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Type: Posts; User: Tim-griffiths

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    Hi Kayleigh. Another sleepless night lol. I...

    Hi Kayleigh.
    Another sleepless night lol.
    I know exactly what you mean about feeling isolated, Mary was diagnosed with bulbar palsy onset ALS, unable to speak ( for about the past 10 months ),...
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    Hi Kayleigh. Another sleepless night lol. I...

    Hi Kayleigh.
    Another sleepless night lol.
    I know exactly what you mean about feeling isolated, Mary was diagnosed with bulbar palsy onset ALS, unable to speak ( for about the past 10 months ),...
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    Hi Chrissie. I'm very grateful for any input and...

    Hi Chrissie.
    I'm very grateful for any input and that's a valid point. I'm just trying to work out the best option and a lot of the time I feel like I'm swimming in very muddy waters. How do women,...
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    Hi Kayleigh. Mary is doing fine, and always...

    Hi Kayleigh.
    Mary is doing fine, and always seems to be smiling, except when she gets tired and then it's lots of tears and tantrums even though she is on citalipram for her emotional liability. ...
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    Thank you Lynn and Kayleigh. Thank you for your...

    Thank you Lynn and Kayleigh.
    Thank you for your kind words, not sure I'm wonderfully kind, I'm just doing what any husband or wife would be doing in similar situations, and I'm sure your husband...
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    Dilemma and unsure of the way to go.

    Hi all.
    I have been caring for my wife Mary since last February , and I get some universal credit as I'm on half pay which comes to and end on the 23 of February. I have been offered I'll health...
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    Our deepest sympathy and condolences for your...

    Our deepest sympathy and condolences for your loss Namay, our thoughts are with you and your family at this time. Tim and Mary
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    Great result for England and certainly the score...

    Great result for England and certainly the score line was a lot bigger than I had envisaged and to get the bonus points too, brilliant. Looking forward to the France now and if we play like we did...
  9. Thread: Riluzole

    by Tim-griffiths
    Replies
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    5,417

    Thanks Terry, as the wife can't swallow I guess...

    Thanks Terry, as the wife can't swallow I guess they had no choice other than to go for the more expensive option,.
    Tim and Mary
  10. Thread: Riluzole

    by Tim-griffiths
    Replies
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    5,417

    Hi Sue, the wife is unable to swallow so has the ...

    Hi Sue, the wife is unable to swallow so has the oral solution, has teglutik on the box, not sure if you can get this in any other form though. Hope this helps on your search for an alternative ...
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    Hi boiler. I'm a carer to my wife and a lot of...

    Hi boiler.
    I'm a carer to my wife and a lot of what she comes out with puts me in a similar situation as yourself, I look at it this way, that it's the frustration and trying to push you away in the...
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    So sorry to hear of your lose Twinkle. Both...

    So sorry to hear of your lose Twinkle. Both myself and my wife send our deepest condolences to you and your family.
    Tim and Mary
  13. Thread: RIP Ezri

    by Tim-griffiths
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    Our deepest condolences to you and Ezri's family...

    Our deepest condolences to you and Ezri's family
    Tim and Mary
  14. Hello Nigel, sorry you have had to join us...

    Hello Nigel, sorry you have had to join us through such horrible circumstances, wife was diagnosed with bulbar palsy onset ALS in October 2017. The support and advice on the forum has been key to...
  15. Thread: Hello

    by Tim-griffiths
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    Hi Mini, sorry to hear of your recent diagnosis....

    Hi Mini, sorry to hear of your recent diagnosis. On here you will find a lot of advice and support from others ( or as in my case ,carers ) with this dreadful disease.theres a lot of help out there...
  16. Done

    Done
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    Hi Candy I'm sorry to read about the reasonably...

    Hi Candy
    I'm sorry to read about the reasonably had to join us here on the forum. You probably are going through a whole range of emotions and this is, I believe , normal ( it certainly was for me...
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    I believe it's the choice of the patient, my...

    I believe it's the choice of the patient, my wife agreed for her doctor to put the DNR into place and this was done about 5 months after diagnosis when we were requested to fill in a will of life ?...
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    Hi Tecwyn. Welcome to the forum, here you will...

    Hi Tecwyn.

    Welcome to the forum, here you will find help and support and hopefully answers to your questions. MND diagnosis is difficult to get your head around for everyone involved, the...
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    No carers for the wife yet, not got the the bed...

    No carers for the wife yet, not got the the bed downstairs as yet but that's a distinct possibility in the near future, being her husband I've taken it upon myself to take care of all her needs that...
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    Hi Wecky Nothing like the symptoms my wife had,...

    Hi Wecky
    Nothing like the symptoms my wife had, and can't say I have heard of these symptoms before for a MND sufferer,
    Tim and Mary
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    Hi Steve. Welcome to the forum, although I'm...

    Hi Steve.
    Welcome to the forum, although I'm deeply sorry you had to find this community due to your diagnosis. My wife, Mary, was diagnosed with bulbar palsy onset ALS last October, three weeks...
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    Thanks Ellie. Every bit of information helps

    Thanks Ellie.
    Every bit of information helps
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    Hi twinkle Paracetamol can be obtained from your...

    Hi twinkle
    Paracetamol can be obtained from your local pharmacy in liquid form, got some the other day for the wife.
    and with reference to pinkelle solubles can go through the pegg, all my wife's...
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    Hi Deels Sorry to hear about your dad,...

    Hi Deels
    Sorry to hear about your dad, personally I think I would wait and just watch his progression, the slurred speech sounds like bulbar palsy and the loss of grip could be als ( sound exactly...
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