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Type: Posts; User: Boden1986

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    Yes coronavirus. X

    Yes coronavirus. X
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    Oh yeah of course, sorry I forgot there for a...

    Oh yeah of course, sorry I forgot there for a second about the dreaded invisible enemy. It is tough as the child, I understand well how you must be feeling. Please reach out if you want to talk.
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    Hi Benaldo, my dad was diagnosed early January. ...

    Hi Benaldo, my dad was diagnosed early January.
    I struggle still with what to do etc.
    With dad most appointments just fell in to place as the consultant and mnd nurse will refer to things such as...
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    Hi John. That's lovely. Thank you for replying. ...

    Hi John. That's lovely. Thank you for replying. Enjoy your outing today xx
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    Thank you everyone, I just feel helpless and I...

    Thank you everyone, I just feel helpless and I hate that. X
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    Thank you both for replying. Dad is currently on...

    Thank you both for replying. Dad is currently on an antidepressant and riluzole. So hopefully they will help as he has only been taking them for a short time.
    I think I might need to see a...
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    Struggling with emotions

    Hi everyone,
    Sorry if I ramble, dad was diagnosed in January with ALS on set upper limb.
    His speech is already too damaged for voice banking, he has some difficulty with swallowing on occasions,...
  8. Thread: She's Gone

    by Boden1986
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    So sorry for your loss, sending love x

    So sorry for your loss, sending love x
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    Hi Lesleyj, I totally understand what you mean. ...

    Hi Lesleyj, I totally understand what you mean. My dad was diagnosed in Early January. It hit me like a tonne of bricks and come bed time I would just be staring into space thinking about all sorts....
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    Hi Nav, my dad spoke of this today with the mnd...

    Hi Nav, my dad spoke of this today with the mnd nurse and she said it's due to the muscle wastage. The arms become heavy.
    She said it's all about position and support. Place pillows under them to...
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    Sending love and hugs x

    Sending love and hugs x
  12. Thread: Terrified

    by Boden1986
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    Hi kittybelle, I have only just read your feed,...

    Hi kittybelle, I have only just read your feed, just wanted to say I'm thinking of you today x
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    I was looking to ask the same question for my mum...

    I was looking to ask the same question for my mum and dad, these answers were really helpful. Thanks everyone x
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    Thank you x

    Thank you x
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    Hi Lynne and Kayleigh, Thank you so much for...

    Hi Lynne and Kayleigh,
    Thank you so much for your replies, I am already finding this forum so useful and supportive, everyone seems so lovely.
    I will have a look at the links today.
    Thank you x...
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    Nervous newbie

    Hi everyone,

    My dad was diagnosed last week with motor neuron disease (ALS).
    It has been a horrible 12 months, my grandad (dads dad) passed away last march following a long battle with...
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