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  1. Thread: Moving house

    by Jer788
    Replies
    13
    Views
    2,549

    Good luck Andy, it’s quite a push moving house...

    Good luck Andy, it’s quite a push moving house regardless of the MND.
    Regards Jerry
  2. Replies
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    1,636

    Hi Billy, totally agree but how do we go about...

    Hi Billy, totally agree but how do we go about this ?
    Regards Jerry
  3. Replies
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    2,602

    Thanks Andy

    Thanks Andy
  4. Replies
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    2,602

    Hi guys, we have a meeting next week so I guess I...

    Hi guys, we have a meeting next week so I guess I can ask then. Andy I think Maidstone is west Kent geography not my specialised subject. As for the savings Terry they’re well down, I spent my...
  5. Replies
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    Hi Musa, I had been using the generic Edaravone...

    Hi Musa, I had been using the generic Edaravone from India and certainly felt it had slowed my disease progression. I understand Andy’s scepticism as my neurologist is highly sceptical and maybe my...
  6. Replies
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    15,758

    Update though ALS is not mentioned directly it is...

    Update though ALS is not mentioned directly it is in their sights.

    Zhittya Genesis Medicine, Inc. Announces it has Released to the Public its New White Paper on its Drug to Treat Parkinson’s...
  7. Replies
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    2,602

    Wet Room Specialists

    Hi all, hope everyone is doing as well as they can. Iíve moved into Mums in Maidstone due to little help from Lambeth council and an inability to find alternative accommodation.
    The deterioration...
  8. Replies
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    7,456

    Hi Kayleigh, yes maybe. I’ve used the link which...

    Hi Kayleigh, yes maybe. I’ve used the link which Barry very kindly put up so will see what happens.
    Hope you’re well xxx
  9. Replies
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    7,456

    I find this quite confusing as I had a 3 monthly...

    I find this quite confusing as I had a 3 monthly checkup at UCL last Thursday and as usual I asked him if there was any upcoming trials etc. He informed me that a drug in the US looked promising but...
  10. Thread: Ibudilast

    by Jer788
    Replies
    24
    Views
    7,837

    Hi Mandy, how is the Ibudilast going. Iím having...

    Hi Mandy, how is the Ibudilast going. Iím having nausea problems again.
    Regards Jerry
  11. Replies
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    15,758

    Hi folks, a wee update on Zhittya. The project...

    Hi folks, a wee update on Zhittya. The project has relocated to Mexico where they hope to have some positive feedback in 3-4 months. They now have increased the infusion time from 3 to 6 weeks. I’m...
  12. Thread: Football

    by Jer788
    Replies
    31
    Views
    11,397

    Haha, sounds like everyone could get on...

    Haha, sounds like everyone could get on Gogglebox. This Freeview is good but repetitive and the commercials AGH.
    LOVE JERRY X
  13. Replies
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    3,221

    Thanks Debbie, it’s one of the reasons we’re...

    Thanks Debbie, it’s one of the reasons we’re moving. We’re currently on the 1st floor with no lift so I’m not eligible for a motorised wheelchair if I can’t bring it into the flat. Is also quite...
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    Thanks Kayleigh I’ll have a look. Sorry I haven’t...

    Thanks Kayleigh I’ll have a look. Sorry I haven’t been on here much I don’t suppose I’m handling things very well on every front.
    Best Jerry xxx
  15. Replies
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    Thanks Ellie, I will have a look at the sites. I...

    Thanks Ellie, I will have a look at the sites. I should have done this before but circumstances etc. Iím doing ok Ellie but have really deteriorated since returning to the UK. You sound like youíre...
  16. Replies
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    3,221

    Central London flat swap

    Hi folks, my brother and I are looking to swap our 2 bedroom social housing dwelling for similar with lift access. All areas of London considered. We live in a fairly modern building and now need to...
  17. Thread: Rch4

    by Jer788
    Replies
    400
    Views
    126,172

    Closed: Doblett, you come across as a right nasty piece...

    Doblett, you come across as a right nasty piece of work. I hope the association block your toxic posts.
  18. Thread: Rch4

    by Jer788
    Replies
    400
    Views
    126,172

    Closed: I’m with you on that Kayleigh. The association is...

    I’m with you on that Kayleigh. The association is showing a very strange stance.
    Love Jerry x
  19. Replies
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    3,622

    Hi folks, I have to say I so admire you all. Your...

    Hi folks, I have to say I so admire you all. Your strength and acceptance of this bloody thing is amazing. Where would we be without hope and imagination. Jerry x
  20. Thread: Ibudilast

    by Jer788
    Replies
    24
    Views
    7,837

    Hi Ellie, no I donít know the reason yet only...

    Hi Ellie, no I donít know the reason yet only that theyíve seized it and have asked if HMRC have been in touch. Customs are funny. Last month they charged me £25 import duty on my Ibudilast but this...
  21. Thread: Ibudilast

    by Jer788
    Replies
    24
    Views
    7,837

    Hi Ellie, I’ve been on the Ibudilast now for...

    Hi Ellie, I’ve been on the Ibudilast now for about 3 months with Riluzole and I can’t see any benefits. I am still deteriorating quite rapidly but as other things we all take it’s difficult to...
  22. Thread: Rch4

    by Jer788
    Replies
    400
    Views
    126,172

    Closed: Well said Ellie, my sentiments exactly. Love...

    Well said Ellie, my sentiments exactly.
    Love Jerry x
  23. Donated & good luck. Jerry x

    Donated & good luck. Jerry x
  24. Thread: MNDA Charity

    by Jer788
    Replies
    12
    Views
    3,888

    Hi Ellie, hope you’re well. What have you been up...

    Hi Ellie, hope you’re well. What have you been up to ? Ive been down to Maidstone to see the family. Saw the neurologist yesterday at UCL and back in Monday for a chat about a PEG and respiratory...
  25. Thread: MNDA Charity

    by Jer788
    Replies
    12
    Views
    3,888

    MNDA Charity

    Hi folks, Iíd just like to say thanks to everyone who donated to my Birthday Charity Fundraiser on Facebook. We managed to get £1855 over the week.
    It was a great effort and Iím happy to do this for...
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