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  1. Replies
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    Not so sure about the "nice" in my case,...

    Not so sure about the "nice" in my case, Kayleigh! No room for nice as I was always too naughty .
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    Hi Doug, It's good to reminisce with friends,...

    Hi Doug,

    It's good to reminisce with friends, isn't it? Although I'm not sure I would dare let anyone mention what I got up to in the 70's! Mind you, I'm just as naughty now... in my head! Ha ha...
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    Fabulous, CC. Thank you. Sorry, Kayleigh, I...

    Fabulous, CC. Thank you.

    Sorry, Kayleigh, I couldn't manage to read about the circus, but I did enjoy Nellie the Elephant. :D
  4. Thread: Ventilation

    by Gillette
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    I certainly am, Ellie. I can't overstate how...

    I certainly am, Ellie. I can't overstate how amazing they have been - I've probably bored everyone silly, going on about it - sorry! Not only that but communication between here, MND clinic and...
  5. Good news about the 2 zimmer frames, Sarah. I'm...

    Good news about the 2 zimmer frames, Sarah. I'm really pleased for you that you have good services - it makes life so much easier and smoother.
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    Hi Eileen, Unfortunately, not all MND nurses...

    Hi Eileen,

    Unfortunately, not all MND nurses offer a visiting service - certainly not those at the Salford clinic. However, we can ring them and leave a message at any time which will return...
  7. Thread: Ventilation

    by Gillette
    Replies
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    15,616

    Good(ish) news

    Sort of good news yesterday. After a sudden, marked but sustained deterioration, the doctors and palliative care nurses are putting a plan into place which, it is hoped, will alleviate symptoms. We...
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    Sue, that is fabulous news. Fingers crossed for...

    Sue, that is fabulous news. Fingers crossed for you both.
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    What an interesting idea, Kayleigh! Perhaps you...

    What an interesting idea, Kayleigh! Perhaps you could email the consultant to request it on my behalf.

    I like the song, Autumn Leaves, but I'm afraid Acker Bilk brings back unhappy memories so...
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    Definitely tiring, Ellie!

    Definitely tiring, Ellie!
  11. Thread: Hi

    by Gillette
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    Hi Moto and a warm welcome to the forum no-one...

    Hi Moto and a warm welcome to the forum no-one wants to need. I'm afraid I know nothing about stem cell therapy but others seems to have been able to give you information.

    This forum is a...
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    Lovely variety of corn there, Kayleigh. Thank you...

    Lovely variety of corn there, Kayleigh. Thank you for making me chuckle
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    Thanks, Chrissie. I can hardly believe it. ...

    Thanks, Chrissie. I can hardly believe it.

    Today's good things: meeting the carers went well yesterday, they all practised on me with the Cough Assist and all 'passed' the training. Phew! Two...
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    Kayleigh, thank you for your post using all those...

    Kayleigh, thank you for your post using all those bingo calls - very clever!
  15. Hi Sarah, apologies for not being supportive of...

    Hi Sarah, apologies for not being supportive of you but I couldn't think of anything useful to say - too selfishly distracted.

    It sounds as though you and your wife are taking sensible steps to...
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    Thanks, Kayleigh. I may have given support and...

    Thanks, Kayleigh. I may have given support and advice (I am very fond of telling people what to do! Ha ha ha.) but I really welcomed and needed the support of members. But that's what this forum is...
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    Dear Panniertank, It is so difficult to hold...

    Dear Panniertank,

    It is so difficult to hold on to your confidence in such circumstances.

    Have you spoken to your GP? You are sounding increasingly depressed, which is worrying. It will be even...
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    Hello, everyone, Thank you for your lovely...

    Hello, everyone,

    Thank you for your lovely messages and for the support I have received from you over these difficult weeks.
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    Amazing news

    IT'S BEEN APPROVED!

    I CAN GO HOME!
    I'll probably be going early next week, as long as the carers all get signed off for their me-specific training.

    Can you tell I'm pleased?
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    Thank you, Doug. Don't worry, i'm not counting my...

    Thank you, Doug. Don't worry, i'm not counting my chickens!

    I have a theory that the reason I'm still here is that the doctors and staff all love me so much that they can't to see me go! But I...
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    Thank you, Chrissie. Even though funding still...

    Thank you, Chrissie.

    Even though funding still hasn't been approved the first group of carers is coming in for training today, which shows remarkable trust on the part of the care company .

    I...
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    Thanks, Ellie. If or when I hear anything, I...

    Thanks, Ellie. If or when I hear anything, I shall be shouting it from the rooftops!

    Terry, I don't care if they are because I feel very supported by them.
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    Fabulous!

    Fabulous!
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    Today's good news (I' e trying to get online for...

    Today's good news (I' e trying to get online for hours to post it) is that the doctors on the ward are angry about the way I have been treated by the CHC. Although there is almost nothing they can do...
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    I've only just seen this, Doug, but if you find...

    I've only just seen this, Doug, but if you find me some pleasures I will happily suffer the consequences. Ha ha ha.
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