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  1. Thread: She's Gone

    by Deb
    Replies
    14
    Views
    1,360

    Dear Chrissie, I am so very sorry to hear of...

    Dear Chrissie,

    I am so very sorry to hear of the loss of your beloved Gran. You were such a devoted and loving Grandaughter and your Gran was lucky to have you to care for her.

    I hope you have...
  2. Replies
    47
    Views
    4,085

    Thank you Sarah for keeping us updated. I hope...

    Thank you Sarah for keeping us updated. I hope tonight is better for you and you sort your feed out.

    Thank you to everyone on the thread for their honesty. It really helps to know we're not alone...
  3. Replies
    372
    Views
    33,426

    I am not sure this should be under the good news...

    I am not sure this should be under the good news thread but I feel very lucky to be reclined in my powerchair in the Spanish sunshine, so it seems the right place.

    The health care in Spain has...
  4. Replies
    47
    Views
    4,085

    Hi Sarah , I am so sorry you are feeling low...

    Hi Sarah ,

    I am so sorry you are feeling low but its is totally understandable. Please dont apologise for it ever because it's almost impossible to be positive when MND is relentless. You have...
  5. Thread: So tired

    by Deb
    Replies
    45
    Views
    5,004

    Hi Terry, I've been thinking about you lots...

    Hi Terry,

    I've been thinking about you lots too, recently. I hope you're comfortable and in less pain. I also hope you've been able to sort carers to make life easier for you and your wife.
    ...
  6. Replies
    372
    Views
    33,426

    Would love to know what you're reading Lynne.....

    Would love to know what you're reading Lynne.. it's my favourite thing !

    Hope you continue to feel a little better each day Doug. It's really hard isn't it to get back on an even keel after a...
  7. Thread: So tired

    by Deb
    Replies
    45
    Views
    5,004

    Oh Terry, You are certainly not a wimp ! You...

    Oh Terry,

    You are certainly not a wimp ! You have brought so much warmth, advice and encouragement to the forum over the years. ( and very funny humour !)

    I am not surprised you are fed up,...
  8. Replies
    18
    Views
    2,602

    Hi Chrissie, Thank you for keeping us updated. ...

    Hi Chrissie, Thank you for keeping us updated.

    Its sounds like your Gran is comfortable and pain free. You are such a loving and devoted granddaughter and you Gran is lucky to have you .

    Take...
  9. Thread: Terrified

    by Deb
    Replies
    9
    Views
    1,302

    Hi Kittybelle, I am so sorry for your symptoms...

    Hi Kittybelle,

    I am so sorry for your symptoms and that you feel so scared and anxious. Waiting to see consultants or waiting for the results of tests is so stressful and it is hard to think of...
  10. Thread: Changes are afoot.

    by Deb
    Replies
    31
    Views
    4,887

    Hi Lynne , So sorry about your fall and I...

    Hi Lynne ,

    So sorry about your fall and I really hope you feel better today. Falling is so scary, undignified and it makes us feel so vulnerable. Rubbish !

    When I was still walking using my...
  11. Replies
    7
    Views
    1,030

    Hi Tangly, I am so very sorry for the...

    Hi Tangly,

    I am so very sorry for the terrible shock and heartbreak of your mum's diagnosis and rapid decline.

    It sounds like you have a wonderful, close and loving relationship. I hope you...
  12. Thread: Terry

    by Deb
    Replies
    101
    Views
    11,277

    So glad you are back home Terry, back on the...

    So glad you are back home Terry, back on the forum and definitely looking more like yourself. We missed you !

    Hope you continue to feel better and enjoy your home comforts,

    Love Debbie x
  13. Thread: Recently diagnosed

    by Deb
    Replies
    6
    Views
    1,108

    Hi Shaun, A warm welcome to the forum,...

    Hi Shaun,

    A warm welcome to the forum, although I am obviously so sorry for your diagnosis. This forum is a really good place for emotional and practical advice.

    The diagnosis is such a...
  14. Thread: Nervous newbie

    by Deb
    Replies
    7
    Views
    1,219

    Hi Claire and a warm welcome to the forum from...

    Hi Claire and a warm welcome to the forum from me.

    I am so sorry for your Dad's diagnosis and for the loss of you grandfather. The diagnosis is such a terrible shock and its really hard to think...
  15. Replies
    372
    Views
    33,426

    Hi everyone, I wanted to keep up the thread,...

    Hi everyone,

    I wanted to keep up the thread, that Dina started because it seems it was really typical of her to celebrate the good things.

    I was due for an MND clinic visit and also for a...
  16. Replies
    9
    Views
    1,231

    Beautiful words and sentiments Sarah, I am so...

    Beautiful words and sentiments Sarah,

    I am so glad your wife encouraged( pestered ! ) you to share it with us. It made me cry too but in a very warm and hopeful way. You have a wonderful way with...
  17. Thread: Dina's funeral

    by Deb
    Replies
    11
    Views
    1,803

    Thanks for this information Doug, I think...

    Thanks for this information Doug,

    I think about Dina alot and will especially do so on Monday. I think we all miss her humour, bravery,positivity and encouragement on the forum.

    Doug, I really...
  18. Replies
    15
    Views
    3,622

    Thank you for your post Steve and for offering...

    Thank you for your post Steve and for offering tips to MND people and carer.

    Quality of care is so important for quality of life so thank you for supporting your local hospice.

    Love and best...
  19. Replies
    43
    Views
    4,019

    Thanks for the link Barry, It was good to see...

    Thanks for the link Barry,

    It was good to see MND as the headline report on the BBC , promoting awareness. I registered for the trial, although it is initially only available to people in...
  20. Thread: Terry

    by Deb
    Replies
    101
    Views
    11,277

    Hello Grandad Richard / Hamster, Having read...

    Hello Grandad Richard / Hamster,

    Having read Terry's posts about great days out with you I really thought you were his Grandad ! ( gullible is my middle name ) Thank you so much for taking the...
  21. Thread: Terry

    by Deb
    Replies
    101
    Views
    11,277

    Hope you continue to feel better, Terry and that...

    Hope you continue to feel better, Terry and that you get home soon.

    Also hope you're not too bored and going stir crazy, especially as your internet is dodgy.

    Love and hugs,
    Debbie x
  22. Thread: Dina RIP

    by Deb
    Replies
    17
    Views
    2,714

    So very sad and shocked to read this terrible...

    So very sad and shocked to read this terrible news.

    Dina was such an eloquent, kind and funny lady. Even when she was going through very dark times she had the ability to make us laugh on the...
  23. Thread: Terry

    by Deb
    Replies
    101
    Views
    11,277

    Hi Terry, Been thinking about you so thank you...

    Hi Terry,

    Been thinking about you so thank you for letting us know how you are. I really hope you feel better soon and you get effective pain relief.

    Sending you lots of love and hugs,
    Debbie...
  24. Thread: Terry

    by Deb
    Replies
    101
    Views
    11,277

    Thank you CC for your message about Terry. It's...

    Thank you CC for your message about Terry. It's kind of you to let us know.

    Terry, I am thinking of you and hoping you are pain free and comfortable tonight. Hope you are feeling better soon and...
  25. Replies
    372
    Views
    33,426

    Really good news Haylis, As Gina says, it's...

    Really good news Haylis,

    As Gina says, it's good to see you being so upbeat and positive about your RIG. I hope you continue to feel better each day.

    Love Debbie x
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