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  1. Thread: Advice needed

    by Ellie
    Replies
    20
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    2,210

    Terry, If the Nurse can give you an LVR bag...

    Terry,

    If the Nurse can give you an LVR bag (Lung Volume Recruitment) for breath stacking, take it - they are pretty good for helping keep the lungs clear. LVR bag also called a modified...
  2. Thread: Balance

    by Ellie
    Replies
    2
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    70

    Carrie, I think your anxiety over MND is in...

    Carrie, I think your anxiety over MND is in danger of getting worse and worse so I wonder if it'd be a good idea to phone the MND Helpline and chat to someone about your fears? See the tab near the...
  3. Thread: Flail arm

    by Ellie
    Replies
    28
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    6,238

    Egads, nooo!! Just been around a long time and...

    Egads, nooo!!

    Just been around a long time and I am only in the halfpenny league compared to Terry :D:D:D
  4. Thread: Flail arm

    by Ellie
    Replies
    28
    Views
    6,238

    Great, I was just making sure you wouldn't be...

    Great, I was just making sure you wouldn't be left hanging !!
  5. Thread: Flail arm

    by Ellie
    Replies
    28
    Views
    6,238

    Hi DD, Have you alternative ways of using your...

    Hi DD,

    Have you alternative ways of using your PC/tablet given your arm & hand weakness?

    Love Ellie.
  6. Replies
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    84

    Way to go, Barry - just don't do a BoJo on it ...

    Way to go, Barry - just don't do a BoJo on it :D:D

    Love Ellie.
  7. Thread: Advice needed

    by Ellie
    Replies
    20
    Views
    2,210

    Yes, Hyoscine reduces saliva production so you...

    Yes, Hyoscine reduces saliva production so you won't swallow as muce saliva, meaning the sticky mucus could get thicker - you'd need to substantially increase your water intake.

    Of course the GP...
  8. Thread: Stomach problem?

    by Ellie
    Replies
    12
    Views
    1,054

    Oh Chrissie, I am so sorry. I feel so...

    Oh Chrissie, I am so sorry.

    I feel so useless in that all I can offer is a big virtual hug.

    We all wish Doug the best.

    Love Ellie.
  9. Replies
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    534

    Carrie, I can assure you that nobody is diagnosed...

    Carrie, I can assure you that nobody is diagnosed with ALS solely on the basis of twitching, no matter what you read.

    You should be reassured that you have been examined by a Neurologist and you...
  10. Thread: Advice needed

    by Ellie
    Replies
    20
    Views
    2,210

    Yes, the nebuliser doesn't work so well when it's...

    Yes, the nebuliser doesn't work so well when it's in the cupboard ;)

    Both pineapple and papaya juice cut through thick mucus.

    Hope you can thin it and get relief.

    Love Ellie.
  11. Thread: Stomach problem?

    by Ellie
    Replies
    12
    Views
    1,054

    Oh my days, you have both been through the mill!...

    Oh my days, you have both been through the mill!

    Are you any nearer to finding out what is causing Douglas' tummy to swell like it is?

    Take care of yourself.

    Love Ellie.
  12. Thread: New to site

    by Ellie
    Replies
    6
    Views
    272

    Hi Jeremy and a warm welcome to the Forum. ...

    Hi Jeremy and a warm welcome to the Forum.

    Love Ellie.
  13. Replies
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    140

    Hey Sar, Congrats on starting the blog !! ...

    Hey Sar, Congrats on starting the blog !!

    Looking forward to reading more, as and when.

    Love Ellie.
  14. Replies
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    422

    Hi Arta, Sorry you've had to join the Forum...

    Hi Arta,

    Sorry you've had to join the Forum but a warm welcome to you nonetheless.

    I know it's easier said than done but do try and focus on your day-to-day life as it is, and not just on the...
  15. Thread: Advice needed

    by Ellie
    Replies
    20
    Views
    2,210

    Sorry you're having this problem, Terry. ...

    Sorry you're having this problem, Terry.



    Carbocisteine is a mucolytic agent for the adjunctive therapy of respiratory tract disorders characterized by excessive, viscous mucus, including...
  16. Replies
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    534

    Hi Carrie, Sorry you have all those symptoms...

    Hi Carrie,

    Sorry you have all those symptoms but they don't sound like MND symptoms at all.

    Hopefully the Neurologist will quickly get to the root of your issue.

    Best wishes.

    Love Ellie.
  17. Replies
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    10,051

    Andy, I found after about month 2-3, my pain...

    Andy, I found after about month 2-3, my pain reduced dramatically - I used to get neck, shoulder and T-spine pain.

    My leg spasticity has reduced to a level where I've had to lower my dose of...
  18. Thread: New

    by Ellie
    Replies
    51
    Views
    11,514

    Hi Jo Jo, I'm sorry you're chasing your tail...

    Hi Jo Jo,

    I'm sorry you're chasing your tail and understand how you are exhausted.

    Tbh, I don't understand why your partner's Neurologist refuses to elaborate as to which form of MND he has,...
  19. Replies
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    1,110

    Sorry Tot, I should have been more specific - ...

    Sorry Tot, I should have been more specific - some hospitals have multidiscipline MND Clinics where not only are the Neurologists specialists in MND, but the Clinics are one stop shops, where we...
  20. Thread: Stomach problem?

    by Ellie
    Replies
    12
    Views
    1,054

    Happy to hear that Douglas seems to be more...

    Happy to hear that Douglas seems to be more comfortable.

    Thanks for reminding us about Dioralyte, Chrissie - it can be really useful.

    I wonder if a month on a good probiotic would help him? ...
  21. Thread: trimetazidine

    by Ellie
    Replies
    2
    Views
    222

    No details yet on this trial, Timm - it says...

    No details yet on this trial, Timm - it says it's expected to start in about 6 months.

    You can keep an eye on any trial using this site: https://clinicaltrials.gov/ct2/home
  22. Thread: PEG Advice

    by Ellie
    Replies
    42
    Views
    12,311

    Hi Hayls, Given that the nasty infections and...

    Hi Hayls,

    Given that the nasty infections and bacteria have been ruled out for you, some possible causes are:



    You're actually still partly constipated with old impacted poo which needs to...
  23. Thread: New Guy :)

    by Ellie
    Replies
    9
    Views
    1,572

    Hi Beemer, Sorry you've having to sell your...

    Hi Beemer,

    Sorry you've having to sell your beloved bikes.

    Re trousers: I know you're only a young 62yo, chap but many places sell perfectly good pull-on trousers and they aren't all 'old...
  24. Thread: Diagnosis

    by Ellie
    Replies
    3
    Views
    391

    Hi Rubyray, Sorry to hear your mam is having...

    Hi Rubyray,

    Sorry to hear your mam is having balance problems and dizziness.

    Balance problems are unfortunately pretty common with MND (attributable to upper motor neuron damage) but not so...
  25. Replies
    11
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    1,110

    Hi Tot, In assocaiation with clinical...

    Hi Tot,

    In assocaiation with clinical findings, the findings of note regarding an EMG test for ALS/MND are :
    Evidence of chronic neurogenic change.
    Evidence of acute denervation.

    Do you...
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