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Type: Posts; User: Lolly

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  1. Replies
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    12,154

    My mother waited until she couldn't eat and then...

    My mother waited until she couldn't eat and then had her peg. It leaked into her diaphragm and killed her three days later, she died of peritonitis and this was 18 months after diagnosis. Some would...
  2. My mother died three days after the peg op. She...

    My mother died three days after the peg op. She was in Papworth hospital. It leaked into her diaphragm and she died of peritonitis. Please insist they put dye through the tube and X-Ray her before...
  3. Replies
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    Hi and sorry you have to be here. I'm not a...

    Hi and sorry you have to be here. I'm not a supporter of the peg. These are my reasons:

    My mother died from a leaky peg three days after her operation at Papworth hospital in Cambridge. The...
  4. Thread: Rory's Last Word

    by Lolly
    Replies
    11
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    10,370

    Thankyou for sharing this. Irene. He was one...

    Thankyou for sharing this. Irene. He was one heck of a man who touched so many people. He lives on in our memories. X
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    5,297

    So sorry, gain strength from your family and...

    So sorry, gain strength from your family and friends at this most awful time.
  6. Replies
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    2,214

    Yes my sweet. I got your pm will post it out to...

    Yes my sweet. I got your pm will post it out to you in the next couple of days x
  7. Replies
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    2,214

    Come on people ....I know it's hard. Read so you...

    Come on people ....I know it's hard. Read so you can plan. I will post them out free... Just small, or however much you can afford, contribution to the mnda. They helped me when mammy was ill.
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    2,214

    Anyone need any mnd books

    I have :


    Mnd a family affair (essential reading)

    The sue beresford book ( excellent)and

    The voice in my head is perfect (autobiography)

    Parting gifts ( a difficult one to read but good...
  9. Thread: feeling low

    by Lolly
    Replies
    24
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    15,022

    Hi Sam, for someone in your circumstances, your...

    Hi Sam, for someone in your circumstances, your feelings are completely normal. You are experiencing anticipatory grief and a thousand emotions that accompany it. Can you take some time off work to...
  10. Replies
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    6,939

    Hi Welcome to the forum. We do have some members...

    Hi
    Welcome to the forum. We do have some members here with the bulbar form. The unpredictability of the speed of progression though is a worrying factor. My mum wanted everything to stay the same...
  11. Replies
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    2,074

    Welcome to the forum. :) How have you and mum...

    Welcome to the forum. :)

    How have you and mum coped so far? X
  12. Replies
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    21,158

    I'm grateful ever to have been loved and been...

    I'm grateful ever to have been loved and been cared for by my mum (joybells). Her untimely death has also taught me that nothing and no one lasts forever. You have to live in the now. To this...
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    11,465

    I'm so sorry. From what I saw of him, he was...

    I'm so sorry. From what I saw of him, he was kind, gentle, and so much fun. I hope you can gain strength from friends and family at this most awful time.
  14. Thread: Hello

    by Lolly
    Replies
    3
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    2,086

    Welcome to the forum. Sorry for your loss. I...

    Welcome to the forum. Sorry for your loss. I lost my mum just before Christmas last year.
  15. Thread: just to say hi

    by Lolly
    Replies
    6
    Views
    3,437

    Hiya Caz ... Things will never be the same for...

    Hiya Caz ... Things will never be the same for you, but I'm so glad you are having moments of positivity, those will get longer and longer for you. He lives on in your heart and the wonderful...
  16. Replies
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    9,995

    I'm so sorry, gain strength from friends and...

    I'm so sorry, gain strength from friends and family at this most awful time .... Remember we are here too if you need us xxx
  17. Thread: Hello

    by Lolly
    Replies
    15
    Views
    9,587

    I'm so sorry. You don't deserve this much hurt,...

    I'm so sorry. You don't deserve this much hurt, Chrissy. Take strength from those close to you and remember people live on in our hearts. Feel free to pm me if you need a sympathetic ear
  18. Replies
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    Wow that's an hour long, can you give us a quick...

    Wow that's an hour long, can you give us a quick summary please? Thanks
  19. Thread: PEG or no PEG

    by Lolly
    Replies
    45
    Views
    30,643

    I'm so glad it was successful for you xxx

    I'm so glad it was successful for you xxx
  20. Replies
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    5,343

    Contact your OT ASAP who will be able to visit...

    Contact your OT ASAP who will be able to visit and make rescommendations? My immediate thought was a neck collar, but put it through the OT first, as all sorts of things need to be considered to...
  21. Replies
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    3,039

    Does your mum have a nippy machine? Respiration...

    Does your mum have a nippy machine? Respiration difficulties can come on so quickly. It happened almost over night for my mum.
  22. Thread: Communication

    by Lolly
    Replies
    9
    Views
    7,301

    Hi Tracey Sometimes you just being there is...

    Hi Tracey

    Sometimes you just being there is all the communication he needs. Older people like to reflect on their lives, especially those nearing the end, or with the end too much in sight, which...
  23. Thread: Lilylou

    by Lolly
    Replies
    5
    Views
    2,578

    Welcome to the forum :)

    Welcome to the forum :)
  24. Thread: PEG or no PEG

    by Lolly
    Replies
    45
    Views
    30,643

    Make sure they put contrast dye through it and x...

    Make sure they put contrast dye through it and x ray you after, before they start feeding or medicating you through it.

    My mum died as a result of the operation, three days later because the peg...
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    1,147

    Graham I was thinking about you today. How are...

    Graham I was thinking about you today. How are you? You still waiting for some action from someone or are things finally rolling to help you?
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