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  1. Replies
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    Hi Carrie, Sorry you have all those symptoms...

    Hi Carrie,

    Sorry you have all those symptoms but they don't sound like MND symptoms at all.

    Hopefully the Neurologist will quickly get to the root of your issue.

    Best wishes.

    Love Ellie.
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    Andy, I found after about month 2-3, my pain...

    Andy, I found after about month 2-3, my pain reduced dramatically - I used to get neck, shoulder and T-spine pain.

    Love Ellie.
  3. Thread: New

    by Ellie
    Replies
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    11,234

    Hi Jo Jo, I'm sorry you're chasing your tail...

    Hi Jo Jo,

    I'm sorry you're chasing your tail and understand how you are exhausted.

    Tbh, I don't understand why your partner's Neurologist refuses to elaborate as to which form of MND he has,...
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    Sorry Tot, I should have been more specific - ...

    Sorry Tot, I should have been more specific - some hospitals have multidiscipline MND Clinics where not only are the Neurologists specialists in MND, but the Clinics are one stop shops, where we...
  5. Thread: Stomach problem?

    by Ellie
    Replies
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    750

    Happy to hear that Douglas seems to be more...

    Happy to hear that Douglas seems to be more comfortable.

    Thanks for reminding us about Dioralyte, Chrissie - it can be really useful.

    I wonder if a month on a good probiotic would help him? ...
  6. Thread: trimetazidine

    by Ellie
    Replies
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    170

    No details yet on this trial, Timm - it says...

    No details yet on this trial, Timm - it says it's expected to start in about 6 months.

    You can keep an eye on any trial using this site: https://clinicaltrials.gov/ct2/home
  7. Thread: PEG Advice

    by Ellie
    Replies
    42
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    12,168

    Hi Hayls, Given that the nasty infections and...

    Hi Hayls,

    Given that the nasty infections and bacteria have been ruled out for you, some possible causes are:



    You're actually still partly constipated with old impacted poo which needs to...
  8. Thread: New Guy :)

    by Ellie
    Replies
    9
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    1,471

    Hi Beemer, Sorry you've having to sell your...

    Hi Beemer,

    Sorry you've having to sell your beloved bikes.

    Re trousers: I know you're only a young 62yo, chap but many places sell perfectly good pull-on trousers and they aren't all 'old...
  9. Thread: Diagnosis

    by Ellie
    Replies
    3
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    333

    Hi Rubyray, Sorry to hear your mam is having...

    Hi Rubyray,

    Sorry to hear your mam is having balance problems and dizziness.

    Balance problems are unfortunately pretty common with MND (attributable to upper motor neuron damage) but not so...
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    Hi Tot, In assocaiation with clinical...

    Hi Tot,

    In assocaiation with clinical findings, the findings of note regarding an EMG test for ALS/MND are :
    Evidence of chronic neurogenic change.
    Evidence of acute denervation.

    Do you...
  11. Replies
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    I am sorry you are so anxious, Nigel - it must...

    I am sorry you are so anxious, Nigel - it must be difficult for you to sit back and think about other things.

    I really think you should see your GP, please make an appointment so you can discuss...
  12. Replies
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    Tot, if the Neurologist is not an MND Specialist,...

    Tot, if the Neurologist is not an MND Specialist, you can always get a 2nd opinion at an MND Clinic which might give a clearer picture. I'm sorry you are in this "Is it or isn't it?" category.
    ...
  13. Replies
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    When you say you got a "probable" diagnosis, Tot,...

    When you say you got a "probable" diagnosis, Tot, what was it exactly - probale what?

    Some of your symptoms are not ALS/MND symptoms and twitching can be benign or point to a host of other...
  14. Thread: TV programme

    by Ellie
    Replies
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    452

    Yes and the patient featured had a 6 month...

    Yes and the patient featured had a 6 month hospital stay following a trache whilst waiting for his care package to be sorted.

    https://www.bbc.co.uk/programmes/m000fjg7

    Love Ellie.
  15. Email Notification of New Private Messages Has Stopped Working.

    This function is currently not working​ - it was working at 10.13 yesterday but had stopped working by 15.15 and was not working at 12.00 today.

    I checked my Settings and this option is still...
  16. Replies
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    Glad to hear at least some of your pain has...

    Glad to hear at least some of your pain has subsided, Terry.

    Love Ellie.
  17. Replies
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    34,712

    Congrats on (finally!!) upgrading your desktop...

    Congrats on (finally!!) upgrading your desktop PC, Doug and successfully transferring your files - hope you can find them all now ;);)

    Hopefully you'll find Windows 10 better and easy to...
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    Woohoo Andy ! Everything crossed for hassle...

    Woohoo Andy !

    Everything crossed for hassle free completion.

    Love Ellie.
  19. Replies
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    B, his local hospice might offer him counselling,...

    B, his local hospice might offer him counselling, as well as providing other services not only for your dad, but for the family too.

    And please don't think of hospices as just places to go for...
  20. Replies
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    Hi B and a warm welcome to the Forum. So sorry...

    Hi B and a warm welcome to the Forum.

    So sorry for your dad's diagnosis.

    I guess we all deal differently with the bombshell of the diagnosis of MND - some people dive right in and start...
  21. Replies
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    Thanks.

    Thanks.
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    Welcome to the Forum, Mango. Sorry to hear of...

    Welcome to the Forum, Mango.

    Sorry to hear of your mother's diagnosis.

    If you don't hear about the nature of the CHC care package within the next few days, chase it up - the sooner it's in...
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    Hope you are all safe there, Sarah, and the WAV...

    Hope you are all safe there, Sarah, and the WAV isn't floating off down the street !!

    Love Ellie.
  24. Thread: ALS for Dummies

    by Ellie
    Replies
    2
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    486

    "You own the disease" I couldn't agree more,...

    "You own the disease"

    I couldn't agree more, Shaun.

    Because keeping positive is SO important, taking ownership and control of our MND is empowering - and that includes being confident enough...
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    Hi Admin, Perhaps you could tell whoever sent...

    Hi Admin,

    Perhaps you could tell whoever sent you the survey that there is an error in its 'clickabililty'.

    Question 11:

    1120

    It asks the participant to click ALL applicable options but...
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