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  1. Thread: Eye Gaze tech

    by ardalon
    Replies
    7
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    2,431

    Hi I use a tablett with the software Grid 3...

    Hi
    I use a tablett with the software Grid 3 provided by the company Talktools.

    ARDALON
  2. Thread: tracheostomy

    by ardalon
    Replies
    1
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    992

    tracheostomy

    During the mecanical ventilation secretions from the upper respiratory tract accumulate above the endotracheal tube cuff.The secretions mst be sucked off. A lady of my new nursing service says this...
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    Thank you Elli.The med is Mono Embolex. I have...

    Thank you Elli.The med is Mono Embolex. I have physiotherapy twice a week and ergotherapy once a week
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    thrombosis prophylaxis

    Hello
    My doctor suggested thrombosis prophylaxis because I'm lying / sitting in my hospital bed. Never heard that MND patients need it. Does anyone have experience with it?
  5. Thread: Happy Xmas

    by ardalon
    Replies
    9
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    2,898

    The church bells are ringing in our small village...

    The church bells are ringing in our small village in Germany. Merry Christmas and Happy New Year.
  6. Replies
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    2,105

    The same to you

    The same to you
  7. Thread: Christmas

    by ardalon
    Replies
    1
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    1,720

    Christmas

    Wishing you and your families a very Merry Christmas and may you all be blessed in 2018. Happy New Year.
  8. Thread: granuloma

    by ardalon
    Replies
    0
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    777

    granuloma

    There is something positive I have to report. I have a granuloma (proud flesh ) at my tracheostoma.We have applied Teatree oil (from the Ausralian Teatree ) for seven weeks and now it's nearly...
  9. Thread: Peg

    by ardalon
    Replies
    8
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    5,314

    Hi I don't know how it is in the States. I...

    Hi
    I don't know how it is in the States. I live in Germany. Got my peg a year ago. It was very easy. I went to hospital in the late morning.ThereI got a light sedation for 20 minutes. The surgery...
  10. Thread: Granuloma

    by ardalon
    Replies
    7
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    2,676

    Hi Terry thanks for your help.Got my...

    Hi Terry
    thanks for your help.Got my tracheostomy last Febuay. The granuloma is as big as two peas. It's at the edge of the tracheostomy.
    have a nice week
    Gudrun
  11. Thread: Granuloma

    by ardalon
    Replies
    7
    Views
    2,676

    Granuloma

    Hi,
    has anyone ever had a granuloma at the tracheostoma?
    If so, how was it removed? I'm worried.
  12. Replies
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    I I am a 64 year old woman from Germany and was...

    I I am a 64 year old woman from Germany and was diagnosed with ALS in2013. Can't move havea feeding tube and a Tracheostoma. If you would like to get more information please write an email
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    yes penpal would be great

    yes penpal would be great
  14. Replies
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    1,904

    emails someone interested?

    Hi, looking for someone to communicate with emails. I was diagnosed with ALS /MND in 2013 . If you are interested, please send me an email.
    my email address: gudrun.korn@sg-korn.de
  15. Thread: Peg

    by ardalon
    Replies
    4
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    3,852

    Hi, Thanks for your help!��

    Hi,
    Thanks for your help!��
  16. Thread: Peg

    by ardalon
    Replies
    4
    Views
    3,852

    Peg

    May I ask if it is possible to get PEG although I'm already using a Bipap?
  17. Thread: Genervon

    by ardalon
    Replies
    264
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    119,542

    I'm. here in Germany and cannot take part but...

    I'm. here in Germany and cannot take part but will have my fingers crossed . Hope lots of people will come.
  18. Thread: Genervon

    by ardalon
    Replies
    264
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    119,542

    My husband and me have signed, too. I hope...

    My husband and me have signed, too. I hope Genervon will ask the EMEA for accelerated approval as well.
  19. Thread: Natural Help

    by ardalon
    Replies
    88
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    46,587

    I agree with Springtime, Arda

    I agree with Springtime, Arda
  20. Replies
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    Yes, I also think it's somehow dobious, To me it...

    Yes, I also think it's somehow dobious, To me it sounds very strange.
    Arda
  21. Replies
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    Wishing a blessed Christmas to you all together...

    Wishing a blessed Christmas to you all together with your loved ones and every good fortune and strength as much as you need for 2015. Arda
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    Hi Marieline, how do you use it?

    Hi Marieline, how do you use it?
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    5,357

    Thank you CC for your encouraging words. Every...

    Thank you CC for your encouraging words. Every day is a gift and a challenge for us but now the season of joy has come and we all should have a blessing time together with those we love. I wish all...
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    I use the indoor rollator "let's go". It's light,...

    I use the indoor rollator "let's go". It's light, easy to fold and has one bow- handle instead of two . That's very useful for me since my right hand isn't able to grab a handle. Arda
  25. Replies
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    12,708

    Hi, in Germany we have a program called " Meine...

    Hi, in Germany we have a program called " Meine eigene Stimme "(My own voice). You have to read 7pages of syllables which was very demanding. A lady came to our house and recorded. Later when my...
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