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  1. Replies
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    Hi The forum is a safe place to ask questions,...

    Hi

    The forum is a safe place to ask questions, without fear of sounding daft!

    Also a place to find support, and even comfort amongst the words and stories shared by others.
  2. Thread: Holiday NYC

    by BusyBee
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    4,531

    Hi CC Thanks so much for your help really...

    Hi CC

    Thanks so much for your help really appreciate it x
  3. Thread: Holiday NYC

    by BusyBee
    Replies
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    4,531

    Holiday NYC

    HI

    Looking for advice please regarding travel to NYC. We would really like to return to NYC to see friends (and soak up the atmosphere!) before MND puts a stop to all that.

    My husband is a...
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    Thanks both for your replies. Terry - Yes we...

    Thanks both for your replies.

    Terry - Yes we will pay. We were hoping for an earlier slot to keep up some sense of normality/structure to the day. I will call MNDA, thanks for the prompt.
    ...
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    Social Services and Care Provision

    Hi

    I pop in every now and then for advice, thanks to everyone that's helped without knowing about it!

    I haven't posted for a while as we have just been getting on with life and adjusting to...
  6. Thread: PIP Rant!

    by BusyBee
    Replies
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    1,905

    PIP Rant!

    Hi everyone

    Paul and I are still lurking here on a regular basis 😊

    Today was an important day, at 8.45am Paul had his PIP assessment/interview. Traffic was horrendous but we made it by the...
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    We have just applied for PIP, now the waiting...

    We have just applied for PIP, now the waiting begins!

    We did ask the Consultant if she would complete a DS1500 to support the claim, however were advised that these 'only tend to be issued when...
  8. Thread: Another Newbie

    by BusyBee
    Replies
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    4,054

    Thanks everyone for your replies and help. We...

    Thanks everyone for your replies and help. We really appreciate you taking the time and we will follow up on each of the suggestions.

    Having a positive week - seen by a physio and given some...
  9. Thread: Another Newbie

    by BusyBee
    Replies
    9
    Views
    4,054

    Another Newbie

    Hi All

    My lovely parter is currently going through the diagnosis process. On 23rd April, we were told he has 'probable MND', next appointment is late July with the MND team in Bristol. Praying...
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