Search:

Type: Posts; User: JAN Q

Page 1 of 6 1 2 3 4

Search: Search took 0.05 seconds.

  1. Thread: Rizolule

    by JAN Q
    Replies
    40
    Views
    27,612

    Hi mags, I have just read your post and I am so...

    Hi mags, I have just read your post and I am so pleased to hear that we can get riluzole in liquid form,I have not taken any of mine since I had my rig fitted ,as the first time tried to put it...
  2. Replies
    8
    Views
    4,911

    Hi Pete and thanks for your reply, I do use...

    Hi Pete and thanks for your reply,
    I do use nebulizer, usually morning and night ,I do think that helps. The butter sounds interesting though will give that a try for definate, once again thanks...
  3. Replies
    8
    Views
    4,911

    Thanks DVD, I was taking capsules three times a...

    Thanks DVD, I was taking capsules three times a day but now taking meds through rig I take three 15 'm doses per day. As you said about your friend I am still getting the phlegm and also choking...
  4. Replies
    2,470
    Views
    695,527

    Hi Dave pleased that you and Julie are getting...

    Hi Dave pleased that you and Julie are getting organised with feeds, I am feeding with the syringes at moment , but like Julie haven't been able to eat since RIG was put in until this week and have...
  5. Replies
    2,470
    Views
    695,527

    Thanks Dave, I try with the water but must do...

    Thanks Dave, I try with the water but must do more,and yes I get very dry mouth ,I do have some little sponges I dip in water and wipe over mouth in night,and the lip balm is good.
    I am on the...
  6. Replies
    2,470
    Views
    695,527

    The ensure feeds are seeming to be ok now my...

    The ensure feeds are seeming to be ok now my stomach is obviously getting used to it.I have had to do it gradually but am now taking three a day and at lunchtime the last few days have managed to eat...
  7. Replies
    2,470
    Views
    695,527

    Hi Dave, I haven't been around for while,not...

    Hi Dave,
    I haven't been around for while,not feeling too good still since having my Rig fitted,it has taken its toll on me I'm afraid, two weeks on from op and having lost ability to eat, I am...
  8. Replies
    2,470
    Views
    695,527

    Hi Terry, Thanks for your help, before I went...

    Hi Terry,
    Thanks for your help, before I went in to hospital I was eating pureed meals and since I have been home have not had anything only little jelly and little custard that was last week but...
  9. Replies
    2,470
    Views
    695,527

    Hi Katrina, That is identical description of the...

    Hi Katrina,
    That is identical description of the pain in my arm, comes from top of shoulder down the front of arm, and any movement to stretch or to pick up something is so painful, and almost...
  10. Replies
    2,470
    Views
    695,527

    Hi Katrina, I am still not too good, still...

    Hi Katrina,
    I am still not too good, still getting sickly feeling , I have only taken meds for one and half days so still keeping fingers crossed to hope it will help. The medication is called...
  11. Replies
    2,470
    Views
    695,527

    Hi Terry, I started feeding through tube ...

    Hi Terry, I started feeding through tube just week ago today but couldn't eat or drink orally except couple days ago I ate bit of jelly and next day little custard but nothing last two days...
  12. Replies
    2,470
    Views
    695,527

    Hi Katrina, Yes Dr prescribed me liquid...

    Hi Katrina,
    Yes Dr prescribed me liquid antisickness medication have only started it today as I was little worried about taking all these meds at the same time in case that makes me sick. I leave...
  13. Replies
    2,470
    Views
    695,527

    Hi Dave , I don't know if it is my stomach but I...

    Hi Dave ,
    I don't know if it is my stomach but I am struggling to get my quantity of ensure in, I have full one at 8.30 then at 12.30 I am only taking half diluted with about same amount of water,...
  14. Replies
    2,470
    Views
    695,527

    Morning Dave, Thanks for your reply, my carer or...

    Morning Dave,
    Thanks for your reply, my carer or my son when he is here are preparing water for me ,cause as you know I live alone and can't do anything like all that preparation myself. Good idea...
  15. Replies
    2,470
    Views
    695,527

    Hi Dave hope you find that Julie improves in a...

    Hi Dave hope you find that Julie improves in a few days, I wasn't very good in the beginning,and lack of sleep didn't help.
    Can I ask you or anyone else who might help me , when going through the...
  16. Thread: My dad

    by JAN Q
    Replies
    574
    Views
    154,961

    Hi John, thanks for your reply, I do think that...

    Hi John, thanks for your reply,
    I do think that the pain is like a pulled muscle but just hope that it is not the mnd causing it. As for pressure sore areas I am waiting for a special cushion and...
  17. Thread: My dad

    by JAN Q
    Replies
    574
    Views
    154,961

    Hi all, help please!!! Has anyone else...

    Hi all, help please!!!
    Has anyone else experienced this?
    Week or so back I started to have pain in upper arm in muscle area, now the last few days since I came home from hospital my arm is so...
  18. Replies
    2,470
    Views
    695,527

    Well done Julie and Dave, you must be so relieved...

    Well done Julie and Dave, you must be so relieved it's all over ,and Julie looks pretty good I am so pleased for you both , xxxxx Jan Q.
  19. Replies
    2,470
    Views
    695,527

    Hi Dave, hope all goes well tomorrow will be...

    Hi Dave, hope all goes well tomorrow will be thinking of you.
    I am 5days on after having my RIG fitted slowly recovering early days yet.
    I haven't been around for that reason 5days in hospital...
  20. Thread: My dad

    by JAN Q
    Replies
    574
    Views
    154,961

    Hi Katrina, You must carry on posting, you have...

    Hi Katrina,
    You must carry on posting, you have helped me a lot the last few weeks ,and that is why some people have experienced certain problems like myself and it makes it seem more normal, to...
  21. Replies
    13
    Views
    5,442

    Hi DVD, So interesting to see your post...

    Hi DVD,
    So interesting to see your post about porridge smoothie, I am struggling now with my eating,so most of my food is soft, but occasionally like this morning I was eating my ready brek...
  22. Thread: Mucus plug

    by JAN Q
    Replies
    42
    Views
    47,618

    Hi sunshine, I have been diagnosed with motor...

    Hi sunshine,
    I have been diagnosed with motor neurone disease and it's coming up to a year soon , but I have lost my mobility, swallowing difficult ,now waiting for a RIG to be fitted, but one of...
  23. Replies
    13
    Views
    4,889

    Hi Ellie, Thank you so much for your reply, I...

    Hi Ellie,
    Thank you so much for your reply, I feel lot happier now as I have been using it more since I came home from hospital and with humidifier on found it much better, but since I refilled it...
  24. Replies
    7
    Views
    2,491

    Hi miss Muffet I am at the same stage as you...

    Hi miss Muffet
    I am at the same stage as you almost identical by the sound of it, I was diagnosed in June so my first year is couple months away but sure I could have been diagnosed in March as...
  25. Replies
    13
    Views
    4,889

    Hi Nettie, Hope you don't mind me asking and...

    Hi Nettie,
    Hope you don't mind me asking and perhaps if you can't help me someone else may know the answer, I am still trying to build up the time on my ventilator,and since I have been given the...
Results 1 to 25 of 132
Page 1 of 6 1 2 3 4