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  1. Thread: Blackpool group

    by Roewe
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    2,111

    Blackpool group

    The next meeting of Blackpool & surrounding areas MND support group is at 1pm. on Friday 2nd November at Trinity Hospice Day Care Centre

    I am not sure how many of you are aware that the MND...
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    Hi there Fru, sorry I am rather late in replying,...

    Hi there Fru, sorry I am rather late in replying, haven’t looked at this for a few days. Thank you so much for your help & going to the trouble of sending me links. I really appreciate that
    Thank...
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    Thank you Chris & John for your help. I will...

    Thank you Chris & John for your help.
    I will email my MND nurse right now & ask if they have a Circulation Booster.
    Thanks to both of you. Maeve
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    Freezing cold feet

    Does anyone else suffer from extremely cold feet, if so have you found any medication that has helped ? Maeve
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    Hi Eleanor, I am Mavis Roeves on Facebook. I...

    Hi Eleanor, I am Mavis Roeves on Facebook. I will look out for you, or you can PM me if you like. Maeve x
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    Hi voicegirl, I will look out for you too. Maeve x

    Hi voicegirl, I will look out for you too. Maeve x
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    Hi Pinkelle, sorry to have taken so long to...

    Hi Pinkelle, sorry to have taken so long to reply, not been on here for a few days.
    I am on Motor Neurone Awareness Group too. I will look out for you. Is your name Still Pinkelle on that site ?...
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    Hi Pinkelle, which one are you on? Maeve

    Hi Pinkelle, which one are you on? Maeve
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    Hi there Luke, not sure if this will help but I...

    Hi there Luke, not sure if this will help but I thought it was worth a mention.

    If your mum has ever been in the Civil Service she would be able to buy an annual holiday insurance through CSIS &...
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    Hi Pinkelle, I didn’t know there were any but I...

    Hi Pinkelle, I didn’t know there were any but I will take a look now that you have mentioned it
    Thanks. Maeve x
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    Hi there murrjo1, I live very close to Blackpool...

    Hi there murrjo1,
    I live very close to Blackpool & I have been going to the support group in Preston that Kevin mentioned, it’s really good & they are a friendly bunch of people. However, there is a...
  12. Thread: Speech

    by Roewe
    Replies
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    8,978

    Yes It was great news Kev, if I could skip I...

    Yes It was great news Kev, if I could skip I would have skipped out of there. . See you at the next meeting Maeve x
  13. Thread: Speech

    by Roewe
    Replies
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    8,978

    Hi Jaxx yes there are times when I am unable to...

    Hi Jaxx
    yes there are times when I am unable to get the words out at all & it’s frustrating & very upsetting, it’s not surprising you both cry, it’s a huge trauma & you don’t know what is going on....
  14. Thread: Speech

    by Roewe
    Replies
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    8,978

    Hi Jaxx,yes it does sound very similar to mine,...

    Hi Jaxx,yes it does sound very similar to mine, that’s exactly what I thought when I read your post. Of course you cry a lot, I guess we all do. It’s a terrible shock & not an easy thing to accept. I...
  15. Thread: Speech

    by Roewe
    Replies
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    8,978

    Hello Jaxx, just thought this may help you. I was...

    Hello Jaxx, just thought this may help you. I was diagnosed April 2017. My speech is very slow & slurred, I also have weakness in my left leg & left hand. I recently saw my specialist & he was very...
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    Thankyou for that Miranda, it will be a big help....

    Thankyou for that Miranda, it will be a big help. Maeve x
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    Hi Kevin Thanks for your advice. We have a...

    Hi Kevin
    Thanks for your advice. We have a bathroom downstairs ( which is the one we think we could convert) & a bedroom next door to it.
    Your input is appreciated Kevin. I will speak to you at the...
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    Quite right, keep on going Barry. Enjoy your...

    Quite right, keep on going Barry. Enjoy your cooking & Happy Xmas to you ?
    Maeve x
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    Happy Xmas to you too Andy From Maeve x

    Happy Xmas to you too Andy
    From Maeve x
  20. Thread: Raymond

    by Roewe
    Replies
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    5,552

    Hi there Raymond So sorry to hear that you have...

    Hi there Raymond
    So sorry to hear that you have been diagnosed with this awful disease. I was only diagnosed in April this year & it came as a terrible shock to me, it was the last thing on my mind....
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    Hi Terry Thank you for your comments on wet...

    Hi Terry

    Thank you for your comments on wet room.
    I appreciate your help & advice.
    Good idea to let people know where we live too
    Happy Xmas Maeve x
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    Thanks for your reply Ellie, its very helpful,...

    Thanks for your reply Ellie, its very helpful, the link was very useful too.
    Happy Xmas Maeve x
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    Help appreciated re planning a wet room

    Hello there

    I am sure several people on this forum have had a wet room installed.

    I am just at the planning stage & wondered if any of you can advise me of what I will need & what to avoid. ...
  24. Hi Bern, yes I do I am originally from Jarrow....

    Hi Bern, yes I do I am originally from Jarrow. Haven’t lived there for many years but still call it home & I love to go back there when I can
    Love. Maeve x
  25. Hi Bern, I bet it sounds great, with a Jarra...

    Hi Bern, I bet it sounds great, with a Jarra accent. Maeve x
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