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  1. Thread: Stomach problem?

    by Ellie
    Replies
    10
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    866

    Oh Chrissie, I am so sorry. I feel so...

    Oh Chrissie, I am so sorry.

    I feel so useless in that all I can offer is a big virtual hug.

    We all wish Doug the best.

    Love Ellie.
  2. Replies
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    Carrie, I can assure you that nobody is diagnosed...

    Carrie, I can assure you that nobody is diagnosed with ALS solely on the basis of twitching, no matter what you read.

    You should be reassured that you have been examined by a Neurologist and you...
  3. Thread: Advice needed

    by Ellie
    Replies
    16
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    1,901

    Yes, the nebuliser doesn't work so well when it's...

    Yes, the nebuliser doesn't work so well when it's in the cupboard ;)

    Both pineapple and papaya juice cut through thick mucus.

    Hope you can thin it and get relief.

    Love Ellie.
  4. Thread: Stomach problem?

    by Ellie
    Replies
    10
    Views
    866

    Oh my days, you have both been through the mill!...

    Oh my days, you have both been through the mill!

    Are you any nearer to finding out what is causing Douglas' tummy to swell like it is?

    Take care of yourself.

    Love Ellie.
  5. Thread: New to site

    by Ellie
    Replies
    6
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    164

    Hi Jeremy and a warm welcome to the Forum. ...

    Hi Jeremy and a warm welcome to the Forum.

    Love Ellie.
  6. Replies
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    65

    Hey Sar, Congrats on starting the blog !! ...

    Hey Sar, Congrats on starting the blog !!

    Looking forward to reading more, as and when.

    Love Ellie.
  7. Replies
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    Hi Arta, Sorry you've had to join the Forum...

    Hi Arta,

    Sorry you've had to join the Forum but a warm welcome to you nonetheless.

    I know it's easier said than done but do try and focus on your day-to-day life as it is, and not just on the...
  8. Thread: Advice needed

    by Ellie
    Replies
    16
    Views
    1,901

    Sorry you're having this problem, Terry. ...

    Sorry you're having this problem, Terry.



    Carbocisteine is a mucolytic agent for the adjunctive therapy of respiratory tract disorders characterized by excessive, viscous mucus, including...
  9. Replies
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    335

    Hi Carrie, Sorry you have all those symptoms...

    Hi Carrie,

    Sorry you have all those symptoms but they don't sound like MND symptoms at all.

    Hopefully the Neurologist will quickly get to the root of your issue.

    Best wishes.

    Love Ellie.
  10. Replies
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    9,970

    Andy, I found after about month 2-3, my pain...

    Andy, I found after about month 2-3, my pain reduced dramatically - I used to get neck, shoulder and T-spine pain.

    Love Ellie.
  11. Thread: New

    by Ellie
    Replies
    51
    Views
    11,403

    Hi Jo Jo, I'm sorry you're chasing your tail...

    Hi Jo Jo,

    I'm sorry you're chasing your tail and understand how you are exhausted.

    Tbh, I don't understand why your partner's Neurologist refuses to elaborate as to which form of MND he has,...
  12. Replies
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    Sorry Tot, I should have been more specific - ...

    Sorry Tot, I should have been more specific - some hospitals have multidiscipline MND Clinics where not only are the Neurologists specialists in MND, but the Clinics are one stop shops, where we...
  13. Thread: Stomach problem?

    by Ellie
    Replies
    10
    Views
    866

    Happy to hear that Douglas seems to be more...

    Happy to hear that Douglas seems to be more comfortable.

    Thanks for reminding us about Dioralyte, Chrissie - it can be really useful.

    I wonder if a month on a good probiotic would help him? ...
  14. Thread: trimetazidine

    by Ellie
    Replies
    2
    Views
    208

    No details yet on this trial, Timm - it says...

    No details yet on this trial, Timm - it says it's expected to start in about 6 months.

    You can keep an eye on any trial using this site: https://clinicaltrials.gov/ct2/home
  15. Thread: PEG Advice

    by Ellie
    Replies
    42
    Views
    12,241

    Hi Hayls, Given that the nasty infections and...

    Hi Hayls,

    Given that the nasty infections and bacteria have been ruled out for you, some possible causes are:



    You're actually still partly constipated with old impacted poo which needs to...
  16. Thread: New Guy :)

    by Ellie
    Replies
    9
    Views
    1,527

    Hi Beemer, Sorry you've having to sell your...

    Hi Beemer,

    Sorry you've having to sell your beloved bikes.

    Re trousers: I know you're only a young 62yo, chap but many places sell perfectly good pull-on trousers and they aren't all 'old...
  17. Thread: Diagnosis

    by Ellie
    Replies
    3
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    365

    Hi Rubyray, Sorry to hear your mam is having...

    Hi Rubyray,

    Sorry to hear your mam is having balance problems and dizziness.

    Balance problems are unfortunately pretty common with MND (attributable to upper motor neuron damage) but not so...
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    Hi Tot, In assocaiation with clinical...

    Hi Tot,

    In assocaiation with clinical findings, the findings of note regarding an EMG test for ALS/MND are :
    Evidence of chronic neurogenic change.
    Evidence of acute denervation.

    Do you...
  19. Replies
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    I am sorry you are so anxious, Nigel - it must...

    I am sorry you are so anxious, Nigel - it must be difficult for you to sit back and think about other things.

    I really think you should see your GP, please make an appointment so you can discuss...
  20. Replies
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    Tot, if the Neurologist is not an MND Specialist,...

    Tot, if the Neurologist is not an MND Specialist, you can always get a 2nd opinion at an MND Clinic which might give a clearer picture. I'm sorry you are in this "Is it or isn't it?" category.
    ...
  21. Replies
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    When you say you got a "probable" diagnosis, Tot,...

    When you say you got a "probable" diagnosis, Tot, what was it exactly - probale what?

    Some of your symptoms are not ALS/MND symptoms and twitching can be benign or point to a host of other...
  22. Thread: TV programme

    by Ellie
    Replies
    4
    Views
    474

    Yes and the patient featured had a 6 month...

    Yes and the patient featured had a 6 month hospital stay following a trache whilst waiting for his care package to be sorted.

    https://www.bbc.co.uk/programmes/m000fjg7

    Love Ellie.
  23. Email Notification of New Private Messages Has Stopped Working.

    This function is currently not working​ - it was working at 10.13 yesterday but had stopped working by 15.15 and was not working at 12.00 today.

    I checked my Settings and this option is still...
  24. Replies
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    34,794

    Glad to hear at least some of your pain has...

    Glad to hear at least some of your pain has subsided, Terry.

    Love Ellie.
  25. Replies
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    Congrats on (finally!!) upgrading your desktop...

    Congrats on (finally!!) upgrading your desktop PC, Doug and successfully transferring your files - hope you can find them all now ;);)

    Hopefully you'll find Windows 10 better and easy to...
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