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  1. Thread: Motability

    by Lynne K
    Replies
    4
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    92

    Hi Beemer, there is an option for you to buy...

    Hi Beemer, there is an option for you to buy second hand if you can afford it. Well looked after WAVs tend to be sold on. They come up regularly of different years, mileage and manufacture. If...
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    Thanks for your reply Hayls and good luck with...

    Thanks for your reply Hayls and good luck with your op’ happening quickly and safely, love Lynne x
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    Hayls, Kate, Deb and Ellie, I too have been...

    Hayls, Kate, Deb and Ellie, I too have been thinking what to do in a similar situation that is looming. I’ve always tried to be one step ahead of my needs, but this one is more difficult for me to...
  4. Thread: Progression

    by Lynne K
    Replies
    5
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    275

    Hi again Mathew, every mnd sufferer has a...

    Hi again Mathew, every mnd sufferer has a different journey but I can tell you my experience of leg stiffness (mine mainly lower legs). I’ve had stiffness in my lower legs for two years approximately...
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    Jo Jo, maybe needing a hoist is soon needed. If...

    Jo Jo, maybe needing a hoist is soon needed. If you’re struggling now it would be of use. A sit to stand one would probably do the job. Other people on the forum know more about this subject than me...
  6. Thread: Feeling Brave

    by Lynne K
    Replies
    12
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    1,048

    You’re welcome Tess. Good luck, Lynne x

    You’re welcome Tess. Good luck, Lynne x
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    Hi Mathew, welcome to our forums. I’m sorry about...

    Hi Mathew, welcome to our forums. I’m sorry about your recent diagnosis and that you’ve lost your voice. Do you have anybody’s in your family with a similar voice to you? If so, would they be...
  8. Thread: Breathing

    by Lynne K
    Replies
    4
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    418

    Hi Arta, I don’t know how to translate your...

    Hi Arta, I don’t know how to translate your results but I wanted to send you my thoughts and best wishes. Are you still doing breath stacking? I ought to get back to it. I hope that you can hold on...
  9. Thread: Feeling Brave

    by Lynne K
    Replies
    12
    Views
    1,048

    Hi Bilvers, welcome and good luck for your up and...

    Hi Bilvers, welcome and good luck for your up and coming hospital appointment. I was surprised to hear that there’s appointments being had during this pandemic but maybe first appointments have been...
  10. Thread: Feeling Brave

    by Lynne K
    Replies
    12
    Views
    1,048

    Hi Tess, welcome. I’m sorry too for your...

    Hi Tess, welcome. I’m sorry too for your boyfriends diagnosis. It must be hard for you both. In a few weeks it’ll probably be a little easier for you since you’ll both have time to come to terms with...
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    Hi Stonehengeman, welcome aboard. You are lucky...

    Hi Stonehengeman, welcome aboard. You are lucky getting to 80ish before mnd took hold of you. But it’s horrid still. You mentioned losing your voice. Did you manage to bank your voice? If not, is...
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    Wow David that’s great. Please let me know how...

    Wow David that’s great. Please let me know how your voice works with Acapela and Prologue4Go, also how much Acapela charges you when you find out. Thanks, Lynne
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    Hi Jor, I saw your message yesterday but thought...

    Hi Jor, I saw your message yesterday but thought that I wasn’t qualified to respond. It’s good that Rachel from MND Connect has replied to you. I hope that you get some answers about your symptoms...
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    Hi David R, I have only had a few short tries...

    Hi David R, I have only had a few short tries with Predictable. The last time was several weeks ago. I remember some frustration not being able to correct individual letters, having to delete from...
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    Hi David B, welcome to our forums. I too am sorry...

    Hi David B, welcome to our forums. I too am sorry about your diagnosis. It’s smashing that you’ve had offers of support during lock down and beyond. It does shake us to our core when we hear those...
  16. Thread: Ivan

    by Lynne K
    Replies
    11
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    1,156

    Hi Ivan, I’m sorry about Alisons diagnosis. I see...

    Hi Ivan, I’m sorry about Alisons diagnosis. I see that you’ve had good advice already so I won’t bore you. I’ve heard that people who have MND struggle to keep on weight. That isn’t my experience so...
  17. Thread: Advice needed

    by Lynne K
    Replies
    4
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    673

    Hi Josh, welcome to our forums. I’m sorry about...

    Hi Josh, welcome to our forums. I’m sorry about your grandad’s diagnosis. It is a big worry for family and friends. I hope that your granddad has all the help and support that he needs.

    I’m sorry...
  18. Thread: Moving house

    by Lynne K
    Replies
    9
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    1,102

    Hi Andy, that’s great news. I hope that all goes...

    Hi Andy, that’s great news. I hope that all goes well and that your movers put all of your furniture and boxes exactly where they’re need so it’ll be easier for you and whoever is doing the...
  19. Thread: Cutlery

    by Lynne K
    Replies
    1
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    440

    Cutlery

    I am struggling a bit using my knife in my right, dominant hand. I bought a light weight steak knife about eighteen months ago and that has done well by making it easier to cut things up. But the...
  20. I’m sorry that you and your mum are struggling. I...

    I’m sorry that you and your mum are struggling. I hope that either you or your mum get a genetic test, mum preferably. It does sound to me that you have a neurological condition. But I’m not...
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    Hi Piglet, from another scoucer. I know the...

    Hi Piglet, from another scoucer. I know the Walton Centre well. I used to attend pain management appointments (including tests) there many years ago. I didn’t know that they have an MND Clinic. I...
  22. Thread: Hello

    by Lynne K
    Replies
    8
    Views
    1,194

    Hi Elvisfan, what a cool moniker :) How much of...

    Hi Elvisfan, what a cool moniker :) How much of an Elvis fan are you? Have you traveled?

    Welcome to our forums and sorry that you’ve had to join us on this horrid MND journey. But you sound very...
  23. Thread: Hi

    by Lynne K
    Replies
    10
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    2,077

    Hi Diddly, welcome to our forums. Sorry that...

    Hi Diddly, welcome to our forums. Sorry that you’ve had to join us on the journey that none of us want to be on. It sure must have been an enormous shock for you and your loved ones to hear this...
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    Good morning a Peanut and Sue. Peanut, I’m...

    Good morning a Peanut and Sue.

    Peanut, I’m sorry that you’ve had to join us on this horrid journey. We all seem to have a bit (or a lot) of trouble getting our initial diagnosis. I was first sent...
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    Hi GG, welcome. It’s great that you have friends...

    Hi GG, welcome. It’s great that you have friends coming in to help. I too hope that Covid 19 gets sorted so that we can all go out in our wheelchairs. I’d write more but my meal is ready. I prepared...
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