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  1. Thread: Voice Banking?

    by SarahWP
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    6
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    596

    Following on from what Doug said, depending how...

    Following on from what Doug said, depending how bad her speech is, she could have someone else record the sentences for her if they sound fairly similar. I myself recorded 70% of mine and my wife...
  2. Thread: At peace now.

    by SarahWP
    Replies
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    1,029

    I’m so sorry to hear this. Sending you and your...

    I’m so sorry to hear this. Sending you and your family love and condolences. Sarah xx
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    Haven’t been out in the WAV yet - we’ve had non...

    Haven’t been out in the WAV yet - we’ve had non stop visitors the last couple of days but plan to get out and about this weekend!

    Sarah xx
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    Thanks Ellie, I’m hanging on to this belief...

    Thanks Ellie, I’m hanging on to this belief desperately as hearing my prognosis so starkly knocked me back somewhat. Even if it’s true tho, all the more reason to enjoy every day as much as possible....
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    Yes indeed, a wonderful attitude. And you’re dead...

    Yes indeed, a wonderful attitude. And you’re dead right about appreciating the things we can still do. I had an appointment at the MND clinic today and was told, given the speed of my progression, my...
  6. Thread: She's Gone

    by SarahWP
    Replies
    14
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    1,505

    So sorry to hear this Chrissie. Sending you &...

    So sorry to hear this Chrissie. Sending you & your family much love at this painful time.

    Sarah xx
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    Oh dear, not our best performance! But we don’t...

    Oh dear, not our best performance! But we don’t mind losing to Ireland too much. :-)

    Na. I’m a Wales supporter through and through - & not just because Sue would probably divorce me if I wasn’t!...
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    Hi Ellie I was just thinking of you, funnily...

    Hi Ellie

    I was just thinking of you, funnily enough- wondering if you’re watching the rugby?!

    Yes all went smoothly last night & I slept really well too so definitely think this is the way...
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    That’s a very kind offer but I’m in Wales &...

    That’s a very kind offer but I’m in Wales & you’re in the US??
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    Thanks Doug - very wise and helpful words. I’ve...

    Thanks Doug - very wise and helpful words. I’ve always been pretty good at accepting change and getting on with things and would say I was also for the first few months into the MND. It’s only...
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    Ellie - you have every right to doubt Sue’s maths...

    Ellie - you have every right to doubt Sue’s maths don’t worry - she’d readily admit!! But she followed instructions so it should have been right. Your point about the previous feed not having cleared...
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    Hmmm....I struggled with the Jack Daniels and in...

    Hmmm....I struggled with the Jack Daniels and in fact with swallowing drinks in general. Might have to resort to having via syringe into my PEG!

    Apparently my wheelchair shouldn’t tip as it has 6...
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    Sorry about the radio silence, it’s been a...

    Sorry about the radio silence, it’s been a full-on couple of days.

    Sheila, re carers, at the moment my carers are from the Community Resource Team and we’re not paying. These were put in place as...
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    Thank you everyone for you encouraging words and...

    Thank you everyone for you encouraging words and very useful suggestions (great ideas, Broostine93 & Ellie, thanks!). And apologies for not having responded sooner but my worst nightmare happened...
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    Hi Sheila I’m so sorry things are getting...

    Hi Sheila

    I’m so sorry things are getting worse for you too - it’s scary isn’t it when you can feel things slipping away - yet again. I’m struggling to adjust, physically and emotionally, and also...
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    Thanks Terry I’m sorry you’re struggling too....

    Thanks Terry

    I’m sorry you’re struggling too. We’ve just had hoists installed but my wife can’t manage them on her own. I have carers coming in but they obviously can’t be here every time I need...
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    Positive strategies & inspiration needed

    As some of you know I was diagnosed in August last year (2019), aged 50, and since then my progression has been pretty rapid. I can barely walk a just few steps with a zimmer, am rapidly losing...
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    Thanks so so much everyone! I honestly didn’t...

    Thanks so so much everyone! I honestly didn’t share it for the compliments (tho I’ll admit they’re very nice!). Feel free to use it/share with your loved ones as you wish, I’m not precious about it....
  19. The Gift Of Now - a poem i wrote for my wife and carer

    Good evening all

    I wrote a poem recently for my wife, and main carer, in an attempt to express how much i appreciate and love her for all that she does. She has encouraged me to share it with...
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    The Gift Of Now - a poem wot i wrote

    Evening all

    I wrote a poem for my wife recently, which she has been pestering me to share - and which MNDA will be publishing in Thumbprint in April. So in the hope that you might enjoy it too,...
  21. Thread: Terry

    by SarahWP
    Replies
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    11,465

    So sorry to hear this. Not what anyone needs on...

    So sorry to hear this. Not what anyone needs on top of everything else. Wishing him a speedy recovery and hope he gets excellent care.

    Love,
    Sarah
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    I intend to Sheila! The caravan itself is plenty...

    I intend to Sheila! The caravan itself is plenty spacious enough for my chair, just need to sort access to the deck but should be doable by laying tracking across the grass in front of it - as long...
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    ooh yes the sand on the beaches we go to is...

    ooh yes the sand on the beaches we go to is compact so i'll look into tramper options- thank you!
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    Thanks both. Having seen the ones in the...

    Thanks both. Having seen the ones in the Disability Horizons article Kayleigh mentions above, i must admit i have some concerns about getting onto and, more the point, back up from one of these. But...
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    Beach wheelchairs

    Does anyone have any experience of using beach-accessible wheelchairs? We have a caravan in a West Wales which we bought a couple of years ago (pre diagnosis), principally for walking our beloved...
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