Search:

Type: Posts; User: Doug Carpenter

Page 1 of 15 1 2 3 4

Search: Search took 0.05 seconds.

  1. Replies
    2
    Views
    333

    ALS for Dummies

    As a result of an article in todayís Guardian about its author

    https://www.theguardian.com/music/2020/feb/14/pone-paralysed-producer-making-music-with-his-eyes

    -I found this:
    ...
  2. Replies
    6
    Views
    486

    MNDA Connect will be very helpful. They have a...

    MNDA Connect will be very helpful. They have a couple of experts in voice banking and may even assist with funding – using a system called Acapela. A person has to read aloud 350 short sentences...
  3. Replies
    18
    Views
    2,774

    Trials criteria

    Then please post the correct list

    Doug
  4. What a fabulously positive and inspiring...

    What a fabulously positive and inspiring attitude!

    Doug
  5. Mindfulness

    Hi Sarah

    Mindfulness can definitely be helpful in coping with MND. For one thing, itís a DIY therapy you can use anytime. Start by concentrating on your breathing.

    But its great merit is that,...
  6. Replies
    2
    Views
    280

    Remote control wall sockets

    A friend drew these to my attention. They should be a great help to those of us who can't bend down to reach existing sockets. Costco about £14.

    As I understand it, they plug in to existing...
  7. Replies
    372
    Views
    33,426

    MNDA supporters

    Iíve been feeling a bit low recently Ė a combination of Dinaís death, shoulder pain, weight loss and the insidious assault of MND on my mobility. But this morning I opened my winter edition of Thumb...
  8. Replies
    10
    Views
    1,386

    Hi Jaqui The oft repeated claim about only 3-4...

    Hi Jaqui

    The oft repeated claim about only 3-4 months benefit from Riluzole arises from the relatively short duration of the trial, not necessarily any limited effectiveness of the drug.

    I have...
  9. Hi Vicky In view of Nettie's interest and her...

    Hi Vicky

    In view of Nettie's interest and her proximity to you, please ignore my earlier PM and give her priority if the chair is still available.

    Doug
  10. Replies
    12
    Views
    1,633

    Don't worry Wallywoo. It's easy not to notice...

    Don't worry Wallywoo.

    It's easy not to notice how quickly we can build up to the limit of 50 messages in our boxes.

    Don't forget, you can export them and save them if you want to before your...
  11. Replies
    11
    Views
    1,803

    Many, many thanks Kathryn – and Lynne and Steve –...

    Many, many thanks Kathryn – and Lynne and Steve – for attending. And for letting us know about what was clearly a marvellous celebration of the life of a very special, complex lady who is much...
  12. Replies
    372
    Views
    33,426

    Shoulder improving

    I hope Iím not tempting fate by speaking too soon but, after the third Steroid/painkiller injection, the pain in my left shoulder is beginning to ease. It will be such a relief to be free of it.

    I...
  13. Thanks again Lee. Great perspective as always....

    Thanks again Lee. Great perspective as always. I’ve re-read your Jan 6th post and realised I slightly disagree with you on one small point – about ignorant people slagging of MND researchers and...
  14. Replies
    9
    Views
    1,231

    Beautiful Sarah! Thank you. A real carers'...

    Beautiful Sarah! Thank you.

    A real carers' anthem.

    Doug
  15. Replies
    43
    Views
    4,019

    Scottish MND drug trial

    It was good to see this new research trial into re-purposing drugs get the headline spot in the BBC 6 o'clock news this evening.

    Doug
  16. Replies
    11
    Views
    1,803

    Thanks Lynne That's marvellous you're able to...

    Thanks Lynne

    That's marvellous you're able to go!

    My shoulder is pretty painful in certain positions but bearable in others if I keep fairly still.

    Doug
  17. Replies
    11
    Views
    1,803

    Dina's funeral

    Dina's son has asked me to post this information about her funeral.

    It will be at 13:40 on Monday 20th January, at Agecroft Crematorium, Salford, M27 8SS. A celebration of her life will be held...
  18. Replies
    14
    Views
    2,057

    Hi Lynne How dare Model Talker object to a...

    Hi Lynne

    How dare Model Talker object to a Scouse accent - one of the finest in the world!

    I think you'd find Acapela quite straightforward and you may be able to get it funded through your SLT...
  19. Replies
    14
    Views
    2,057

    Hi Lynne The recording process was relatively...

    Hi Lynne

    The recording process was relatively straightforward. I did it in 3-4 sessions over Christmas.

    I haven’t been able to test it properly because I don’t yet have a text to speech system....
  20. Replies
    14
    Views
    2,057

    Hi Ellie I've been in touch with Mathew Hollis...

    Hi Ellie

    I've been in touch with Mathew Hollis at the MNDA and Rachael, who were very helpful over the recording process. It was he who mentioned Grid3 today.

    I will talk to Richard and my SLT....
  21. Replies
    14
    Views
    2,057

    Text to speech program advice please

    Having completed recording lots of phrases into Acapela and downloaded a big file, I thought I had everything I needed to convert text into speech via my own voice.

    I now understand I need a...
  22. Thanks for this and your posts throughout the...

    Thanks for this and your posts throughout the year, Lee, and especially your blog. It’s good to see constructive comments about the fiendishly difficult research being undertaken into MND, which I’m...
  23. Replies
    17
    Views
    2,714

    Dina RIP

    Friends

    I am sorry to be the bearer of terrible news.

    The world has suddenly become a poorer, darker place Ė our brave, vibrant, mischievous Dina has left us.

    She died at 5.47 today, with...
  24. Replies
    42
    Views
    29,440

    Thanks for letting us know Graham. Good luck with...

    Thanks for letting us know Graham. Good luck with your research.

    May I ask - how does your MND manifest itself?

    Merry Christmas!

    Doug
  25. Replies
    42
    Views
    29,440

    Thanks for posting this Graham – very...

    Thanks for posting this Graham – very interesting. Mis-folded proteins and a cell’s inability to remove them seem to be pretty universal in neurodegenerative diseases.

    Please could you also post...
Results 1 to 25 of 359
Page 1 of 15 1 2 3 4