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  1. Thread: This forum

    by Deb
    Replies
    20
    Views
    973

    Oh Iron will, I really hope you get sorted with...

    Oh Iron will, I really hope you get sorted with eye gaze soon ! I cant imagine how frustrating it must be !

    Love Debbie x
  2. Thread: This forum

    by Deb
    Replies
    20
    Views
    973

    Thank you for starting this thread Matthew. Hope...

    Thank you for starting this thread Matthew. Hope you're having a good day and are able to enjoy the sunshine.

    As Miranda pointed out there was a recent post on how quiet the forum had been...
  3. Thread: Lost

    by Deb
    Replies
    23
    Views
    1,266

    Oh Jackie... what a nightmare for you both. It...

    Oh Jackie... what a nightmare for you both. It must have been heartbreaking to have Andy's diagnosis and have it changed and then eventually confirmed. It must have had a huge impact on you...
  4. Thread: Lesson learned

    by Deb
    Replies
    3
    Views
    239

    Oh no ! That's awful! Hope your mouth is OK and...

    Oh no ! That's awful! Hope your mouth is OK and not burnt , Matthew.
  5. Replies
    4
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    412

    I really hope you find new, soft foods that you...

    I really hope you find new, soft foods that you can eat , that are also tempting Matthew. It's so hard to give up your favourite food !

    I can still eat most foods albeit slowly. I have developed...
  6. Replies
    405
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    48,029

    It is surprising what we celebrate although I...

    It is surprising what we celebrate although I initially read this as mashed potato in yogurt ! Hmm!

    My good thing this week has been sitting in the sunshine. It was my husband's birthday...
  7. Thread: Motability

    by Deb
    Replies
    11
    Views
    727

    Hi Breemer , We have a Peugeot Horizon...

    Hi Breemer ,

    We have a Peugeot Horizon provided by Allied mobility, under the motability scheme. We could have two named drivers on the insurance so one is my husband and the other our eldest...
  8. Thread: Progression

    by Deb
    Replies
    5
    Views
    410

    Hi Matthew, As Lynne said, progression is...

    Hi Matthew,

    As Lynne said, progression is different for everyone and almost impossible to predict. When I first met my MND nurse she said that everyone she knew with MND was on a different...
  9. Replies
    10
    Views
    1,077

    Hi Matthew and a warm welcome to the forum from...

    Hi Matthew and a warm welcome to the forum from me !

    I am very sorry for your recent diagnosis and that you're losing your voice. It's good you've found the forum because it's a good place for...
  10. Replies
    4
    Views
    451

    I've signed it. So sorry for your problems...

    I've signed it.

    So sorry for your problems music man 's wife. It sounds very difficult.

    Love Debbie x
  11. Replies
    15
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    592

    Hi Haylis and Kate, As Ellie said theres...

    Hi Haylis and Kate,

    As Ellie said theres definitely no such thing as giving up too soon. I think us folks with MND are the opposite and tend to persevere with things until they are becoming...
  12. Thread: Feeling Brave

    by Deb
    Replies
    12
    Views
    1,254

    Welcome to the forum Tess and well done for...

    Welcome to the forum Tess and well done for taking this step and being brave.

    I am so sorry for your boyfriend's diagnosis. It's such a shock even if it is expected. I remember feeling totally...
  13. Replies
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    1,992

    Hello Andrew and a warm welcome to the forum. ...

    Hello Andrew and a warm welcome to the forum.

    I am so sorry for your diagnosis this morning but well done for posting on here so soon. Even if an MND diagnosis is suspected it's still a huge...
  14. Thread: Tips for dressing

    by Deb
    Replies
    9
    Views
    1,265

    Hi Sarah and a warm welcome to the forum from me....

    Hi Sarah and a warm welcome to the forum from me.

    I am so sorry for your mums diagnosis and that she is having such problems. It must be heartbreaking for you both.

    It's good that she's...
  15. Replies
    405
    Views
    48,029

    That's great news Doug and I am glad you're...

    That's great news Doug and I am glad you're feeling better,

    I have a salsa mini chair like yours and it is comfortable enough for me to spend all day in and transfer to my riser recliner in the...
  16. Replies
    12
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    1,716

    Hello David and welcome to our friendly forum. ...

    Hello David and welcome to our friendly forum.

    I am very sorry for your diagnosis.. It took me a while to come to terms with mine and it must make it especially difficult for you during this...
  17. Thread: Moving house

    by Deb
    Replies
    9
    Views
    1,212

    That's great news Andy, Good Luck .. hope...

    That's great news Andy,

    Good Luck .. hope everything goes well for you. Take Care and try not to do too much. .

    Love Debbie
  18. Thread: Als

    by Deb
    Replies
    11
    Views
    2,969

    Hi Puddy, I am so sorry that Nigel's...

    Hi Puddy,

    I am so sorry that Nigel's progression has been so swift. I am not a carer but I appreciate how utterly heartbreaking it must be to see your husband struggling. It's good you are able...
  19. Replies
    14
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    1,804

    Hi Doug, So sorry you've been noticing...

    Hi Doug,

    So sorry you've been noticing changes. I agree how sneaky MND is ( that's a polite word !) .. We are looking for changes we expect and an then unexpected one crops up. I cant turn In bed...
  20. Thread: Hip pain

    by Deb
    Replies
    6
    Views
    1,240

    Hi Mowbray, I am sorry you have hip pain. Life...

    Hi Mowbray,

    I am sorry you have hip pain. Life is hard enough with MND so I do hope you get to the bottom of what's causing it.

    I dont know if this is relevant to you but I had really bad hip...
  21. Thread: Hello

    by Deb
    Replies
    8
    Views
    1,286

    Hi Elvisfan and a warm welcome to the forum from...

    Hi Elvisfan and a warm welcome to the forum from me.

    I am so sorry for your diagnosis but I'm glad you've found the forum as it's a good place for friendship and support. I was a primary school...
  22. Thread: Please help

    by Deb
    Replies
    12
    Views
    1,903

    Hello Sarah, I am sorry you feel so scared and...

    Hello Sarah,

    I am sorry you feel so scared and anxious. I am no expert on bulbar onset as my mnd is limb onset but nothing I have seen or read sounds like what you're describing. As Ellie has...
  23. Replies
    30
    Views
    4,463

    Hi Lesley, So sorry to hear your mum's...

    Hi Lesley,

    So sorry to hear your mum's operation has been postponed. This must be so scary and upsetting for the both of you and I really hope she gets it done soon.

    In the meantime, I hope...
  24. Replies
    30
    Views
    4,463

    Hi David and a warm welcome to our friendly forum...

    Hi David and a warm welcome to our friendly forum from me.

    I am so sorry for your diagnosis last year but thank you for your positive posts about your RIG. It's really reassuring to read this and...
  25. Hello and a warm welcome to the forum, I am...

    Hello and a warm welcome to the forum,

    I am so very sorry for your very sad post. How you feel is totally understandable and it must feel impossible for you at the moment. I am sure there must...
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