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  1. Replies
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    Hi Deb, I've sort of come to terms with having...

    Hi Deb,

    I've sort of come to terms with having to deal with this without proper help - at least for now.
    It's mad but I have found the health service to be cr*p and have always let me down. Maybe...
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    Hi Lynne, Sorry for the delay. I'm still...

    Hi Lynne,

    Sorry for the delay. I'm still working at the moment - although I have now been sacked due to Covid!
    But I wasn't going to go on much longer. Not directly due to this just how hard I...
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    Hi Ellie, Nice to meet you. I won't get a...

    Hi Ellie,

    Nice to meet you.

    I won't get a genetic test or a diagnosis for months.

    I have been reading up and even talking with KD people.
    I have decided I will talk to my family if I need...
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    I'm Not Diagnosed yet but....

    Hi,

    I have had a nerve conductivity test and they think I've got Kennedys. I have looked online and I have EVERY symptom pretty much. Due to Covid lockdown I won't see a neurologist until end...
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