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  1. Replies
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    Ooo we've not seen the Kominsky method, I'll need...

    Ooo we've not seen the Kominsky method, I'll need to add this to the list.

    We have seen Ozark, Breaking bad, the sinner (I call it creepy crime) and the Stranger, it's almost embarrassing how much...
  2. Thread: Please help.

    by Tess
    Replies
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    511

    Hi Margaret, The problem with seeking diagnosis...

    Hi Margaret,
    The problem with seeking diagnosis answers from other sufferers is that everyone is affected slightly differently and no one will tell you that you have it unless absolute certainty,...
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    Netflix Suggestions

    I thought I'd start a thread other than discussing MND, if that's allowed..
    A chance to spend time together for me and my partner is to watch a series, documentary or movie together.
    I guess a mix...
  4. Thread: Electric toilets

    by Tess
    Replies
    9
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    1,323

    It's crazy that in the likes of Japan, these cool...

    It's crazy that in the likes of Japan, these cool multi gadget toilets are the norm, yet here it's a novelty.
    Similarly automatic cars in Australia seem to be the thing yet in the UK it's the more...
  5. Thread: Telling Family

    by Tess
    Replies
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    1,171

    Hi Spooky, I know everyone is different and over...

    Hi Spooky,
    I know everyone is different and over the last 6 months I've thought alot about what's the right or wrong thing to do in this situation. I think the key in all of this is having support...
  6. Thread: Please help.

    by Tess
    Replies
    16
    Views
    511

    Hi Margaret, My partner noticed symptoms at age...

    Hi Margaret,
    My partner noticed symptoms at age 31 when at the gym but at the time we didn't know what it was, but it was all very gradual and sounds quite different from what you describe,...
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    Hi Worried, My partner first noticed his...

    Hi Worried,
    My partner first noticed his symptoms at the gym while lifting, but like Ellie said it was nothing to do with tingling and more general weakness in one arm and especially loosened grip....
  8. Thread: Telling Family

    by Tess
    Replies
    15
    Views
    1,171

    Thanks for your encouraging words Delta! I'm...

    Thanks for your encouraging words Delta! I'm sorry that you had to conceal things for so long yourself....a very difficult situation to be in.

    I'm with you on this one and I know it's a 'strip the...
  9. Thread: Telling Family

    by Tess
    Replies
    15
    Views
    1,171

    Hi Miranda, Thanks for your comments there....

    Hi Miranda,

    Thanks for your comments there. We've had open discussions about it and he's simply scared and this breaks my heart. It's not news anyone should have to give to family, but I agree...
  10. Thread: Telling Family

    by Tess
    Replies
    15
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    1,171

    Hi Delta, You had me tear up there. I'm so...

    Hi Delta,

    You had me tear up there. I'm so sorry for your loss and thanks for the advice.

    It's very difficult when you want to support, but alot of pressure doing it all by yourself, so I feel...
  11. Thread: Telling Family

    by Tess
    Replies
    15
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    1,171

    Hi Barry and Graham, Thanks for your responses...

    Hi Barry and Graham,

    Thanks for your responses there. Unfortunately, he had to stop working last November due to deterioration of upper limbs and so up till now he's been lying to his family and...
  12. Thread: Telling Family

    by Tess
    Replies
    15
    Views
    1,171

    Telling Family

    My partner was diagnosed over 6 months ago and still won't tell his family about it. I feel I'm on my own with this and anytime I bring it up gently it turns into an argument...I've thought many...
  13. Thread: Eating Question

    by Tess
    Replies
    3
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    636

    Thanks for your responses there. I'll definately...

    Thanks for your responses there. I'll definately have a wee read at some point soon- just to be in the know.

    Stonehengeman definately keep enjoying that sun, I'm sure you've seen plenty of sights...
  14. Thread: Housing Query

    by Tess
    Replies
    9
    Views
    1,607

    Good plan Lynne- lets hope that doesn't happen...

    Good plan Lynne- lets hope that doesn't happen then in the meantime hahaha. I enjoy a good problem solving exercise, but lifting or dragging a 33 year old man hasn't come into the picture previously,...
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    My partner barely even uses his phone...

    My partner barely even uses his phone anymore....so I guess he has got into a habit of not using it? I'll help him reply to a text or make video calls, so the phone is more so 'in case of emergency'....
  16. Thread: Hot Tub!?

    by Tess
    Replies
    7
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    1,002

    If you get a hot tub please invite us round! :)

    If you get a hot tub please invite us round! :)
  17. Thread: NurOwn

    by Tess
    Replies
    10
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    4,157

    Thanks for posting Barry. I'll have a read. ...

    Thanks for posting Barry. I'll have a read.

    Tess x
  18. Thread: Eating Question

    by Tess
    Replies
    3
    Views
    636

    Eating Question

    At what point do you research or enquire into feeding tubes etc? (No need for this now but being vigilant)

    Do you wait until there's a choking incident to know that food isn't going down anymore...
  19. Thread: Moving house

    by Tess
    Replies
    13
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    2,593

    Congrats on the move! :) Or happy new home should...

    Congrats on the move! :) Or happy new home should I say.
  20. Thread: Housing Query

    by Tess
    Replies
    9
    Views
    1,607

    What a nightmare Lynne, as if you needed any of...

    What a nightmare Lynne, as if you needed any of that polava on top of the condition itself. I'm gobsmacked at the amount of paperwork and stages required for everything from pension and money stuff...
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    Hi Wayne, my partner is also in his 30's (just...

    Hi Wayne, my partner is also in his 30's (just turned 33)...it's just mad the whole thing. You don't want to look too far ahead but then you need to at times and it's super depressing and so we try...
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    Hi Denise, Fellow carer/partner :) I did...

    Hi Denise,

    Fellow carer/partner :)

    I did find myself naturally comparing what other people are doing in their lives to me and my partner's situation- a human thing to do I guess, but not even...
  23. Thread: Housing Query

    by Tess
    Replies
    9
    Views
    1,607

    Thanks for all of your responses there, I'll...

    Thanks for all of your responses there, I'll check out Blackwood homes also. I've been looking at 2 bedroom houses recently but then got side tracked looking at the lovely mansions (one can dream). I...
  24. Thread: New to Posting

    by Tess
    Replies
    9
    Views
    1,466

    Hi Lucy, Welcome and definately agree that...

    Hi Lucy,

    Welcome and definately agree that it's tough going to make the first post, it took me a good 6 months. I've noticed recently a lot of posts with a few comments but then hundreds of...
  25. Thread: Housing Query

    by Tess
    Replies
    9
    Views
    1,607

    Housing Query

    I'm trying to organise our next move... Me and my partner live in a second floor flat which we rent in Scotland and very soon the stairs will be impossible for him.

    We have applied to be put on...
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