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  1. Thread: Flu jab

    by mik
    Replies
    67
    Views
    21,456

    hi, i have had the flu shot for the last 5 years...

    hi,
    i have had the flu shot for the last 5 years and so has the wife,with no probs. the kids had the flu nose spray vaccination last year and were fine also.
    mik
  2. Replies
    22
    Views
    8,027

    thank you all for your input. I am still unsure...

    thank you all for your input. I am still unsure but will look out for this booklet.
    mik
  3. Replies
    22
    Views
    8,027

    Thanks guys, I am so unsure, i just dont want...

    Thanks guys,
    I am so unsure, i just dont want them to look at me and think when all the time. What to do?
    Mik
  4. Replies
    22
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    8,027

    telling my children.

    Hi all,
    My wife wants us to tell our children (8 & 6) what my inevitable outcome from MND will be, thoughts please. Should we and how?
    Thank you,
    Mi
  5. Thread: Top Tens

    by mik
    Replies
    87
    Views
    28,659

    heres my films in no order the shawshank...

    heres my films in no order

    the shawshank redemption,
    pulp fiction,
    the dark knight,
    rocky 2,
    aliens,
    shawn of the dead,
    american sniper,
    full metal jacket,
  6. Replies
    15
    Views
    6,518

    hi, i spoke to my resp consultant quite a while...

    hi,
    i spoke to my resp consultant quite a while ago possibly 2 years and at that time he told me that they may not have been a great success.
    Dont know whats happened since but i havent heard of...
  7. Replies
    45
    Views
    24,180

    hi, i am in the process of getting my 2nd...

    hi,
    i am in the process of getting my 2nd shower/commode chair through my ot. surely these are basic bits of kit that every ot should have access to?
    mik
  8. Thread: Suction machine

    by mik
    Replies
    23
    Views
    9,358

    hi all, i have a suction machine and i am sure...

    hi all,
    i have a suction machine and i am sure the make is a devil bliss or something similar. i've actually had it put quite far down the back of my throat with no collapse. believe it or not most...
  9. Thread: Am I selfish?

    by mik
    Replies
    29
    Views
    13,924

    Hi, i agree with dude. Lets say you have it done...

    Hi,
    i agree with dude. Lets say you have it done and you test positive theres no way of saying that faulty gene will lead to MND, if you test positive are you going to isolate yourself because you...
  10. Thread: Writing

    by mik
    Replies
    22
    Views
    7,153

    hi, i write with my eyegaze and have done for...

    hi,
    i write with my eyegaze and have done for about 18 months, its an amazing bit of kit.
    mik
  11. Thread: Giving up work

    by mik
    Replies
    5
    Views
    1,837

    hi, i worked on as long as i could, against...

    hi,
    i worked on as long as i could, against doctors advice. i had quite a labour intensive job which also involved a lot of driving, unfortunately my arms went first so even a desk job was no good...
  12. Thread: funeral

    by mik
    Replies
    4
    Views
    1,815

    funeral

    hi all,
    its a morbid topic i know, without a cure its something that has to be discussed. i just wondered if anyone had started to plan their funeral and if so where do you start? i'm not planning...
  13. Thread: What a mess

    by mik
    Replies
    135
    Views
    50,284

    Hi graham, i didnt want to cause any argument...

    Hi graham,
    i didnt want to cause any argument and i understand some of grievances with the MNDA, i just don't think this is the right thread or the right time.
    Mik
  14. Thread: What a mess

    by mik
    Replies
    135
    Views
    50,284

    RIP Dai. you will be sorely missed. p.s....

    RIP Dai. you will be sorely missed.

    p.s. Graham very inappropriate pushing your agenda when people are leaving heartfelt messages for Dai and family!
  15. Replies
    7
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    3,459

    hi, i don't care who invents a cure either, but...

    hi,
    i don't care who invents a cure either, but i would like our researchers to show some interest.
    mik
  16. Replies
    32
    Views
    17,496

    Hi, its bull to say its hard to stay awake, if...

    Hi,
    its bull to say its hard to stay awake, if you can't their in the wrong job and the carers are there to help hubby and you. Why should you pay for extra equipment so your carers can feel ok to...
  17. Replies
    23
    Views
    8,575

    i have had my grandad die of throat cancer and my...

    i have had my grandad die of throat cancer and my nan in law has had 7 bouts of bowel cancer. Saying that i still think the cancer ads are excessive, i also think the same of the samsung s6 ads, so...
  18. Thread: Genervon

    by mik
    Replies
    264
    Views
    120,274

    I always wonder if its the reason the charitable...

    I always wonder if its the reason the charitable organisations wont support it, find a cure no longer a need for charity!
    mik
  19. Thread: Trevor

    by mik
    Replies
    56
    Views
    20,982

    so sorry for your loss. I really dont know what...

    so sorry for your loss. I really dont know what to say. He is at peace now and no longer struggling with this horrendous disease and reading your posts i know he would of been so comfortable with...
  20. Replies
    13
    Views
    5,993

    Hi pepper, when was on my resmed vpap i couldnt...

    Hi pepper,
    when was on my resmed vpap i couldnt get on with full face masks, i had terrible problems getting them to seal properly. I was wondering if your husband had tried nasal pillows, it was...
  21. Thread: Cough!

    by mik
    Replies
    9
    Views
    4,345

    hi freesia, yes, i use mucodyne through my PEG...

    hi freesia,
    yes, i use mucodyne through my PEG with no issues.
    mik
  22. Replies
    51
    Views
    21,285

    I honestly didnt mean i wanted anybody to stop...

    I honestly didnt mean i wanted anybody to stop posting. Without the regulars there would be very little point to the forum. We just need some more people to come and widen the circle.
    mik
  23. Replies
    28
    Views
    10,190

    spring, i am so glad that theres been some...

    spring,
    i am so glad that theres been some improvement in your day. Make sure you get some good rest yourself.
    best wishes to you both.
    mik
  24. Replies
    51
    Views
    21,285

    hi, i am worried because the forum has turned...

    hi,
    i am worried because the forum has turned into a meeting place for the same 10-15 people, i'm not having a pop at those 10-15 people as i put myself in that group. The new blood need to join in...
  25. Replies
    51
    Views
    21,285

    worried about the forum.

    Hi,
    I have real concerns about the forum. My first is about the lack of new contributors, it has dropped massively since the turn of the year?
    Secondly it seems to have become a real back patting...
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