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  1. Thread: PEG Advice

    by Hayls
    Replies
    42
    Views
    12,074

    Thank you Terry, my RIG procedure was very poorly...

    Thank you Terry, my RIG procedure was very poorly managed and I think my whole digestive system is still recovering from the knock on affects from all the difficulties. Prior to the procedure my...
  2. Thread: PEG Advice

    by Hayls
    Replies
    42
    Views
    12,074

    Ellie, your amazing as always, I never knew the...

    Ellie, your amazing as always, I never knew the difference between different laxatives. Now I know, Iíll give it a try, Iíll keep just my fingers crossed lol
    My Diatician suggested 200ml 4 times a...
  3. Thread: PEG Advice

    by Hayls
    Replies
    42
    Views
    12,074

    My drama still continues :( sorry to be so...

    My drama still continues :( sorry to be so personal but my bowels havenít been normal since having my RIG fitted, I ended up severely constipated I was immobile so Iím certain that was the cause but...
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    208

    Mnda East Dorset and New Forest

    If you live in the local area, please register your interest on https://www.mnd-smart.org/ if your willing to take part, Dr Hillier has registered to have a trial local and the more people that...
  5. Thread: Doddie Weir

    by Hayls
    Replies
    12
    Views
    3,168

    Thanks Barry

    Thanks Barry
  6. Replies
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    884

    Hello Shaun, Ellie is right, a local hospice...

    Hello Shaun,
    Ellie is right, a local hospice will be a huge resource for information and support, my local hospice is Macmillian, I thought they where cancer only but I was totally wrong, they...
  7. Replies
    47
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    4,525

    Thank you Sarah WP for starting this thread, my...

    Thank you Sarah WP for starting this thread, my use of my hands are almost gone and Iím so hung up on the embarrassing thought of someone else having to do my toilet needs, your honesty has helped me...
  8. Thread: So tired

    by Hayls
    Replies
    45
    Views
    5,317

    Hello Ellie, Southampton hospital are already on...

    Hello Ellie, Southampton hospital are already on the case, done my oximetry meter 2 nights ago and sent in the post to return and I have an appointment 5th February, fingers crossed ;)
  9. Thread: So tired

    by Hayls
    Replies
    45
    Views
    5,317

    Awww Terry, I was only in hospital for 1 week and...

    Awww Terry, I was only in hospital for 1 week and Iíve been home 3 days and Iím sleeping a lot more than usual and feel easily exhausted with the smallest of activities, I think Iíve lost some of my...
  10. Thread: Pain/Agony

    by Hayls
    Replies
    62
    Views
    10,571

    Good morning everyone, awww Lynne that hug is...

    Good morning everyone, awww Lynne that hug is doing wonders this morning ;)
    Oh Sheila, now Iím sending you the biggest hugs I can muster, we have both had a tough time, I feel like a moaning...
  11. Thread: Pain/Agony

    by Hayls
    Replies
    62
    Views
    10,571

    Unfortunately my voice isnít understandable face...

    Unfortunately my voice isnít understandable face to face to people who have known me all my life, nevermind on the phone lol
    Oh Ellie you are the voice of reason, Im still in discomfort from the RIG...
  12. Thread: Pain/Agony

    by Hayls
    Replies
    62
    Views
    10,571

    Awww Ellie, hubby and family are right by my side...

    Awww Ellie, hubby and family are right by my side but I worry telling them how Iím feeling incase Iím over reacting and they are dealing with their emotions of seeing me change so quickly that I...
  13. Thread: Pain/Agony

    by Hayls
    Replies
    62
    Views
    10,571

    I feel like my pain tolerance has become super...

    I feel like my pain tolerance has become super hypersensitive since having my feeding tube fitted, any pain makes my breathing become erratic and that can make my EL start up which in turn causes...
  14. Thread: Pressure Sores

    by Hayls
    Replies
    26
    Views
    18,735

    Canít believe Dina is no longer with us, since...

    Canít believe Dina is no longer with us, since being bed bound for two weeks and Iíve now been given a riser recliner and I feel the top of my bottom, base of my spine getting more and more tender,...
  15. Thread: Dina RIP

    by Hayls
    Replies
    17
    Views
    2,792

    Dina has been such a huge support to me and Iím...

    Dina has been such a huge support to me and Iím heartbroken that our care service let her down, she deserved so much more, CHC let Dina and family and the world down, they should be accountable for...
  16. Replies
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    5,397

    Oh Diamond, wow, your amazing for all that youíve...

    Oh Diamond, wow, your amazing for all that youíve done, only you know how your feeling, Me and my Family have had our own battles with medical professionals and unfortunately not all of them are...
  17. Thread: PEG Advice

    by Hayls
    Replies
    42
    Views
    12,074

    OMG after spending 2 weeks in pain since having...

    OMG after spending 2 weeks in pain since having my RIG inserted and the pain got so much I went to hospital and they said the stitches are very tight and have removed them and Iím now able to sit up...
  18. Thread: PEG Advice

    by Hayls
    Replies
    42
    Views
    12,074

    The Baclofen is a liquid form, I would never of...

    The Baclofen is a liquid form, I would never of thought Diazepam would help with muscle spasms, Iíll see what happens on Friday, thank you so much Ellie for you advice, hope you have fun over the new...
  19. Replies
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    2,619

    I had a very similar problem, sudefed nose...

    I had a very similar problem, sudefed nose unblocker nasal spray works very quickly to keep it clear which was a life saver for me, hope it works for her
  20. Thread: PEG Advice

    by Hayls
    Replies
    42
    Views
    12,074

    Hello Ellie, Iíve been prescribed 10mg Baclofen...

    Hello Ellie,
    Iíve been prescribed 10mg Baclofen 3 times a day, the strain on my chest muscles when I showered was so painful I couldnít continue and I took Morphine and paracetamol but it made no...
  21. Thread: PEG Advice

    by Hayls
    Replies
    42
    Views
    12,074

    Hello Ellie, I had the same concerns about the...

    Hello Ellie,

    I had the same concerns about the baclofen that it might solve one problem and cause lots of others, Hubby has gone to the pharmacy to collect it, Iíll read if I can take it as and...
  22. Thread: PEG Advice

    by Hayls
    Replies
    42
    Views
    12,074

    Dina, wow thank you, sounds like itís just what I...

    Dina, wow thank you, sounds like itís just what I need, your a superstar, Iím on the case, fingers crossed Iíll have a better new year compared to my Christmas
  23. Replies
    10
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    1,690

    Thank you for this thread, My Dentist and speech...

    Thank you for this thread, My Dentist and speech and language therapist suggested to keep persevering and get and use baby tooth brush (itís the smallest available) and you donít have to do the whole...
  24. Thread: PEG Advice

    by Hayls
    Replies
    42
    Views
    12,074

    Iím 10 days in and the pain from the RIG has...

    Iím 10 days in and the pain from the RIG has improved so much I donít need Morphine no more however Iím getting chronic muscle spasms in my chest/ abdomen and now my back and Lorazepam isnít working,...
  25. Thread: Terry

    by Hayls
    Replies
    101
    Views
    11,664

    Awww Terry, hope your in safe hands and get to...

    Awww Terry, hope your in safe hands and get to come home soon, big hugs
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