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  1. Replies
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    Good afternoon all, Thank you for your replies...

    Good afternoon all,

    Thank you for your replies – I still have all the functions as it were so I guess I'm just with you all that fasciculations are just a warning that in due course something may...
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    Living through MND fasciculations

    Hello all

    Gradually getting settled in our new abode house is quite a different style to our original one and so slowly getting rid of its of my past life including a lot of my power tools and...
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    Good morning, Welcome Bonnie - very sorry to...

    Good morning,

    Welcome Bonnie - very sorry to hear of your challenges.

    Could I add another name to the list of painkillers being my old friend Indomethacin - This is an early painkiller which is...
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    Hi Tess, I'm into planning to which is why we...

    Hi Tess,

    I'm into planning to which is why we have just moved to somewhere that we can convert when the place we lived in before could not be converted for my needs - have you tried talking to...
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    Hi there I have a guidance note from my OT...

    Hi there

    I have a guidance note from my OT from my previous address which in turn came from a housing association she knows - if you send me a private message with an email address I can send it...
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    Hi there I have a guidance note from my OT...

    Hi there

    I have a guidance note from my OT from my previous address which in turn came from a housing association she knows - if you send me a private message with an email address I can send it...
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    That was interesting - The site seemed to hang...

    That was interesting - The site seemed to hang for a few moments I'm wondering if it was me or the MND a system
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    Good afternoon Glad to say we now have some...

    Good afternoon

    Glad to say we now have some proper broadband back so feel like I'm coming back into the world!

    Three weeks in and looking as to how we can do some more detail work on the place...
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    Good evening again Please be also warned that...

    Good evening again

    Please be also warned that we are having some difficulty with the Internet supplier at our new property - I suspect I will be just down to using my mobile phone as a Wi-Fi...
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    Good afternoon all Thank you all for your good...

    Good afternoon all

    Thank you all for your good wishes.

    As ever this kind of process brings my project manager skills into play - slightly befuddled by the fact that our new buyers don't seem to...
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    Moving house

    For those of you that have been following this saga we now have a completion date for moving house of 18th of May 2020.

    We seem to have sorted out most of the issues to do with coronavirus and our...
  12. Good morning Darius Welcome to the forum and...

    Good morning Darius

    Welcome to the forum and do not apologise for asking questions.

    Along with Lynnne I'm not qualified to diagnose and I can only sympathise with you that at this time it is...
  13. Thread: Hello

    by nunhead_man
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    Good morning Frosty, Welcome to the forum. ...

    Good morning Frosty,

    Welcome to the forum.

    I'm sure somebody more knowledgeable than me will come along in a moment but this does not really sound like motor neurone disease to me.

    We need...
  14. Hi Doug When I posted that, I was thinking of...

    Hi Doug

    When I posted that, I was thinking of those that are persistently and imaginatively hunting for amelioration and cure for a disease that has no cure at the moment in a way that avoids the...
  15. Thread: Als

    by nunhead_man
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    4,358

    Good evening Puddy As you know I'm coming into...

    Good evening Puddy

    As you know I'm coming into this carers matter from the side of somebody who suffers from MND.

    I was swearing about this disease yesterday in the presence of my daughter who...
  16. Thread: NurOwn

    by nunhead_man
    Replies
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    Hi David I'm not on the trial but I am playing...

    Hi David

    I'm not on the trial but I am playing around with some things that allegedly might slow my progression.

    However of course I'm in class of one as everybody's MND is their own so I have...
  17. Living through MND or living whilst dying?

    I've been meaning to put something like this together for a while on my work blog to warn those that I haven't spoken to directly what is going on for me and to laud those that I think have made a...
  18. Thread: Nuedexta

    by nunhead_man
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    I have to say I'm also guilty as charged in the...

    I have to say I'm also guilty as charged in the sense that as my grip weakens I continue to try to do things I used to do where part of my brain tells me I've no longer got the ability to do it -...
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    Good afternoon Ellie Thank you in return I...

    Good afternoon Ellie

    Thank you in return

    I think she is a very good speaker and reminds me of my early training in bodywork when somebody described to me the body is just a series of pulsating...
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    Good morning Ellie Thank you for posting – as...

    Good morning Ellie

    Thank you for posting – as you know I am arm onset and I can eat by myself at the moment but obviously there will be a time when I can't.

    Interesting that that was the point...
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    Our emotional body

    Some here will know I have some training in psychotherapy and I've always been interested in the way in which body (my body, others bodies) and mind/s interact - especially as my body decays.

    I...
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    Good afternoon Doug Thank you for your...

    Good afternoon Doug

    Thank you for your response

    In glad to say I'm not feeling lonely as I have my wife and daughter looking after me in my isolation and strangely my work team are very busy...
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    Forum traffic reduction due to lockdown?

    I'm interested that the traffic on this forum seems to have reduced during this period of lockdown.

    Does this mean people are not generally active in social media during this time?

    I think...
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    Good afternoon Hayls Thank you for this...

    Good afternoon Hayls

    Thank you for this reference - I passed it onto my wife and daughter for them to try out
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    Hi again I mentioned that hand shape because I...

    Hi again

    I mentioned that hand shape because I can remember going to my first local MND branch coffee afternoon and meeting one of the Association visitors who I think was asking herself why was...
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