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  1. Replies
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    hi moll, its the luck of the draw, how slow/quick...

    hi moll, its the luck of the draw, how slow/quick the disease takes hold, my wife was diagnosed last july, hers was rapid and she passed on jan 14th this year, either way I wished i'd never heard of...
  2. Thread: bereavment

    by davidr
    Replies
    30
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    7,261

    Hello to you all, it's been a very busy week,...

    Hello to you all, it's been a very busy week, sorting paper work, its helped me take my mind of things, I don't know about other members dealings with social service's and the nhs, but my anger is...
  3. Thread: bereavment

    by davidr
    Replies
    30
    Views
    7,261

    Thank you all for your messages, everyone has...

    Thank you all for your messages, everyone has been so kind with there messages of sympathy, its a comfort to know people do care.
    once again thank you

    dave.
  4. Thread: bereavment

    by davidr
    Replies
    30
    Views
    7,261

    bereavment

    Hello all, just letting you all know my wife sue passed away overnight, sue always said she was never in pain but just ache's, it's been a horrible 6 months since her diagnosis, I will never know if...
  5. Thread: neck collar

    by davidr
    Replies
    12
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    2,811

    hi barry52, yes I will, not sleepy now, taken...

    hi barry52, yes I will, not sleepy now, taken over an hour to settle my better half, not had a good day.
    thanks
    dave.
  6. Thread: neck collar

    by davidr
    Replies
    12
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    2,811

    Thanks Terry.

    Thanks Terry.
  7. Thread: neck collar

    by davidr
    Replies
    12
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    2,811

    hi ellie, I need to take her to Wrexham for an...

    hi ellie, I need to take her to Wrexham for an appointment next Friday, am worried about her neck moving about to freely now going to take her in her electric chair, it has support for side movement...
  8. Thread: neck collar

    by davidr
    Replies
    12
    Views
    2,811

    neck collar

    hi, can anyone tell me if they are using a collar for weak neck muscles, do the mnda supply them of can I get one over the counter, any advise would be grateful.
    thanks

    Dave.
  9. Replies
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    4,802

    hi miranda, it been weeks since our last app with...

    hi miranda, it been weeks since our last app with speech and language, my wife didn't need thickener then, but she needs it now, had a prescription of the out of hours doc on sat, went to asda and...
  10. Replies
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    4,802

    Hi kayliegh, your right on the weight issue, my...

    Hi kayliegh, your right on the weight issue, my wife has gone down to 7st 4lb, her last weight check was about the same, as her ability to eat gets worse her weight will have dropped, see the...
  11. Replies
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    Hi dis1960, my wife had this done at home, they...

    Hi dis1960, my wife had this done at home, they sent ours through the post, we had to use the same package to send it back, had to registered post, cost nearly a fiver, ours was done like this to...
  12. Replies
    205
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    14,183

    Hello shrew, 17/7 is a day we will not forget,...

    Hello shrew, 17/7 is a day we will not forget, same day as my wife's diagnosis, stay strong for yourself as well as your husband, always someone on here to chat to or what ever.
    dave.
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    hi kayliegh, I got things mixed up, the 」40,000...

    hi kayliegh, I got things mixed up, the 」40,000 was about the finance's of the mother in law and care home fee's, not sure if its the same for getting the extension, something kicked in with our...
  14. Replies
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    Chc

    Hi kayliegh, thank you for the info, this forum is a god send to me, people out there willing to help others with info and support.
    dave.
  15. Replies
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    4,608

    Sue had a mild cold or chill, was giving her...

    Sue had a mild cold or chill, was giving her meds, the next thing some must have gone down the wrong way, she started gagging and panicking, for the next hour she was bringing up what ever was in her...
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    4,766

    Hello, today the district nurse did the...

    Hello, today the district nurse did the assessment for sue, sue scored on every question, so I take it has to go to a board? the nurse said she not seen anyone go down so quick over such a short...
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    4,766

    Hi, I thought the minimum was 」40,000 now, could...

    Hi, I thought the minimum was 」40,000 now, could be wrong.
    dave.
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    Hi pjs, my wife is in pretty much the same state...

    Hi pjs, my wife is in pretty much the same state as your husband, all this within 6 months of diagnosis, I feel for you.
    dave.
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    Hi kayliegh, marie curie are coming Tuesday night...

    Hi kayliegh, marie curie are coming Tuesday night to sit, got told they would ring prior to coming, to night the phone rang, it was marie curie office, said do we want a marie curie nurse for...
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    Thanks for the reply's, its uncharted water on...

    Thanks for the reply's, its uncharted water on this for me, have to take what comes and see, had another sleepless night .
    dave.
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    Jaffa beach, I;m more miffed we had to upgrade...

    Jaffa beach, I;m more miffed we had to upgrade the laptop to run it, but hey ho, my wife had a lesson on it yesterday, a few more lessons and she'll be ok, I found it hard but with practice it will...
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    Continuing health care

    Hi, to date I have not really had an answer of anybody or group, I wonder if anyone on the forum can enlighten me, what and when would you consider someone qualifies for chc and does anybody on the...
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    hi barry, on the subject of brakes, depending on...

    hi barry, on the subject of brakes, depending on the type of tyre's on wheeled trollys or walkers, depends on whether the breaks work properly, we found that tyre's that are rounded tread were no...
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    hello catsparkle, sorry to hear your losing the...

    hello catsparkle, sorry to hear your losing the use of your hands, contact welfare rights on your local council, they maybe able to help and point you in the right, my wife has lost the use of her...
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    hi lynne, always go for a double motor, a single...

    hi lynne, always go for a double motor, a single is doing all the work and won't last long.
    dave.
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