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  1. Replies
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    2,599

    I use cotton buds with my husband, it works well.

    I use cotton buds with my husband, it works well.
  2. Thread: Lost mam

    by M4GK
    Replies
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    4,488

    So sorry to hear of your loss. You were amazing...

    So sorry to hear of your loss. You were amazing with mum, may you find peace.
  3. Thread: Sore bum!

    by M4GK
    Replies
    17
    Views
    3,518

    Hi Karl Your OT would be the best person to...

    Hi Karl
    Your OT would be the best person to organise this for you, or your District Nurse.
  4. Thread: Holidays

    by M4GK
    Replies
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    10,196

    Hello I have taken my husband to the following...

    Hello I have taken my husband to the following places, he really enjoyed the scenery, and said the accommodations were lovely.
    Norfolk Friendly Disabled Cottages and Brickhouse Farm.
  5. Thread: Tired of caring

    by M4GK
    Replies
    19
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    9,662

    Hi Tania Sorry to hear mum has been in hospital....

    Hi Tania
    Sorry to hear mum has been in hospital. I hope things have settled.
    Regarding carers giving medication, you really need to ask for a review on mumís package of care.
    Mum needs a complex...
  6. Thread: Tired of caring

    by M4GK
    Replies
    19
    Views
    9,662

    Hi Nightowl2016, everyone has been so amazing,...

    Hi Nightowl2016, everyone has been so amazing, giving advice. I don’t think there is anything more I can say. I have been there, and know exactly how you must be feeling. I don’t come on the forum...
  7. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    That is really good news. Getting out and about...

    That is really good news. Getting out and about is so important, and knowing you have places you can stop at, to freshen up, will help many more people to plan more trips. Good luck
  8. Thread: Hello

    by M4GK
    Replies
    34
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    10,046

    Hi Terry, Iím glad you found the link useful.

    Hi Terry, Iím glad you found the link useful.
  9. Replies
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    Hi Sasha My husband wanted to maintain dignity...

    Hi Sasha
    My husband wanted to maintain dignity and our OT put a order in for a closomat toilet, it washes and drys you.
    Your dads OT can provide utensils or show him magazines on different things...
  10. Replies
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    Hi Chris It sounds like your OT needs to come...

    Hi Chris
    It sounds like your OT needs to come out and review you again. There are many options out there. If your not getting much help, ask your MND Nurse to refer you to the OT.

    I agree with...
  11. Thread: Holidays in UK

    by M4GK
    Replies
    14
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    5,472

    We have been to Brickhousr Farm, amazing place,...

    We have been to Brickhousr Farm, amazing place, it has everything you could ever need. They also have a hydro pool now.
  12. Hi Roy, it’s my husband who has MND, we contacted...

    Hi Roy, it’s my husband who has MND, we contacted our continence team and they gave us different ideas, what we could do. My husband is also in his wheelchair full time, we now have a delivery of...
  13. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    Hi Terry Thank you for your reply. Iíve told...

    Hi Terry
    Thank you for your reply.

    Iíve told my hubby, we will work on getting one, IV elooked in line.
    My hubby uses a Oxford 180 hoist, so will try and get a similar floor hoist. 😊
  14. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    Thank you Ellie. I will make contact with our OT....

    Thank you Ellie. I will make contact with our OT.
    Distance can affect how long my hubby can stay out, as he becomes uncomfortable in his chair.

    We will need to use...
  15. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    Portable Hoist??

    Does anyone know how we can get a portable hoist??
    Secondhand or purchase??
    Thank you
  16. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    My husband celebrated his 54th birthday on the...

    My husband celebrated his 54th birthday on the 8th March. �� �� ��
    We had a lovely day, it’s hard to buy presents, so not many brought, but spend a lot of time creating memories ��❣️
  17. Replies
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    Hi sorry to hear about your dad, I receive...

    Hi sorry to hear about your dad, I receive carers allowance for my husband, as I am the prim carer, which you will be. We also have carers every day. You are also right this be deducted from his...
  18. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    Hi wife of Jim �� I miss my husbands voice, I...

    Hi wife of Jim �� I miss my husbands voice, I struggle sometimes to remember how he use to sound, he hasn’t spoken in over 4 years.
    His Tobii eye gazer helps to give us a glimpse of his sense of...
  19. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    Hi kateyloo42, sorry to hear about your mum, have...

    Hi kateyloo42, sorry to hear about your mum, have you spoken to her speach therapist about getting her a speaking aid, there are so many out there. That is if your mum
    Wishes to use one.
  20. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    Thank you all for your replies to my message. It...

    Thank you all for your replies to my message. It so comforting to know we are not alone. Just to have people who understand.
  21. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    Is there anyone who has had Progressive Bulbar...

    Is there anyone who has had Progressive Bulbar palsy for more than 6 years.
    It would be nice to speak with you. My husband has been living with this
    He uses a eye gazer to communicate
  22. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    Thank you CC It has been encouraging to hear...

    Thank you CC
    It has been encouraging to hear from
    People who understand
    :)
  23. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    :)

    :)
  24. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    Thank you Barry, I have read post on and off over...

    Thank you Barry, I have read post on and off over the years, but was never able to share our story
    My husband uses a eye gazer, which can be time consuming at times, would love him to be able to...
  25. Thread: Hello

    by M4GK
    Replies
    34
    Views
    10,046

    Thank you

    Thank you to everyone who replied to my post.
    It wasnít easy for me to post.
    Many people may not understand why I mentioned God
    Whilst dealing with something thatís so cruel
    There wasnít anyone...
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