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  1. Thread: Telling Family

    by Tess
    Replies
    13
    Views
    945

    Thanks for your encouraging words Delta! I'm...

    Thanks for your encouraging words Delta! I'm sorry that you had to conceal things for so long yourself....a very difficult situation to be in.

    I'm with you on this one and I know it's a 'strip the...
  2. Thread: Telling Family

    by Tess
    Replies
    13
    Views
    945

    Hi Miranda, Thanks for your comments there....

    Hi Miranda,

    Thanks for your comments there. We've had open discussions about it and he's simply scared and this breaks my heart. It's not news anyone should have to give to family, but I agree...
  3. Thread: Telling Family

    by Tess
    Replies
    13
    Views
    945

    Hi Delta, You had me tear up there. I'm so...

    Hi Delta,

    You had me tear up there. I'm so sorry for your loss and thanks for the advice.

    It's very difficult when you want to support, but alot of pressure doing it all by yourself, so I feel...
  4. Thread: Telling Family

    by Tess
    Replies
    13
    Views
    945

    Hi Barry and Graham, Thanks for your responses...

    Hi Barry and Graham,

    Thanks for your responses there. Unfortunately, he had to stop working last November due to deterioration of upper limbs and so up till now he's been lying to his family and...
  5. Thread: Telling Family

    by Tess
    Replies
    13
    Views
    945

    Telling Family

    My partner was diagnosed over 6 months ago and still won't tell his family about it. I feel I'm on my own with this and anytime I bring it up gently it turns into an argument...I've thought many...
  6. Thread: Eating Question

    by Tess
    Replies
    3
    Views
    582

    Thanks for your responses there. I'll definately...

    Thanks for your responses there. I'll definately have a wee read at some point soon- just to be in the know.

    Stonehengeman definately keep enjoying that sun, I'm sure you've seen plenty of sights...
  7. Thread: Housing Query

    by Tess
    Replies
    9
    Views
    1,539

    Good plan Lynne- lets hope that doesn't happen...

    Good plan Lynne- lets hope that doesn't happen then in the meantime hahaha. I enjoy a good problem solving exercise, but lifting or dragging a 33 year old man hasn't come into the picture previously,...
  8. Replies
    11
    Views
    1,534

    My partner barely even uses his phone...

    My partner barely even uses his phone anymore....so I guess he has got into a habit of not using it? I'll help him reply to a text or make video calls, so the phone is more so 'in case of emergency'....
  9. Thread: Hot Tub!?

    by Tess
    Replies
    7
    Views
    950

    If you get a hot tub please invite us round! :)

    If you get a hot tub please invite us round! :)
  10. Thread: NurOwn

    by Tess
    Replies
    10
    Views
    4,036

    Thanks for posting Barry. I'll have a read. ...

    Thanks for posting Barry. I'll have a read.

    Tess x
  11. Thread: Eating Question

    by Tess
    Replies
    3
    Views
    582

    Eating Question

    At what point do you research or enquire into feeding tubes etc? (No need for this now but being vigilant)

    Do you wait until there's a choking incident to know that food isn't going down anymore...
  12. Thread: Moving house

    by Tess
    Replies
    13
    Views
    2,545

    Congrats on the move! :) Or happy new home should...

    Congrats on the move! :) Or happy new home should I say.
  13. Thread: Housing Query

    by Tess
    Replies
    9
    Views
    1,539

    What a nightmare Lynne, as if you needed any of...

    What a nightmare Lynne, as if you needed any of that polava on top of the condition itself. I'm gobsmacked at the amount of paperwork and stages required for everything from pension and money stuff...
  14. Replies
    12
    Views
    931

    Hi Wayne, my partner is also in his 30's (just...

    Hi Wayne, my partner is also in his 30's (just turned 33)...it's just mad the whole thing. You don't want to look too far ahead but then you need to at times and it's super depressing and so we try...
  15. Replies
    17
    Views
    2,313

    Hi Denise, Fellow carer/partner :) I did...

    Hi Denise,

    Fellow carer/partner :)

    I did find myself naturally comparing what other people are doing in their lives to me and my partner's situation- a human thing to do I guess, but not even...
  16. Thread: Housing Query

    by Tess
    Replies
    9
    Views
    1,539

    Thanks for all of your responses there, I'll...

    Thanks for all of your responses there, I'll check out Blackwood homes also. I've been looking at 2 bedroom houses recently but then got side tracked looking at the lovely mansions (one can dream). I...
  17. Thread: New to Posting

    by Tess
    Replies
    9
    Views
    1,409

    Hi Lucy, Welcome and definately agree that...

    Hi Lucy,

    Welcome and definately agree that it's tough going to make the first post, it took me a good 6 months. I've noticed recently a lot of posts with a few comments but then hundreds of...
  18. Thread: Housing Query

    by Tess
    Replies
    9
    Views
    1,539

    Housing Query

    I'm trying to organise our next move... Me and my partner live in a second floor flat which we rent in Scotland and very soon the stairs will be impossible for him.

    We have applied to be put on...
  19. Thread: Lost

    by Tess
    Replies
    27
    Views
    3,908

    Hi Ellie, Yes I know the feeling of...

    Hi Ellie,

    Yes I know the feeling of uncontrollable tears, I've cried in the bank, I've cried in work, I've cried in the car, on the phone and reading some forum posts, but better out than held in....
  20. Replies
    405
    Views
    52,365

    I'm glad you had a nice celebration together. It...

    I'm glad you had a nice celebration together. It is difficult having a lockdown birthday but got to make the most of it in these situations. I do love seeing people get creative and think 'outside...
  21. Thread: Lost

    by Tess
    Replies
    27
    Views
    3,908

    Welcome Jackie, My partner has also been...

    Welcome Jackie,
    My partner has also been diagnosed this year at age 32. Coming to terms with it, im learning is definately not a linear process and the first time I've ever had to reach out to...
  22. Thread: This forum

    by Tess
    Replies
    20
    Views
    2,570

    Hi Matthew, I'm a carer I guess now and it took...

    Hi Matthew,
    I'm a carer I guess now and it took me a good 6 months since my partners diagnosis in January for me to reach out. It can be nerve racking to make the first post and so I know there are...
  23. Replies
    10
    Views
    2,404

    Welcome Matthew! A lovely supportive group on...

    Welcome Matthew!

    A lovely supportive group on here.
    One day at a time and I have to say even having the sunshine through the window for my partner sheilding (especially in Scotland) makes all the...
  24. Thread: Feeling Brave

    by Tess
    Replies
    12
    Views
    2,226

    Thanks Lynne. Yes we still need to properly...

    Thanks Lynne.

    Yes we still need to properly look at voice banking, certainly next on the to do list this week, but good to know that previous info is on here too.

    Tess
    X
  25. Thread: NurOwn

    by Tess
    Replies
    10
    Views
    4,036

    I've been doing some research like everyone else...

    I've been doing some research like everyone else and there's a petition going around to sign to encourage NurOwn exploration in the UK for those with MND. Many patients who were on the trial in the...
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