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  1. Thread: Hot hot hot

    by matthew55
    Replies
    6
    Views
    402

    I have come to measure the days heat with my...

    I have come to measure the days heat with my feet. Throughout the winter they were painful icicles but with the reasent warm weather I have not used my micro wave slippers for days! I guess next...
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    Hello, I have Bulbar onset and I get my CBD oil...

    Hello, I have Bulbar onset and I get my CBD oil from Amazon (paying tax I know but way too convenient ) it helps with pain and is great for sleeping. Life IS ****. :o)
  3. Thread: I'm lazy

    by matthew55
    Replies
    1
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    54

    I'm lazy

    Hey peoples, anybody know of a wet room specialist in the North West? x
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    1,027

    Anything that will release me before the natural...

    Anything that will release me before the natural end is welcome in my book. :O)
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    240

    Hi Ellie, what do think about this one: BrookPad...

    Hi Ellie, what do think about this one: BrookPad SplashLet 2100RB Intelligent Round Bidet Toilet? It's on Amazon. Thanks. x
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    240

    Rolling back the years

    Today I ordered an adult drinking cup because I can no longer drink from a grown up cup without dribbling?
    Unable to speak words, having someone else to wipe my bottom.
    Sounds like a baby to me! 😀x
  7. Replies
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    1,027

    Oh I'm still fighting but I do enjoy the feeling...

    Oh I'm still fighting but I do enjoy the feeling of freedom from the fear of anything! ��
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    599

    I'm on it twice a day for several weeks now and...

    I'm on it twice a day for several weeks now and no side effects. Actually think my regression has slowed down so all good, apart from my unheard plead for the liquid form. ��
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    Hi everyone, I have signed the forms and am due...

    Hi everyone, I have signed the forms and am due my PEG very soon, I'm getting a breather too and at the moment I can breathe and swallow. I'm not worried because I have already had a camera down my...
  10. Thread: Do I?

    by matthew55
    Replies
    8
    Views
    618

    Hi Lynne, still no sign of my order, yes and eye...

    Hi Lynne, still no sign of my order, yes and eye is in the planning stage and I am very lucky to have a full height gate and a locked rear drive way at the bottom of my garden, which is completely...
  11. Thread: Do I?

    by matthew55
    Replies
    8
    Views
    618

    Do I?

    I'm thinking of getting a road scooter, I'm currently almost mute, and tomorrow I have my first meeting for my PEG ,but the rest of me still works. What are your thoughts? Love you all x
  12. Thread: New reality

    by matthew55
    Replies
    3
    Views
    390

    Thanks Lynne, thanks for that. xx

    Thanks Lynne, thanks for that. xx
  13. Thread: New reality

    by matthew55
    Replies
    3
    Views
    390

    New reality

    I have a problem with a delivery from Currys and you can only phone it seems. My voice is so bad that the person I finally got to talk to must have thought I was a prank call and put the phone down....
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    A cautionary tale.

    I got really,really fed up with dribbling, so genius here decided to put a scopoderm 1.5 mg patch behind EACH ear at around tea time. Everything was fine until 3am when I awoke with extreme pain in...
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    1,508

    Full disclosure, I haven't decided if I want to...

    Full disclosure, I haven't decided if I want to travel the whole road but I'm sticking around for now? Talk doesn't fix things but don't discount your soul. Be strong
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    934

    Hi Wayne, if you have been paying into a job...

    Hi Wayne, if you have been paying into a job pension you can get your money back. I did it and it's helped keep me here if nothing else. Be Strong one day at a time. ��x
  17. Dear Eileen I have Bulbar onset and my voice is...

    Dear Eileen I have Bulbar onset and my voice is nearly gone but I don't let that upset me. The future is an undiscovered country where anything can happen? I just take it one day at a time, somedays...
  18. Thread: Will

    by matthew55
    Replies
    2
    Views
    732

    Will

    Like everyone else I aways thought I'd live forever, how wrong can you be? Now that I'm staring down both barrels my thoughts turn to after I have gone. How do I get a will written? I don't have...
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    I wish I had these issues, I just got the 2nd gen...

    I wish I had these issues, I just got the 2nd gen fire stick that has voice control! My voice is so bad now I hardly understand what I'm saying myself ��x
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    Thanks guys, I have to report that having used my...

    Thanks guys, I have to report that having used my adult bib for a few meals i cannot praise it high enough; I have breakfast milk for breakfast, then cream of soup for lunch and for dinner excellent...
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    Hi the move went very well. I have gone mad...

    Hi the move went very well. I have gone mad buying stuff and as I know I'm rubbish at cleaning I invested in a robot vacuum and a bin for the kitchen that opens and closes by itself! Only 8 days...
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    In 9 days hopefully I will be back every day. I...

    In 9 days hopefully I will be back every day. I miss you guys x
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    Life continues

    Hey guys, new home no reliable internet. I took the plunge this morning and ordered an adult bib! I'm tired of having tops streaked with stains! 😊🤔😂 This really is returning to the cradle! Love to...
  24. Thread: Ric feed

    by matthew55
    Replies
    7
    Views
    1,091

    Brilliant thanks x

    Brilliant thanks x
  25. Replies
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    949

    Thanks guys I will follow your sage advice ��

    Thanks guys I will follow your sage advice ��
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