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  1. Replies
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    Hi Ellie, Thanks for your advice but broom and...

    Hi Ellie,

    Thanks for your advice but broom and feather duster! My wife might get the idea I’m about to start cleaning the house lol. I like the idea of the pulley system with resistance bands so I...
  2. Thread: Sad news

    by Barry52
    Replies
    5
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    274

    Hello Sue, Although we have been in contact...

    Hello Sue,

    Although we have been in contact via email I want to say how inspirational Steve was to many of the members of our Nottingham branch. His humour and positive approach gave courage to...
  3. Replies
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    167

    Arms and shoulders

    Hi fellow forum friends.

    Does anyone have a recommendation for stiff arms and shoulders? When I used to go to the gym the equipment improved my spasticity but 12 weeks without and my stiffness is...
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    1,084

    Did anyone watch Panorama tonight. Scary that 20%...

    Did anyone watch Panorama tonight. Scary that 20% of Covid cases are caught in hospital.

    Barry
  5. Replies
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    1,084

    Hi Matthew, Good luck with the operation and...

    Hi Matthew,

    Good luck with the operation and don’t give up the fight.

    Barry
  6. Thread: Introduction

    by Barry52
    Replies
    13
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    1,036

    Hi John, Well done for catching those perch....

    Hi John,

    Well done for catching those perch. When I was a boy my dad took me perch fishing in the Lake District and we used live minnows for bait. I believe this is now banned. Sign of the times...
  7. Thread: Telling Family

    by Barry52
    Replies
    14
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    1,031

    Hi Tess, I understand how your partner’s...

    Hi Tess,

    I understand how your partner’s position is affecting you and it certainly puts a strain on relationships. From my own position I wanted to ensure my mum and grownup children heard it...
  8. Thread: Do I?

    by Barry52
    Replies
    8
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    633

    Hi Matthew, I have been out on my scooter...

    Hi Matthew,

    I have been out on my scooter today and it was only my second outing in 13 weeks. I found it invigorating and I would fully endorse you getting one. Yes there is a risk of theft and my...
  9. Thread: Hallo all.

    by Barry52
    Replies
    6
    Views
    532

    Welcome magpie, Sorry you find yourself here...

    Welcome magpie,

    Sorry you find yourself here but we are a friendly group with lots of knowledge and keen to share advice and morale support.

    Best wishes,
    Barry
  10. Thread: Introduction

    by Barry52
    Replies
    13
    Views
    1,036

    Hello John and welcome to the place no one wants...

    Hello John and welcome to the place no one wants to be.

    I guess by now you have been through all the emotions when it is confirmed and the changes in your functions thereafter. Now that you have...
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    Hello Wayne and welcome to the place no one wants...

    Hello Wayne and welcome to the place no one wants to find themselves but you will get lots of advice and support from our forum family. Like you I was a golfer but never got beyond 16 and my first...
  12. Thread: Will

    by Barry52
    Replies
    2
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    745

    Hi Matthew, MNDA offers a free service. Check...

    Hi Matthew,

    MNDA offers a free service. Check it out here.
    https://www.mndassociation.org/get-involved/fundraising/leave-a-gift-in-your-will/online-free-wills-service/

    Best wishes,
    Barry
  13. Thread: Hot Tub!?

    by Barry52
    Replies
    7
    Views
    968

    Hi Sue1, I have no experience of a hot tub but...

    Hi Sue1,

    I have no experience of a hot tub but I often use a jacuzzi when on holiday and it does soothe the body. Before Covid I was using an aqua therapy pool and because the body weight is...
  14. Thread: NurOwn

    by Barry52
    Replies
    10
    Views
    4,083

    More news from Brianstorm. ...

    More news from Brianstorm.

    http://ir.brainstorm-cell.com/node/10121/pdf

    Barry
  15. Thread: Motability

    by Barry52
    Replies
    13
    Views
    2,334

    Hi all, Great news from Motability. As a...

    Hi all,

    Great news from Motability. As a result of fewer cars on the road they have seen less claims for accidents so they are refunding £50 to their customers. I received my cheque this morning....
  16. Hi Brusseleir and welcome. Ellie and Miaranda...

    Hi Brusseleir and welcome.

    Ellie and Miaranda have offered good advice. I had my own iPad Air a few years ago but the storage was inadequate as I was adding photos and music. I was given loan of...
  17. Thread: Work rights

    by Barry52
    Replies
    6
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    893

    Hi Elvisfan, If you report in ill then they...

    Hi Elvisfan,

    If you report in ill then they are obliged to pay you until your contract ends. You will need to provide evidence of your condition.

    Best wishes,
    Barry
  18. Replies
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    Hi Debbie, Reading your story this morning...

    Hi Debbie,

    Reading your story this morning brought a smile to my face as I could picture you and your husband watching the video. I know I shouldn’t be amused by your predicament but sometimes we...
  19. Thread: Anniversary

    by Barry52
    Replies
    4
    Views
    1,004

    Well done christoff and long may you continue....

    Well done christoff and long may you continue. Keep the wheels turning.

    Best wishes,
    Barry
  20. Thread: Motability

    by Barry52
    Replies
    13
    Views
    2,334

    Hi Jacqui, Since you ask I will offer my...

    Hi Jacqui,

    Since you ask I will offer my opinion based on extensive research.

    Ask yourself the question what will be the main purpose of your vehicle. Do you want freedom to go anywhere or just...
  21. Thread: MND and Covoid

    by Barry52
    Replies
    5
    Views
    823

    Hi Matthew, Generally the frequency of visits...

    Hi Matthew,

    Generally the frequency of visits to an MND specialist centre is quarterly and in the community we have the care team i.e. physio, speech and language, dieticians and OT. COVID has...
  22. Thread: This forum

    by Barry52
    Replies
    20
    Views
    2,587

    Hi Matthew, I’m sorry to hear that you are...

    Hi Matthew,

    I’m sorry to hear that you are feeling disillusioned with the forum so soon after joining. Please try to understand that some of the members are carers who have a full on time looking...
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    Hi Matthew, Yes it is available as a liquid so...

    Hi Matthew,

    Yes it is available as a liquid so I can suggest you discuss with your GP or consultant.

    Best wishes,
    Barry
  24. Happy birthday Matthew, I’m with Doug on this...

    Happy birthday Matthew,

    I’m with Doug on this issue although I am convinced that MND has reduced my capacity for alcohol and I can fall over sober.

    Best wishes,
    Barry
  25. Thread: Motability

    by Barry52
    Replies
    13
    Views
    2,334

    Hi Beemer, Motability are currently not...

    Hi Beemer,

    Motability are currently not accepting new orders as the manufacturers were due to publish new prices on 1st April but have not done so due to coronavirus. Here is the statement from...
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