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  1. Replies
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    Hello panniertank, Whilst Terry favours weight...

    Hello panniertank,

    Whilst Terry favours weight for stability, I have upper arm strength and prefer a lightweight walker for lifting over obstacles. It is also easier for lifting into a car or bus....
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    Hi Kayleigh, We are very close to the sea and...

    Hi Kayleigh,

    We are very close to the sea and I swear I saw a mermaid but then again it may have been a dolphin.

    Debbie,

    I pleased you had a great time in Spain despite the difficulties of...
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    Hi Lynne, We will all have different...

    Hi Lynne,

    We will all have different perspectives on this but I believe partners should be aware of each other’s views and respect them.

    For me I want other people, including strangers to know...
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    Thanks Kayleigh for posting the useful link to...

    Thanks Kayleigh for posting the useful link to Jet2 assistance.

    Barry x
  5. Replies
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    Hi Dave, I only took my walker but someone had...

    Hi Dave,

    I only took my walker but someone had a scooter which was packed in the hold. Strangely the scooter arrived before my walker.

    Best wishes,
    Barry
  6. Replies
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    The best airline

    Hi all,

    I hope everyone is doing the best they can.

    As we have previously discussed travel with MND I thought I would relate my recent experience. We are currently in Menorca which is a...
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    Ellie your needy dog must come first as they have...

    Ellie your needy dog must come first as they have yet to learn how to feed themselves.

    Love,
    Barry x
  8. Thread: 10k

    by Barry52
    Replies
    19
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    1,231

    Great photos Lynne and well done to all who made...

    Great photos Lynne and well done to all who made the effort on our behalf.

    Barry xx
  9. Thread: 10k

    by Barry52
    Replies
    19
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    1,231

    Hi Lynne, Because the group is a closed...

    Hi Lynne,

    Because the group is a closed membership the link you attached only opens the primary page so we can’t see any photos. You could copy and save the photos to a file and post it on the...
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    Hi Chas, Whilst I have no personal experience...

    Hi Chas,

    Whilst I have no personal experience of the aid my friend uses one and she thinks it is marvellous. I understand that the MNDA gave her a grant towards the cost which you elude to is...
  11. Thread: 10k

    by Barry52
    Replies
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    1,231

    Hi Lynne, Well done to them for raising money...

    Hi Lynne,

    Well done to them for raising money and awareness of our charity. My daughters and granddaughter do a lot of fundraising and it makes me proud.

    Best wishes,
    Barry
  12. Thread: Hello

    by Barry52
    Replies
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    835

    Hi Chris and welcome. As Ellie suggested you...

    Hi Chris and welcome.

    As Ellie suggested you may have the slower progression MND and like myself 8 years in you learn to adapt. Of course this doesn’t mean that you won’t have challenges as you...
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    Hi Sarah and welcome to the forum family. ...

    Hi Sarah and welcome to the forum family.

    Sorry you have been diagnosed with MND but you will find support and advice here. I know the voice banking is laborious but it is worth the effort. Lynne...
  14. Thread: Ventilation

    by Barry52
    Replies
    139
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    11,915

    Hi Dina, I’m saddened to hear that you are...

    Hi Dina,

    I’m saddened to hear that you are still in hospital and mainly because social services haven’t got their act together. You have always come across as a glass half full girl so it is sad...
  15. Thread: Football

    by Barry52
    Replies
    28
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    1,772

    Enjoyed England beating Bulgaria 4 -0. The...

    Enjoyed England beating Bulgaria 4 -0.

    The Aussie’s have taken the ashes and I agree with CC that American football is painful to watch. All those adverts!!

    Barry
  16. Thread: New

    by Barry52
    Replies
    12
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    1,397

    Hi Emma and welcome. Sorry to hear that your...

    Hi Emma and welcome.

    Sorry to hear that your partner has been diagnosed with this dreadful disease and please let him know that he will get a warm welcome should he feel like introducing himself....
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    If only I could grow dreadlocks Dina but I did...

    If only I could grow dreadlocks Dina but I did have long hair in the 60’s and it strangely disappeared in the 70’s.

    Since Kayleigh mentioned wheelchair dancing it reminds me of our son’s wedding 2...
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    Hi Dina, I expect you are all tucked up in bed...

    Hi Dina,

    I expect you are all tucked up in bed now having been ejected from the nightclub for hogging the dance floor and wrecking the place. You are now permanently banned from the establishment...
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    Hello Daisymeg, So sorry to hear about your...

    Hello Daisymeg,

    So sorry to hear about your husband and thank you for informing us. Condolences to you and your family.

    Barry
  20. Thread: Rch4

    by Barry52
    Replies
    365
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    89,417

    Maybe the MNDA would like to sponsor this “wonder...

    Maybe the MNDA would like to sponsor this “wonder drug” company since they have run out of funding, but only if it would help us, their members. I appreciate it is not an approved drug and I recently...
  21. Replies
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    Yes Dina it was the A303 and we were heading to...

    Yes Dina it was the A303 and we were heading to Yeovil. We took a taxi from the hotel into town for dinner but they sent a people carrier so you can imagine me trying to get in. My wife and the...
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    Hello Dina, After Terry’s tale of wind, I...

    Hello Dina,

    After Terry’s tale of wind, I relate my weekend which I hope is more uplifting (wind required).

    We set off on Friday for a 140 mile drive to Newbury where we spent the night to...
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    Flu vaccination

    Hi everyone,

    I was reminded that it will soon be flu season when I went to my surgery yesterday. Most surgeries are starting the flu vaccination in September and it is important for those with MND...
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    Hi Sue, I’m sorry to hear that Steve is in...

    Hi Sue,

    I’m sorry to hear that Steve is in hospital and please give him my best wishes. I did miss our usual chat at the last meeting.

    I agree with Lynne that the care agency should insist that...
  25. Thread: Hi Everyone

    by Barry52
    Replies
    8
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    1,136

    Hello Adam and welcome. If you have looking in...

    Hello Adam and welcome.

    If you have looking in for a while you will probably have got to know some of us and no doubt you have a sound understanding of MND. I always feel sad to hear about people...
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