Search:

Type: Posts; User: Vicky86

Page 1 of 2 1 2

Search: Search took 0.06 seconds.

  1. Replies
    3
    Views
    565

    Advance decisions help?

    Hello all,

    Iím trying to help my dad set up things for the future as doctor said we should. Problem is heís in hospital at the moment so I was told to ask them for the forms etc - whenever I ask...
  2. Replies
    6
    Views
    744

    Yes Terry you are right, he has a motorised chair...

    Yes Terry you are right, he has a motorised chair but barely gets to use it :(

    How do you cope? Itís all very difficult I admire you all on here
  3. Replies
    6
    Views
    744

    Thanks both He has been assessed as safe to...

    Thanks both

    He has been assessed as safe to sit in the chair but he and I remain worried he will fall out as he did recently

    So much to keep up with
  4. Replies
    3
    Views
    571

    Thanks Ellie I didnít know this and will...

    Thanks Ellie

    I didnít know this and will google!
  5. Replies
    1
    Views
    493

    Living at home with care

    Hi all

    Wondering if any of you have lost use of both arms and legs but still manage to live at home with carers regularly coming?

    Iíve just been told my fathers care company canít manage his...
  6. Replies
    6
    Views
    744

    Seatbelt for armchair?

    Just wondering if anybody has a seatbelt to prevent falls when little upper body strength?

    Trying to avoid my father falling from his chair and the need for him to be in a hospital bed full time
    ...
  7. Replies
    3
    Views
    571

    Phone answering?

    Any suggestions as to a voice activated way that my dad could answer his mobile phone?

    We have a google home but this only allows him to make calls by voice and Siri on iPhone does the same
    ...
  8. Replies
    7
    Views
    1,739

    Hi all Dad has ended up in hospital after a...

    Hi all

    Dad has ended up in hospital after a bad fall but is fortunately due to come out

    Unfortunately his body rejected the catheter and he found that when the sheath was fitted it kept coming...
  9. Replies
    12
    Views
    1,838

    Thanks Sue I like these ideas. Not sure I could...

    Thanks Sue I like these ideas. Not sure I could get my dad to go for drinks or food though as heís v self conscious :(
  10. Replies
    12
    Views
    1,838

    Thanks Barry this is what we are waiting for him...

    Thanks Barry this is what we are waiting for him to be assessed for - is it possibly something he could just try anyway beforehand do you think? As it is taking so long
  11. Replies
    4
    Views
    678

    Thanks Ellie Theyíve said they work on the...

    Thanks Ellie

    Theyíve said they work on the basis of Hope & if it could be reversible they check for that I suppose. We donít know what to think :(

    Do you have regular checks EMG wise is that...
  12. Replies
    12
    Views
    1,838

    Thanks Dina, all good ideas! The problem is...

    Thanks Dina, all good ideas!

    The problem is that since being diagnosed and even before with the disabilities he was experiencing my dad has completely lost his confidence. Hel stay in and find any...
  13. Replies
    32
    Views
    9,412

    Hi Lynn How are you doing now? Last few...

    Hi Lynn

    How are you doing now?

    Last few days my dad has started coughing too, feeling like he needs to clear his chest but canít cough strongly enough to get it up :(

    It is worrying. Hoping...
  14. Replies
    13
    Views
    2,948

    Thank you both for you kind help! It is...

    Thank you both for you kind help!

    It is frustrating when we get equipment with no explanation

    It is more that it whizzes around the screen too fast for my dad to press it in time to select what...
  15. Replies
    11
    Views
    1,727

    Hello :) My dad has this same problem and...

    Hello :)

    My dad has this same problem and asked wheelchair services who fitted arm rests /troughs to his wheelchair which better hold his arms up and in place

    I would try them :)
  16. Replies
    12
    Views
    1,838

    Ideas for short trips out pls

    Hello all

    My father has difficulties in his wheelchair for long periods of time and has to use urine bottles - he has been on the list re assessment for other options for months.

    Iím worried my...
  17. Replies
    4
    Views
    678

    Repeat emg tests

    Weíre told ďprobably MNDĒ but then things seem stable for a long time and now they want to repeat the EMG tests

    Should we have hope or not?
  18. Thread: Clothing?

    by Vicky86
    Replies
    4
    Views
    1,389

    Clothing?

    Has anybody managed to find a clothing supplier for men that does trousers so that those without much arm mobility can use urine bottles?

    And anywhere that makes shoes large enough for feet with...
  19. Replies
    13
    Views
    2,948

    Thanks both We have it connected to the iPad...

    Thanks both

    We have it connected to the iPad and it goes around the screen etc so dad can select the options he wants but he gets stuck in that it doesn’t go everywhere etc so how does he control...
  20. Replies
    8
    Views
    1,804

    Thanks Terry Do you feel your guegling is mnd...

    Thanks Terry

    Do you feel your guegling is mnd related? I wonder if my dads may be as they did say the EMG showed some activity in his stomach and he gets shakiness in his stomach too
  21. Replies
    8
    Views
    1,804

    Thanks Lynn - helping me with a lot - appreciated...

    Thanks Lynn - helping me with a lot - appreciated :) I will tell my dad your advice :)

    If you don’t mind me asking, how long have you been taking Riluzole? Have you found it helpful?
  22. Replies
    7
    Views
    1,739

    Thanks all will look into all of these :)

    Thanks all will look into all of these :)
  23. Replies
    9
    Views
    1,809

    Thank you Ellie this is helpful I understand more...

    Thank you Ellie this is helpful I understand more now how the diagnosis is approached.

    I see you have been battling this for a very long time - good on you and you seem to be doing very well with...
  24. Replies
    9
    Views
    1,809

    It really does thank you for sharing x

    It really does thank you for sharing x
  25. Replies
    9
    Views
    1,809

    The uncertainties continue! You strike me as such...

    The uncertainties continue! You strike me as such a stoic amazing lady Lynn - good on you ����
Results 1 to 25 of 35
Page 1 of 2 1 2