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Type: Posts; User: Jo jo

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  1. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    He had a flying visit from the OT but she said...

    He had a flying visit from the OT but she said she will come and see him again on the 7th. I will ask her who else should be involved and when they might come and see him. Just got back from the...
  2. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    How does he bank his voice

    How does he bank his voice
  3. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    My partner has started to have a groof voice is...

    My partner has started to have a groof voice is this part of his MND he also says he has a tickley cough. I hate MND.
  4. Thread: Glial cells

    by Jo jo
    Replies
    3
    Views
    663

    Wouldnít it be a miracle. I pray everyday for a...

    Wouldnít it be a miracle. I pray everyday for a cure 🙏🙏🙏🙏
  5. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    That looks like something that would really help...

    That looks like something that would really help Doug Thankyou
  6. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    It has 4 wheels, brakes and a storage seat

    It has 4 wheels, brakes and a storage seat
  7. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    How do I add a photo

    How do I add a photo
  8. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    Thankyou everyone I have managed to find one on...

    Thankyou everyone I have managed to find one on Facebook as new 40 pounds so Iím collecting it later. You are all such lovely helpful people especially when I have no one else to ask. He could have...
  9. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    Thanks Lynne I will ask them on the 18th when...

    Thanks Lynne I will ask them on the 18th when they come.
  10. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    Hi all, my partner has had his first fall today....

    Hi all, my partner has had his first fall today. Absolutely heartbreaking. Heís using crutches but heís finding it hard to lift his right leg as his foot folds under and trips him up. First OT...
  11. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    Received a call today from an OT to book first...

    Received a call today from an OT to book first appointment still no news from anyone else they said we would get a call on Monday just gone. O well atleast something is happening now.
  12. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    Thankyou Kayleigh all the best to you xx

    Thankyou Kayleigh all the best to you xx
  13. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    I have just spoken to a lovely lady on that...

    I have just spoken to a lovely lady on that contact number and she is going to get someone to call me on Monday. She said we should have heard something by now from the team. Thankyou for the advice.
  14. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    Thankyou Kayleigh I didnít know these advisers...

    Thankyou Kayleigh I didnít know these advisers were local I will contact them tomorrow. I thought someone would have contacted us.
  15. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    Does anyone know how long after diagnosis do you...

    Does anyone know how long after diagnosis do you get to see any specialists. My partner was diagnosed on 2.10.19 and we are still waiting to hear from what the consultant called a team he will have...
  16. Thread: Sick pay

    by Jo jo
    Replies
    2
    Views
    1,100

    Sick pay

    Is my partner who has MND better to stop working or go sick financially. I work.
  17. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    Thank you

    Thank you
  18. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    Is the twitching killing more muscle if itís more...

    Is the twitching killing more muscle if itís more rapid. Some days his whole body including his nose is constantly twitching.
  19. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    Thankyou everyone and thanks lynne for your...

    Thankyou everyone and thanks lynne for your advice. My partner is going to try and join this group tonight. Itís good to talk to people that know as heís been recently diagnosed we really donít know...
  20. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    What is voice banking

    What is voice banking
  21. Thread: New

    by Jo jo
    Replies
    48
    Views
    9,603

    New

    Hi my partner has just been diagnosed and we donít know anything about whatís going to happen. We are both so scared
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