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Type: Posts; User: Wailywoo

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  1. Replies
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    Contrary

    Hi Ellie,

    I am loving that you are finding it funny that my hubby is contrary to some others, and it seems I have company with Polly there too. Donít get me wrong, he does get a little frustrated...
  2. Thread: First visit

    by Wailywoo
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    Hi Polly, We experienced exactly the same...

    Hi Polly,

    We experienced exactly the same overwhelming information / advice about what interventions might be necessary. The PEG was the first and the most consistently advised intervention and...
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    Hi Gillette, Just thought, while I am on here...

    Hi Gillette,

    Just thought, while I am on here that hubby is getting weaker in the arms (already one leg not working at all and the other weakening) and has difficulty lifting his porridge bowl up...
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    Hi Ellie, Thank you so much for your reply. I...

    Hi Ellie,

    Thank you so much for your reply. I see that the dates are all in April about the Riluzole and our MND nurse has said it is not available after this....in May....

    When she phoned to...
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    Hospice referral

    Thank you so much for your replies. I see it was 11th April when the last reply was posted and 9th May was the first time our SLT mentioned the hospice and complementary therapies, which I should be...
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    Hi again, Thank you so much for your support...

    Hi again,

    Thank you so much for your support and kind words.

    No we haven’t had an offer of any other collar. The speech and language therapist came today and said that they now have to go...
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    Hello, Thank you to everyone who answered my...

    Hello,

    Thank you to everyone who answered my last post. I have had a bit of a meltdown over the last week or so, so sorry I haven't been back to thank everyone for their kind replies. Some useful...
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    Hubby getting worse

    Hello again,

    There are a few things I wanted to ask.

    Does anyone know of a place we could purchase a wheelchair for hubby? He is 6'2" and we are having difficulty finding one for his size....
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    Hello everyone who has replied to my post. I...

    Hello everyone who has replied to my post.

    I am so touched by all of the people who have had an input.

    Shiela, thank you for your input. It made me think something had possibly gone wrong with...
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    Thank you everyone, for your kind words and...

    Thank you everyone, for your kind words and advice. We will certainly try everything.

    Bless you all,

    Wailywoo
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    Husband diagnosed on 16th January

    New to this forum....

    Hubby was diagnosed, after several tests, as having MND. They are still doing several other tests to rule out anything else causing his troubles, but he seems to be getting...
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