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Type: Posts; User: jen

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  1. Thread: Coping with pain

    by jen
    Replies
    5
    Views
    3,017

    hi I find accupuncture and aromatherapy helps...

    hi

    I find accupuncture and aromatherapy helps with alot of my pain although not all! I get the treatment through the hospice and physio. I know not everybody agrees with alternative therapy but I...
  2. Replies
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    2,427

    some medical students asked me to describe how it...

    some medical students asked me to describe how it physically feels to have mnd. I described it like wearing a suit of armour, every movement is heavy and very limited.
  3. Thread: upstairs

    by jen
    Replies
    11
    Views
    6,507

    hi paul have been using stairlift for 5 years...

    hi paul
    have been using stairlift for 5 years and am continuing to do so for as long as possible. On bad days I transfer onto the computer chair to get to the bedroom, although the ot and physio...
  4. Thread: Living or Dying?

    by jen
    Replies
    16
    Views
    8,253

    I regard myself as one of the fortunate ones. My...

    I regard myself as one of the fortunate ones. My deterioration also seems to have slowed. Although when tired my speech is more difficult to understand. Most of the time I am grateful for the slow...
  5. Thread: Cough assist

    by jen
    Replies
    9
    Views
    7,864

    I am going to get the machine on Monday. As I...

    I am going to get the machine on Monday. As I understand it because the muscles aren't strong enough for an effective cough.
  6. Thread: 1st Anniversary

    by jen
    Replies
    24
    Views
    14,226

    When my date comes round I think I'm still here...

    When my date comes round I think I'm still here and plan to do more this year than I did last year!
  7. Thread: MND Kids club

    by jen
    Replies
    17
    Views
    7,826

    I think this is an excellent idea. As many adults...

    I think this is an excellent idea. As many adults have difficulty understanding the impact of living with MND it would be good for the kids not having to explain what it is. I would encourage my kids...
  8. Thread: How is everyone?

    by jen
    Replies
    15
    Views
    6,367

    Count me in!

    Count me in!
  9. Thread: pancriatitas

    by jen
    Replies
    3
    Views
    3,257

    pancriatitas

    I have just spent a week in hospital with pancriatius. Doctor questioning link to riluzole.
    Much better and still taking it.

    Anyone any thoughts?
  10. Replies
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    2,183

    feeding difficulties

    Anyone know of an alternative to the neater eater?

    I am having difficulty getting the food from the plate to mouth. I am not optimistic that in ss will fund it!
  11. Thread: 24 hr care funding

    by jen
    Replies
    8
    Views
    9,135

    I receive four hours a week to help get me up and...

    I receive four hours a week to help get me up and showered. This is all we need at the moment but that will change. We use the direct payments which works for us.
  12. Thread: Kindle

    by jen
    Replies
    5
    Views
    2,869

    I also use the kindle on pc. It is great to be...

    I also use the kindle on pc. It is great to be able to lose yourself in a good book.

    Anyone got any recommendations?
  13. Thread: Cough assist

    by jen
    Replies
    9
    Views
    7,864

    thank you for all the comments. They all sound...

    thank you for all the comments. They all sound positive about this piece of equipment.
  14. Thread: Cough assist

    by jen
    Replies
    9
    Views
    7,864

    Cough assist

    I saw my respiratry consultant yesterday. He has recommended a cough assist machine. Has anyone any experience with one?
  15. Replies
    24
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    11,461

    thanks robyn

    thanks robyn
  16. Replies
    24
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    11,461

    anyone know if you can use a switch with the ipad...

    anyone know if you can use a switch with the ipad as my fine motor skills are none existant. I can't even hold a stylus!
  17. Replies
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    11,461

    does not shut the kids up but I can turn back...

    does not shut the kids up but I can turn back when they turnover!
  18. Replies
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    11,461

    I was referred to the assistive technology...

    I was referred to the assistive technology service at fazakerly hospital by prof. Now tv, lights, phone and front door all controlled by one button. Still looking for something to deliver tea and...
  19. Hi everybody I have had my Grid software and my...

    Hi everybody
    I have had my Grid software and my switch for 6 months now and has totally given me so much independence. I have full internet, music kindle and mobile phone all by switch. I also got...
  20. Replies
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    7,321

    I knew there was some benefit to being overweight!

    I knew there was some benefit to being overweight!
  21. Thread: young carers

    by jen
    Replies
    2
    Views
    2,717

    young carers

    does anyone have any contact with any agencies and if so what do they offer?
  22. Replies
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    12,179

    when diagnosed in 2005 I thought about all the...

    when diagnosed in 2005 I thought about all the things I would never get to do with the kids. However over the past 5 years we have done lots including Disneyland, everything just needs a bit more...
  23. Thread: Ex-wife

    by jen
    Replies
    10
    Views
    4,908

    hi My children were only 7,6,3&1 when I was...

    hi
    My children were only 7,6,3&1 when I was diagnosed in 2005.At first we only told them that mummys arms and legs don't work and arnt going to get better. As time has gone on they have asked and...
  24. Thread: twitter

    by jen
    Replies
    5
    Views
    2,961

    twitter

    does anyone use twitter?
    im just getting the confidence to use the technology!
    im @wheelchairwonde.
  25. Thread: easyjet

    by jen
    Replies
    0
    Views
    1,686

    easyjet

    just returned from week in majorca with colin and the kids. I was a bit worried about the flight but the assistance and service from easyjet was great. I am going to do the moonlight walk on Saturday...
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