suffer themselves or from those careing for loved ones...
  25. Thank you Ellie for being very informative. I...

    Thank you Ellie for being very informative. I thought it may come to the use of the machines and feeding tube but I'm sure she would say I'm not at that stage yet. But to me her choking and weak...
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