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  1. Replies
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    Hi Gillette, Lynne, MMW: there is a Holidays...

    Hi Gillette, Lynne, MMW: there is a Holidays thread on here that might help you with choices etc x Not saying they’ll be cheap - being disabled is an expensive business!
    Boiler x
  2. Thread: bereavment

    by Boiler68
    Replies
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    6,178

    Deepest condolences to you Liz. I hope you have...

    Deepest condolences to you Liz. I hope you have people to take care of you.
    Sending you love and hugs x
    Boiler x
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    Hi Gillette. Welcome to the forum. My husband is...

    Hi Gillette. Welcome to the forum. My husband is under Salford Royal too..he started off with John Ealing for a few years, then Mr Hamdallah and now Amina Chaouch. You’ll find lots of support and...
  4. Thread: Fed up

    by Boiler68
    Replies
    74
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    7,779

    Hello Pink..just wanted to wish you a speedy...

    Hello Pink..just wanted to wish you a speedy recovery from your chest infection (it’s been on the rampage in our household too!) and that I sincerely hope you can make your son’s wedding next week....
  5. Thread: RIP, Rumba

    by Boiler68
    Replies
    6
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    1,804

    Sincere condolences to you Terry. I hope you're...

    Sincere condolences to you Terry. I hope you're alright. Please pass on my sympathy to Andrea's family Xx
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    Halifax are good too. I mainly do my husband's...

    Halifax are good too. I mainly do my husband's banking online for him but now and again they will challenge a transaction (to stop fraudulent activity) and we have to ring in as they know his...
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    Hi Pen Not been on for a while so only just...

    Hi Pen

    Not been on for a while so only just seen you're leaving us. Thank you for sharing your experiences with us. I know it was difficult at times.
    Best wishes to you as you journey forward....
  8. Thread: Baclofen

    by Boiler68
    Replies
    24
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    11,262

    Hi Terry He hasn't had a bad back like this...

    Hi Terry

    He hasn't had a bad back like this before where it makes him gasp and double up. I guess poor posture and sitting all day is a major factor. He said earlier it had eased off a bit but not...
  9. Thread: Baclofen

    by Boiler68
    Replies
    24
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    11,262

    Hello Barry, Ellie and Tiandb Thanks for your...

    Hello Barry, Ellie and Tiandb

    Thanks for your advice. I did ring the MND team at Salford today but it's not a phone that's manned all the time so we've not had a reply yet. Hopefully they'll catch...
  10. Thread: Baclofen

    by Boiler68
    Replies
    24
    Views
    11,262

    Hi folks My husband has ALS and although...

    Hi folks

    My husband has ALS and although reluctant to take medication he's recently started with amitriptyline for saliva control. Also takes rilozule. We've got a gp appointment on Monday. Can I...
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    Lovely Kayleigh xx Happy New Year to everyone...

    Lovely Kayleigh xx
    Happy New Year to everyone on the forum xx
  12. Thread: Laser therapy

    by Boiler68
    Replies
    8
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    1,859

    Hi Fru I've never heard of this. Look forward...

    Hi Fru

    I've never heard of this. Look forward to seeing if anyone has had experience of it.
    Happy New Year to you too. Xx
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    Hi Cleared now, thanks xx

    Hi

    Cleared now, thanks

    xx
  14. Replies
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    Hello everyone Thanks to all for the wonderful...

    Hello everyone

    Thanks to all for the wonderful support this last year. I hope each and every one of you has a positive, peaceful and happy New Year.
    Best wishes,
    Boiler x
  15. Thread: Sad news

    by Boiler68
    Replies
    19
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    3,112

    Hello Kernowmum Just wanted to offer my...

    Hello Kernowmum

    Just wanted to offer my condolences to you at this very sad time. I am sorry your husband has passed away.
    I too hope you have good support to help you through.
    Best wishes....
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    10,924

    Hi Becky I'm sorry to hear you are in a...

    Hi Becky

    I'm sorry to hear you are in a similar situation. My husband has nobody else who would step up to take care of him either (I would not want for any of our children to take this on full...
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    Hi Kayleigh Sorry I missed it! Thanks so much....

    Hi Kayleigh

    Sorry I missed it! Thanks so much. Yes Elvis was and still is the King. Particularly like his gospel music. What a voice.
    Thanks again. It really cheered me up.

    Have a lovely...
  18. Replies
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    Hi Believe I tried to send you a private...

    Hi Believe

    I tried to send you a private message but it won't send.
    Just wanted to let you know I'm thinking of you too and I wish you and your family a very happy, peaceful Christmas.
    Best...
  19. Replies
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    Hi Shrew and Believe I remember Ellie saying...

    Hi Shrew and Believe

    I remember Ellie saying those exact words about treading on eggshells a while ago but that's exactly what's it's like. You have to gauge the mood and time it right before you...
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    Hi Ellie Wishing you a lovely, happy Christmas...

    Hi Ellie

    Wishing you a lovely, happy Christmas in your new home. It sounds just perfect!
    Best wishes,
    Boiler x
  21. Thread: Boxes

    by Boiler68
    Replies
    17
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    4,017

    Hello Lynne I know how you feel about washing...

    Hello Lynne

    I know how you feel about washing your laundry out in public but of course you are right about the other side of it ie. that the carer can be the horrible one and the MND sufferer the...
  22. Thread: Boxes

    by Boiler68
    Replies
    17
    Views
    4,017

    Thinking of you today Pen. I hope Ezri gets the...

    Thinking of you today Pen. I hope Ezri gets the funeral she wanted/discussed with you. RIP x
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    Hi all Thank you for your messages. My husband...

    Hi all

    Thank you for your messages. My husband will not take anti depressants. I do zone out when he starts and will not make eye contact with him and I don't offer to help him - he has to ask...
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    Sorry to be so negative but I'm so tired I can...

    Sorry to be so negative but I'm so tired I can barely see straight. I do make allowances for the possibility that it is MND related and hold my tongue most times, especially if our children are...
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    Apparently I am a f****** idiot

    Yes that's what I have to deal with. This is the second time in 24 hours I have been called this. My crime? The first yesterday was because I dared to suggest that we drop a large parcel off at the...
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