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Type: Posts; User: Chrisp

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  1. Replies
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    Hello Regarding Stem Cells,there is research...

    Hello
    Regarding Stem Cells,there is research going on in USA and many other countries. As of yet there is no reports on the progress
    Chris
  2. Replies
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    Hello Good luck and report on the progress of...

    Hello
    Good luck and report on the progress of the medication. Is it a tablet or infusion etc?
    Chris
  3. Thread: Drugs etc

    by Chrisp
    Replies
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    5,310

    Hello So it is the cost of Edaravone and the...

    Hello
    So it is the cost of Edaravone and the procedure for the hospitals. In real terms I would cost nothing compared to hospital admissions.
    Chris
  4. Thread: Drugs etc

    by Chrisp
    Replies
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    5,310

    Hello There are good reports on Edaravone, so...

    Hello

    There are good reports on Edaravone, so why is not prescribed by the NHS?
    Chris
  5. Thread: Drugs etc

    by Chrisp
    Replies
    24
    Views
    5,310

    Drugs etc

    Hello
    There are lots of discussions about Riluzole, Rch4, Edaravone,stem cells and gene therapy etc. Where is the evidence that some of the treatments work or do not work?
    I know that there is a...
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    Hello I am under Preston Chris

    Hello
    I am under Preston
    Chris
  7. Thread: Brexit

    by Chrisp
    Replies
    4
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    1,390

    Thanks Terry

    Thanks Terry
  8. Thread: Brexit

    by Chrisp
    Replies
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    1,390

    Dear Chris Thank you very much for your recent...

    Dear Chris

    Thank you very much for your recent email with regard to the European Medicines Agency.

    There are troubling concerns that a No-Deal Brexit, in particular, will leave the UK stranded...
  9. Thread: Brexit

    by Chrisp
    Replies
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    Views
    1,390

    On 29 March 2017, the United Kingdom (UK)...

    On 29 March 2017, the United Kingdom (UK) notified the European Council of its intention to withdraw from the European Union (EU), a process known as 'Brexit'. The European Medicines Agency (EMA) is...
  10. Thread: Brexit

    by Chrisp
    Replies
    4
    Views
    1,390

    Brexit

    Hello
    After BREXIT we will be part of the European Medicines Agency? I am thinking of new medicines for MND? Will the UK will have to trial drugs independently?
    Chris
  11. Thread: Edaravone

    by Chrisp
    Replies
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    2,787

    Hello In Italy they give edaravone give to ALS...

    Hello
    In Italy they give edaravone give to ALS patients
    Chris
  12. Thread: Edaravone

    by Chrisp
    Replies
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    2,787

    Dear Christopher Please find attached the...

    Dear Christopher

    Please find attached the response from the Parliamentary Under Secretary of State for Health to the letter that I wrote on your behalf with regard to the licensing of edaravone to...
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    Hello The research sounds very interesting, but...

    Hello
    The research sounds very interesting, but we need a cure soon
    Chris
  14. Replies
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    Some cure will be on the horizon - stem cells or...

    Some cure will be on the horizon - stem cells or gene therapy
    Chris
  15. Replies
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    Hello Let us know how the treatment works. I...

    Hello
    Let us know how the treatment works. I am considering stem cell treatment
    Chris
  16. Thread: Edaravone

    by Chrisp
    Replies
    13
    Views
    2,787

    Hello Italy are prescribing Edaravone for ALS...

    Hello
    Italy are prescribing Edaravone for ALS patients.
    Chris
  17. Thread: Edaravone

    by Chrisp
    Replies
    13
    Views
    2,787

    Edaravone

    Dear Chris

    Thank you very much for your recent email with regard to the drug, edaravone, also called radicut, which has now been licensed in the USA and slows progression of MND disease by 33% in...
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    Hello Record your voice ASAP for voice banking ...

    Hello
    Record your voice ASAP for voice banking
    Get in touch with your IFA and find out about your pension and life insurance
    Get in touch with the MND team at the hospital and the OT
    Do you...
  19. Thread: Genetics

    by Chrisp
    Replies
    6
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    1,265

    Thanks Chris

    Thanks
    Chris
  20. Thread: Genetics

    by Chrisp
    Replies
    6
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    1,265

    Genetics

    Hello

    I read that some MND/ALS patients have been tested to see if they have a gene mutation. I was diagnosed in Italy and the UK and no one did a gene test,my father and mother died early and I...
  21. Thread: FMT program

    by Chrisp
    Replies
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    2,422

    Hello Keep us updated on your progress. Good...

    Hello
    Keep us updated on your progress. Good luck
    Chris
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    Hello It is good news about the breathing, voice...

    Hello
    It is good news about the breathing, voice and mucus. This is a significant breakthrough. Thanks for the information.
    Chris
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    Hello The Italian NHS are prescribing it to ALS...

    Hello
    The Italian NHS are prescribing it to ALS patients
    Chris
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    Hello On another thread Italy is prescribing it...

    Hello
    On another thread Italy is prescribing it for ALS patients
    Chris
  25. Replies
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    Hello Damn, we left Italy in June 2017 Chris

    Hello
    Damn, we left Italy in June 2017
    Chris
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